CAN THIS BE LUPUS?

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wolftrades
Regular Member


Date Joined Aug 2005
Total Posts : 301
   Posted 10/21/2007 12:28 AM (GMT -7)   
I have severe back pain. I do have back problems that show up in MRI-3 bulging discs, 2 levels of spinal stenosis and 2 levels of facet hypertrophy.
 
But my pain seems to go beyind this.
 
I have severe left leg weakness including no reflex in the left leg. My left hand has becomes pins and needles numb with joint problems. I have psoriasis on my hands and legs.
 
Lately, I have had this STRANGE PAIN...feels like it is coming from deep within me, making my inner body painful.
 
I have the usual pain down my left leg and sciatica areas along with major discomfort in left and right hip.
 
Sharp pain top of legs into groin
 
Can this be lupus? If not, is it my back or can it be something like lymphoma or cancer?
 
 Thanks
Alan

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/21/2007 3:23 AM (GMT -7)   
Hi Alan . . . welcome to the Lupus Forum,

Alan, I'm sorry your pain is bad and gaining momentum. It compounds our pain when we can't find the reason for it and I can hear your frustration in trying to find the cause.

Lupus can certainly cause some really strange undoings in our body . . . but most of what you describe can really be attributed to the the spine problems. Compressed nerves can cause wicked pain that seems unrelated to the back. That type of pain is also difficult to treat. (I have some pinched nerve issues myself). But the groin pain sounds like it could be unrelated to the back (like hip joint issues or prostate). I'm certainly NOT a health care professional . . . just a fellow chronic pain sufferer . . .

What makes me want to think Lupus is not a big concern is that none of your issues are bi-lateral (both sides). Frequently (but not always) lupus will cause pain on both sides (both hands or both knees etc.)

Which of your issues make you think you might have Lupus?? If you look at my signature, there is a link "Lupus Criterea 4 of 11". If you click that link, you will see 11 symptoms or criterea that help diagnose Lupus. A doctor looks for you to have 4 of the 11 for a positive dx. There are also some other links in my signature that will give you lots of Lupus info, including the "Lupus Resource" link which contains a post with tips from all our members.

I hope some of the others will see your post and maybe be able to help. There are also a couple of members here who are men, so I'm hoping they may see your post and comment as well.

Keep us posted as you try to figure this out.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/21/2007 3:34 AM (GMT -7)   
BTW: I see your screen-name . . . coincidentally, Lupus is a latin term for Wolf!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 10/21/2007 7:18 AM (GMT -7)   
I am sorry to hear about the pain that you are going through. I think AlwaysRosie has provided you a good info already. I would suggest you to call your doc/specialist to discuss about this and see if there is any further testing can be done and see if there are any med. to alleviate your pain.
DX SLE 1988; Pred 10mg, Cellcept 2500 mg, Verapmil 120 mg (for migraine headaches), Famotidine 20 mg BD, Volteran 150 mg (temporary), Calcium + Vitamin D 1200mg


Staceymommy
Regular Member


Date Joined Oct 2007
Total Posts : 24
   Posted 10/23/2007 5:34 PM (GMT -7)   
Welcome to the forum. I don't have any other suggestion to add to what has already been said but sorry that you are going through these kind of pains.
dx Aug 2001 SLE and Hughes, 2003 Chrondromalaysia patella, Hashimoto and IBS, 1995 Gerd and Osteo Arthritis, 2004 Migraines, Chronic Bronchitis, Sinus Tachycardia, 2006 Fibromyalgia

Married 9 1/2 years
Mom to 1 miracle boy born 11/10/02 (took 12 pregnancies)
Meds
Darvocet
Toradol
Prevacid
Toprol
Vistaril
Prednisone(during flares)
Albuterol Nebulizer

Supplements
One a day
Ho shou wu(helps with the infamation and break through pain)
peppermint and green teas
Primrose oil
chaste berry


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/23/2007 6:17 PM (GMT -7)   
Hi Alan:

Just another welcome to our forum. Did you get a chance to look at the criteria for lupus? Are you having any of those symptoms? I'm sorry you're in so much pain. It's hard when we're in pain day in and day out. I hope you get some answers really soon. Please let us know how things turn out.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


wolftrades
Regular Member


Date Joined Aug 2005
Total Posts : 301
   Posted 10/26/2007 12:15 AM (GMT -7)   
Pain Doc suggested today that I might have Lupus,,,going for blood test on Wednesday!

Alan

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/26/2007 5:51 AM (GMT -7)   
Keep us posted Alan!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


wolftrades
Regular Member


Date Joined Aug 2005
Total Posts : 301
   Posted 10/28/2007 12:13 AM (GMT -7)   
Funny how things start popping up...recently had some nose bleeds...had plenty as a kid...and sure enough that's another symptom of Lupus. Also, just started to realize I've been scratcing a lot lately...could be from my meds, or could be Lupus.


Alan

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/29/2007 7:45 PM (GMT -7)   
Hi Alan, sorry I am late welcoming you to the group. It's really hard to get a DX for auto immune diseases but the blood test is a step in the right direction. However some people will have lupus with a possitive ANA and some people will have Lupus and never have a possitive ANA. So keep pushing and try not to get to frustrated. In the mean time I hope they give you somthing to help you with the symptoms even if they don't have an answer for you for awhile.
take care and let us know how the tests go
hugs
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2007 4:31 AM (GMT -7)   
Hi Alan, did you have your blood work done yesterday? let us know what you find out ok?
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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