Fatigue- baby or lupus coming out of remission

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redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 10/15/2007 4:24 PM (GMT -7)   
I am having much higher levels of fatigue than with any of my other pregnancies. It is beginning to worry me. I have no family to ask if being 30 makes the fatigue worse and my doctors don't get it that when I say it is worse I am not imagining it- they think I forgot how bad it was in the past. I didn't I expected to need an extra 2 hours of sleep not 5 or more. I already need 10-12 hours due to the lupus and RA. I really didn't need to add another 5 hours to that. And believe me I tried sleeping less, the nausea gets MUCH WORSE if I don't get all the extra sleep. It makes no sense. Why would it more than double when I am in remission with the lupus this time and all the other times I was in full flare? I see my rheumy in November. I may ask if we can up the prednisone for a while. I just don't know if this is age related or if it is something to really worry about. They gave me Zofran which doesn't add to the nausea.

Anyone here have any ideas? I really want this baby, but if my lupus flares I will likely lose it. I am rather scared and my phone isn't working. We are waiting for the company to figure out why. I hate not knowing if this is autoimmune or just the pregnancy and my age. I haven't had a baby since 2000 and haven't been pregnant since 2002 (we lost that one to blood clots in the placenta). I just really need some advice from someone who has a modicum of experience with this cause there aren't any books out there for people like us- and especially not for people who pregnancies are as complicated as mine.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/15/2007 4:36 PM (GMT -7)   
Hi Redrose,
 
I wish I had first hand experience to help you.... All I know is that every pregnancy, even for those without health issues, are different each time.  It could very well be that your lupus is more active right now.  Your body is going through a lot!  I think you need to speak to your obgyn.  I wish your phones were working.  That must concern you.
 
Is there any way I can email you personally?  I would really like to talk to someone about pregnancy and lupus and all our complications.  I have no one to talk to who really KNOWS what the process is like, and what to expect.  I would love to be a mom, but my APS presents extreme challenges.  I'll be 34 in a few months and my clock is ticking like a time bomb.  Just feeling lonely and upset that my options to be a mom have been taken away.... Who in ever would even let me adopt a child with my medical history?  I'm really having a lot of trouble getting through this stage of my life.  If you would rather keep our talks to the forum I understand.  Just wanted to ask.  You can email me.  My address is public.
 
I hope you get some answers soon Redrose. Just try to rest as much as possible.. (((hugs)))
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/15/2007 9:37 PM (GMT -7)   
With APS they recommend Lovenox (not positive of the spelling) you also will want a high risk specialist involved. You need to have stable organ function for 6 months minimum. I have complications from cervical damage that occurred from some nasty things when I was a child. This makes pregnancy worse for me. I do not believe your option to have a baby is gone. You would just need careful monitoring. I have had 4 babies. I lost 2 to a genetic metabolic disorder- bad genetics on both sides. You will be higher risk for a miscarriage.

You could have a perfectly normal pregnancy out side of the need for blood thinners. I need baby asprin because I have low level positive on the lupus anti-coglutant and anti-phospholipids on occasion. It cost me one pregnancy because the idiot I was seeing refused to believe I needed baby asprin saying because he hadn't heard of my problem it didn't exist.

Make sure your rheumy is in on pregnancy plans.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/15/2007 10:01 PM (GMT -7)   
Hi redrose, first of all you need to try to relax. You are not doing your flare or yourself or the baby any good getting so stressed out. Like Ginny said all pregnancies are different. My second child was born 3 years after the first. The pregnancy wasn't worse but when it came to the delivery that three years older made a huge difference. I was exhausted! That was long before I got sick. I'm reallly sorry you lost a child sadly those things happen. Just try to stay possitive. The stress of worrying is no doubt making you even more exhausted. You and baby will be in my prayers
love
carol
God Bless
Carol
Primary Biliary Cirrosis,  COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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