What is the youngest person to have Lupus?

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ladybug44r
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Date Joined Jul 2006
Total Posts : 794
   Posted 10/19/2007 9:11 PM (GMT -6)   
My 4 year old grandson is being tested for Lupus. Because there is a possiblity that it runs in my family and because he is having problems walking due to his knees his Dr. is testing. We will know by Monday. At the same time because my son shows signs of Lupus he has been tested. He is 24.
 
The mother to my grandson has TM (Transversal Mylitis) which is an autoimmune disease. She was dx in 92 when she was 11.
 
Hope that everyone is doing well.
 
Veronica

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/19/2007 9:14 PM (GMT -6)   
Hi Veronica . . . its very rare for a young child to be dx with lupus. But I have heard of some youngster with RA. Our daughter's friend had it really bad in her knees and she managed it all of her childhood with Tylenol. I hope the find out what is at the root of your grandson's knee problems . . . poor little guy . . . and I sure hope it isn't Lupus.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/19/2007 9:16 PM (GMT -6)   

I found this link in Lupus Resources . . . maybe it will be of some help.

Diagnosing Lupus in Children
 
http://www.lupus.org/education/topics/early.html

Blessings!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 602
   Posted 10/20/2007 8:22 AM (GMT -6)   
Bless his heart. I hope it isn't lupus. He is so young.
DX SLE 1988; Pred 10mg, Cellcept 2500 mg, Verapmil 120 mg (for migraine headaches), Famotidine 20 mg BD, Volteran 150 mg (temporary), Calcium + Vitamin D 1200mg


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 794
   Posted 10/20/2007 5:26 PM (GMT -6)   
thank you all for the response. I hope and pray that neither one of them have it.

I talked to my daughter and she said today is a good day for him he was up walking some but still limping. I would hate for this to be his way of life. She said he has one good day and two bad days. I keep telling her to keep the faith and God will help him no matter what he has.

Veronica

mom7
Regular Member


Date Joined Oct 2007
Total Posts : 33
   Posted 10/22/2007 9:48 AM (GMT -6)   
My daughter has CNS Lupus and Hughs disease shis only 17 years old
 
Sharon

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/22/2007 6:54 PM (GMT -6)   
Welcome to the forum Mom7 !!! . . . I'll start a new topic to welcome you so the other members can say hello. If you have a minute, post a little about your daughter's journey with Lupus and Hughs . . . and how the doctors are treating her.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Bsime
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Date Joined Apr 2006
Total Posts : 1207
   Posted 10/23/2007 10:45 AM (GMT -6)   
I have talked to someone who was diagnosed at 7. Not sure about anyone younger. Her name is Leslie Hunt and has worked with the LFA of Illinois. Do a google on her and you can find information. Leslie is in her mid 20s and doing very well now after having some very rough times but now leads a normal life and is pursuing a career in music.

Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2750
   Posted 10/23/2007 7:15 PM (GMT -6)   
Hi Veronica:

I just wanted to say I sure hope your grandson doesn't have lupus. Sending up a bunch of prayers for him. The youngest person I know with lupus is 14. This is a tough disease to have and be a kid. Wishing your boy healthier days ahead.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 794
   Posted 10/24/2007 10:48 AM (GMT -6)   
Thank you all. So far still no word from his dr. Sometime no news is good news.

Veronica

mml0913
Regular Member


Date Joined Mar 2005
Total Posts : 169
   Posted 10/24/2007 9:53 PM (GMT -6)   
I was 19 when I was diagnosed with lupus but with some of my conditions and when my doctors found out about my medical history and things that had gone wrong, they believe that I have had lupus since I was about 15 or 16.  That is just a guess but it is so hard to tell because that was one of the things that they never thought to test me for in the past.
 
I hope everything works out with your grandson.
Marianne
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Age: 21
Plaquenil (200mg twice a day)-- taken off 4/11/06
Cymbalta (30 mg)-- taken off 4/11/06
Biotin (1000 mcg) (for my hair)
Multi-vitamins
Antioxidants

Lupus, leukopenia, depression, fibromyalgia

Heart cath- Feb 2005
Heart monitor, 24 hour heart monitor, EKG, echocardiogram- Dec 2004
Numerous blood tests since August 2004

Current docs:
PCP, rheumatologist, cardiologist, hematologist


ChyAnne Horan
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/26/2013 2:14 PM (GMT -6)   
I was diagnoses with lupus at age 3. I'm 12 now.

tntvol
New Member


Date Joined Jun 2013
Total Posts : 2
   Posted 6/19/2013 8:51 PM (GMT -6)   
I was not diagnosed until about 25 but looking back I am sure I had it at a very young age, symptoms began around 7 or 8.  My daughter is 15 and I have always been paranoid about her having it because she has joint pain and swelling.  I was hoping if I prepared for the worse it would never happen, well, she is now presenting with a very classic butterfly rash.  Waiting to see when we can get in to see my Dr.  I will say that I am 48 now and all in all I do not feel like lupus has defined my life.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12084
   Posted 6/20/2013 12:41 AM (GMT -6)   
Welcome tntvol, make sure to post an introductory thread so everyone can greet you.

This is an old thread and these members are not active now.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, OA, Depression, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))
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