Update, I saw the doctor today!

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emerson80
New Member


Date Joined Oct 2007
Total Posts : 12
   Posted 10/15/2007 4:19 PM (GMT -7)   
The Rheumy doctor did a very thorough exam. Some of my blood work is back, some will take until Wednesday.

My rheumatoid factor was BORDERLINE. I am 26 years old. How many of you had a positive rheumatoid factor test?

The ANA and Sed rate are not back yet.

Even though my liver functions came back okay, he is worried because he feels that my liver is hard/rigid/swollen. That is also where I feel my abdominal pain! I think he may have me get another CT. I had a CT two months ago (can things change that quick?).

He is not ready to put a Lupus diagnosis on me yet. He feels it *COULD* still be a really, really bad virus. (I have a hard time believing that)

So I talk to him again Wednesday. If he decides it's a virus, should I get a second opinion?

I am so close to losing my job...... but what do you when: you are passing out asleep all day, in pain, can hardly walk and can't concentrate?

I am so frustrated!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/15/2007 4:27 PM (GMT -7)   
Hey Emerson,
 
Well, at least the test results are coming in now.  I'm not sure if I have a positive rheumatoid factor.  I have everything else positive, so it probably is, LOL!
 
YES, your liver can change that fast.  I had liver problems in June, July and August.  From a drug allergy.  My liver numbers were off the charts in June, but within 2 months of recovery, and staying on the same meds, my liver made a perfect recovery! It's even healthier than before the allergy happened.  Crazy eh!  So yes, the liver is extremely capable of healing quickly and deteriorating quickly.  So much of what we ingest, process, toxify, etc, is done through the liver.
 
Not sure why your numbers are fine, yet he can feel that it's swollen/enlarged.  I would get another scan done. 
 
It never hurts to get a second opinion, especially if there are no clear cut definite diagnosis' being made.  My guess is that he'll send you to a liver specialist.
 
I'm sorry you're having trouble with work.  Can you get a letter from your rheumy to cool the heels of your boss?  Maybe take a little time off?  I can understand your frustration.  We're here for you...
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/15/2007 4:34 PM (GMT -7)   
Emerson, I'm so sorry . . .

Ask your doctor for a note for work. When you are out that long, the employer really does have a right to see something in writing. Also, there is a topic from just a week or two ago about Family Leave Act . . . I'll see if I can find it and bump it up to the top

IF you do have a virus . . . that sounds like the best possible dx. . . because I would assume that it could eventually be cured. I don't blame you for being scared about the liver . . . but it sounds like this doc is really being careful and the second scan is a great idea because they can compare the outcome with the last scan and see how rapidly things are progressing. The more info the rheumy gathers, the better he'll be able to hone in on what is really happening. With everything you've posted, I think he is just gathering all him information and doing some serious evaluating before making a conclusion. This disease really is hard to dx w/o a positive biopsy . . . they just really need to make sure they get all their facts before passing judgment. I don't see anything that would make me run and get a second opinion just yet. He squeezed you in quicker than anyone here has ever seen. Sorry you are still "in waiting" for your dx . . . but keep us posted . . .ok? It sounds like both your docs are on the ball so far.

Look for that other topic I'll bump up.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/15/2007 4:40 PM (GMT -7)   
OK . . . the topic is FMLA and you should find it near the top of the board. I hope it helps.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


emerson80
New Member


Date Joined Oct 2007
Total Posts : 12
   Posted 10/15/2007 5:05 PM (GMT -7)   
Thanks!!!! I am hanging in there.
I just talked with my boss and they need some forms filled out from my doc and it's that easy! (Thanks AlwaysRosie for the advice!!!)

I am SO LUCKY to have such great docs! Being sick is frustrating period. But that's just how it is!

I will keep everyone updated.... everyone here is so nice :)

tongue

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/15/2007 6:01 PM (GMT -7)   
GREAT Emerson!!! One less thing to worry about!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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