In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Hi Bill & Always Rosie,
Thanks for the welcome, this is a great place-lots to learn!
Bill, I take Methadone not for the Lupus but, for other pain related problems. I know it doesn't treat the pain but it does help with the pain so that I can live a somewhat normal life. I have alot of back problems that can't be fixed, Fibro, and Myofasical Trigger Point Syndrome.I take it only for the pain, not for drug addiction. I honestly can't say enough about it, it has given me my life back.
Yes I agree it's Lupus related, I've been lucky so far and I can honestly say I've never had trouble with these areas, just recently. The Prednizone helped with so much, these areas just seem to be holding on and not giving up.
I was taking NSAID's for the longest time and it helped alot, then I had the flare. When I went to the Rhumey she put me on Prednizone and said no NSAID's while on the prednizone, too much for my stomach I guess..On days like this I miss them..
Not that I will go against what my doctor said but did anyone ever take predizone and NSAID's? Did it bother you in any way? I'm just curious..
Thanks again for the welcome!
Post Edited (Gidget^) : 10/15/2007 5:36:53 PM (GMT-6)
Thanks for the long post, that is some good info~ Yes I do sometimes get hot joints-then other times freezing cold. They hurt more when there hot and feel hot to the touch..
Now for shoes-I'm a strange one there..I'm not a girly girl-no heels! I wear Birkenstocks-I love them! I have ones that are new so I'm good there-
Believe it or not I know about the hard time to get off Methadone, I've tried it before. It didn't work and I did more damage to myself than I should have.
I tried to quit cold turkey on a 20 mg dose which was a huge mistake. I wound up in such a flare that it took me over a year to retun to somewhat of a normal life again. So I know that if I ever want to get off of it, I need to taper very slowly. That is the key, slowly. My doctor understood what I was trying to do so when it didn't work she re-prescribed it for me.
I actually have a great doctor who talked to me about all the pro's and cons about it, the day she prescribed it for me I spend two hours in her office just talking. We started slow and worked up from there. It has been the med that worked for me with the least amount of side effects. The other good thing is that I am on a stable dose-I haven't changed the mgs. in years. So for me, it works.
Nice to meet you-