In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Hi Marji, Rosie, and Omega, thanks for responding to my post. Somtimes I just get angry and don't know what to do with it so I come here and rant and you are all so understanding.
Marji, thank you for all the info you sure have gone thru alot! I guess I didn't explain myself very well about the asthma. I was told in 98 I had asthma and than in 03 I didn't have asthma I had COPD. So that was when I stoped taking the asthma meds. Some of them I still take like advair but the took me off the alburteral and put me on spiriva and changed my nebulizer to xopenex. I was really worried about the change at the time so I slowly quit taking the albuteral and he was right I never had asthma.
I am however like you said wondering about the COPD being related to the PBC. I too have the RLL with pnemonia. Which I seem to get about 2 or 3 times a year. I have an appt: to get my flu and pnemonia shot on the 31. The rheumy only came to his conclusions by an exam and my lab tests. I am curious though because my phosphate levels are too low and I have read the with PBC they should be high. All though I know so little about all of this that I could be totally wrong. He wants me to go see somone about doing a liver biopsy but he needs to go over this with my PCP. He did however say I need to stay on the plaquenil and predisone. I just want this set up and done with and get confirmation. One way or another about what is going on with me. If you ever run accrossed any website or anything that you think could clear things up a little for me please send me an email. I would appreciate that. With your liver problems do certain foods make you sick? I had a baked potato with sour cream and some bacon bits and butter and I feel like I'm gonna get sick to my stomach.
Hi Rosie, ya got any tension tammer tea? I could use some of that. No they didn't give me any info on how long it would take. I just figured they would right something on paper and send it off. I guess I just want everything right now! LOL. I will try to calm down though I am feeling a bit better though. I've still got your SIL in my prayers.
Hi Omega, thanks hun. I actually really miss being here too. Since they changed my DX I have kind of felt funny about saying much since this group is really about Lupus. I don't want to confuse the new people here. But you guys are never far from my thoughts and prayers.
take care and thanks again ladies
Thanks Rosie I appreciate that. I know what you mean about all this A/I stuff being like one big disease. Besides what Marji wrote I have found out that it is not uncommon for people with PBC also have sjogren, celtic disorder, scleroderma , and CREST.
I am not gonna wait around this time to let them try this or that. I've got the pulm. about on the 6th I'm gonna tell them to do a biopsy and let's figure it out. I'm gonna tell the liver doctor that I do indeed want a biopsy for that too. As much as I would rather not go through this stuff I am tired of hit and miss . I have insurance I have reached my catetrophic cap. If they do it before the first of the year it will be 100% paid for so they shouldn't have a problem with that.
Boy I'm getting grouchy and demanding in my old age ain't I? If I can't get results from them there are alot of fish in the ocean so to speak.
Ok I feel a rant again LOL so I think I'll go. but thank you for your kindness about keeping me around and that it doing some good to discuss it. With all the other problems that come with it, it kind of makes ya wonder how many people on here also have it that don't even know it?
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WWWWWWWW shucks Emmie! I won't quit posting until they tell me posting is going to make my fingers fall off. even then I still got my toes . Boy I sure mess our silly chats about nothing. So how's everyone in your family doing? Mines getting married (again) LOL. hopfully this time a little older and a little wiser but then again ya never know. I'll try to keep up more. Now that it's getting colder I won't be out in this crap as much. My son wants me to go to Montana for christmas! . He said we can go skiing. Yeah right I can go down hill with an oxygen pack on my back. Or I could light a fire under it and fly down that sucker like underdog.
Hi Hippi and Patty, Thanks so much for posting back to me. You guys are what keep me coming back. Hippi I feel so badly about your son. I just pray the doctors can help him. I know it's just tearing you up as well.
Patty thank hun, I sure do miss you. It seems we keep missing each other on here lately. I have gotten to read about your allergies to food though. How is that going? See even when i don't post I read what is going on with everyone.
I would love to write more but I have been up all night. I ran out of pain meds and the doctor won't refilled it until the end of next week. She just doesn't give me enough and I can't make it on what she gives me. I'd ask her for something for break through pain but she is such a stickler. I 'm not sure I can handle this for another 6 days.
Well I'm gonna try to rest a little more
God bless and thank you for your prayers for Derrick and the 45th NG!