Questions on eyes

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omega
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Date Joined Jan 2007
Total Posts : 607
   Posted 10/17/2007 12:44 PM (GMT -7)   
I will try my best to describe what happens but it is quite hard.  For about a week, my eye sights feel funny.  It is like you are seeing a thick  black and white (with bright contrast) zizzag shape line from the corner of my right eye.  It moves if your eye moves.  It happens sometimes during the day, and it happens in the evening.  It lasts for about 15-30 mins.  It makes me also cannot read a word as normal.  It's like some part of the words are missing because of too bright.  And I am also afraid that I hit something if I am in school.  I have no idea what happens.  I thought it was just the indoor lights that caused it or it is because the light in my room (rented) is not bright enough.  However, when I thought about it, it did not happen before.  Anyone has any advice?  I do not know if it is normal, meaning some of you also have this experience before.
I am still waiting to see a Rhumty.  The post office in UK is on strike, and I hope the letter of appt won't be delayed because of this.  My GP knows nothing about lupus.  He took two blood tests for me today because I have a week morning fever(?). 

Razzle
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Date Joined Aug 2007
Total Posts : 4392
   Posted 10/17/2007 2:17 PM (GMT -7)   
You should see an eye doctor about the zigzag. It's probably something harmless, but it is best to get it checked out to make sure.

Take care,
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, malabsorption/malnutrition, etc.
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/17/2007 4:43 PM (GMT -7)   
Hi Omega,

It sounds very similar to an issue that i have on occasion. My doc said that mine is an "Ocular Migraine". Oddly, it usually does not cause pain . . . but it was very frightening before I found out what it was as I sure didn't want to lose my eyesight. DO get it checked out with one of your docs . . . but I hope it is as benign as my similar issue is.

Make sure you keep us posted!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 10/17/2007 5:03 PM (GMT -7)   
Hi Omega,
 
Yup, I get those occular migraines too.  The zig-zags, or silver bullets going across they eyes.  Sometimes I get vision that is only half there, like a curtain has been pulled halfway across my eye.  Annoying as heck! 
 
I agree, get it checked out.  I also had vision issues early in my diagnosis before my prednisone kicked in.  Sometimes inflammation can cause similar symptoms.  Seeing an ophthamologist is important. Try to get a referral to see one of them.
 
Keep us posted,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 10/18/2007 12:08 AM (GMT -7)   
Thanks. I suspect it is also occular migraines, because the description on the internet is very similar. Here the GP told me to pay and see the Optometrist, and not Opthamology. I am hesitated because I wonder if an Optometrist will be able to see anything at all. I am in UK and if I want to get free medical, I need to be referred by GP and have to wait for ages, just like I am still waiting to see the Rhumty. I will try and talk to the GP again and see. It's just a pain seeing him because it only has 10 mins of appt time. It's extremely rushing. Crazy, ehhh.

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/18/2007 5:50 AM (GMT -7)   
Hi Omega . . . YES! it's very difficult when your visits are rushed like that. When you finally get to see the rheumy . . . and if he suspects Lupus or UCTD or even some types of arthritis, he will likely start you on plaquenel. Plaq is first guns for this stuff because it can be taken long term w/the least side affects. IF he puts you on plaq, you should be referred to an Ophthalmologist. Ophthalmologist is a medical doctor with the eye degree and can treat eye disease. Optometrist checks your vision and can prescribe eye glasses. When we take plaquenel, we need to see the ophthalmologist at least once or twice a year. Mine recommends twice a year for 400 or more mg plaq and once a year for 200 mg. But they want you to have your first eye exam before you start taking the plaq.

Hang in there Omega!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 10/18/2007 7:20 AM (GMT -7)   

Hi AlwaysRosie

I had stopped Plaquneil one and a half years ago in the US by my Rhumty because of early signs of Plaq toxicity.  That time I saw Opthamologist.  I had lupus for almost 18 years now, and I had taken Plaq. on two different periods.  Not until 1-1/2 years ago, I found out Plaq toxicity by the Opth.  I always saw Opth when I was on Plaq.  I just wondered how this GP told me to see an Optician when he knew I have lupus and had Plaq toxicity b/4.  He said also to mention to the Rhumty when I get an appt (yea right!!!!! Why didn't he refer me to an Optham skull  ).  He knew nothing about lupus.  I asked him how lupus could affect the eyes, and he could not even answer me.  I don't want to pay for an optican when I know I may not get anything detailed. Plus, I have not found a job and living on my savings.  I may have to wait until I can get a letter of appt from the Rhumty, or I have to go again to the GP.  I just hate going down there because it is so rushing.  Free medical is good, but waiting time sucks. eyes I may go down to an optician office and ask later since there is one near where I live.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/18/2007 9:01 AM (GMT -7)   

Hi Omega,

I just remembered this... After I saw my Ophthamologist, he referred me back to my neurologist for further testing.  It was my neurologist who diagnosed my occular migraines.  Sounds like a weird specialist to diagnose this, but he did!  The neurology department at one of our hospitals is equipped with special testing equipment for anything involving the brain. ANYTHING!  Which would include our eyes.  So that is a direction you might take too!  Just thought you would find that interesting!

Ginny


I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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