Hashimoto's Encephalopathy

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oldfordlover
Regular Member


Date Joined Apr 2007
Total Posts : 52
   Posted 10/19/2007 12:39 PM (GMT -7)   
I was talking to a person from this forum just this morning that told me there are maybe 2 people on this forum that are suffering with Hashimoto's Encephalopathy. I have found many people over the last couple of years with Hashimoto's thyroiditis but not HE. I would very much like to get to know someone who has experienced this rare autoimmune disease so that I can help my wife more. She has had HE for at least a year and a half.

If you can help me with personal experience or knowledge, please help

thanks
Age 50
Diagnosed 4/24/07
PSA 5.5
cancer in 8 of 12 biopsy samples
gleason score 4+4=8; up to 70% pti;
some perineural invasion
surgery performed 5/23/07
clean margins--clean lymph--clean seminal vessel--capsule not penetrated
gleason score upgraded to 9
4-5 weeks out--pad gone
6 week PSA--<0.05


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/19/2007 4:19 PM (GMT -7)   
Hi there;

I'm the person you spoke with during chat today. I truly believe there's someone on this forum that has hashimoto's encephalopaty. I may be wrong and it's possible as I've got lupus fog and fibro fog most of the time. If there's a member on our forum would you please respond to this? If I'm wrong I sincerely apologize for leading you astray.

Best of luck,

Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/19/2007 7:05 PM (GMT -7)   
I think you are looking for Emmi.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/19/2007 8:57 PM (GMT -7)   
Yes, I agree with Rosie, Emmi is the one. I have hashimoto's thyroiditis with high TPOs and mental complications and diffuse brain damage. I have yet to find anyone to say I have HE, I don't think my symptoms now are severe enough. I hope you and your wife are doing ok and wish you the best. You might also try Mary Shomon's thyroid forum I think its on about.com, I know she has written books about H.E. and has a ton of info on it and there are a lot of people there too with it as well as other endocrine disorders.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 10/19/2007 9:10 PM (GMT -7)   
Yep, girls you're right; I'm the one!

oldfordlover, I'd love to answer any questions you have about this wonderful *sarcasm* disease of HE. I'd be a lot more comfortable however on the forum dedicated to that topic. You can find it through Beverly Seminara's site with all of her research on HE. From your description of yourself, I think you might already be posting on the board dedicated to that topic. If not I apologize, and I urge you to look for the board. It is called HELPS.

All the Best and I hope I along with all of the others there can be of help to you,

emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


oldfordlover
Regular Member


Date Joined Apr 2007
Total Posts : 52
   Posted 10/20/2007 6:27 AM (GMT -7)   
thanks to all for you quick replies.
Emmie after I saw the way you spelled you name, of course I membered that we have conversed on HELPS. You are right.

Thanks so much for you continued help. And I hope that you are doing well
Age 50
Diagnosed 4/24/07
PSA 5.5
cancer in 8 of 12 biopsy samples
gleason score 4+4=8; up to 70% pti;
some perineural invasion
surgery performed 5/23/07
clean margins--clean lymph--clean seminal vessel--capsule not penetrated
gleason score upgraded to 9
4-5 weeks out--pad gone
6 week PSA--<0.05

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