New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Beth1
Regular Member


Date Joined Apr 2005
Total Posts : 54
   Posted 10/22/2007 1:06 PM (GMT -7)   
Hi all,
 I think I am starting a flare. Have not felt well for several days but today I have stayed cold all day, woke up with every muscle,joint,bone aching in my body and the fatique is unbearable.  In my last post I mentioned I had some decreased kidney function GFR was 55 but the rheumy doesn't think it is related to my autoimmune disease.  I wonder?  I am going to see my PCP tomorrow who is much more responsive and may send me to a nephrologist.  What bloodwork should I ask for to see if I am in a flare.  I know sometimes Complements will show disease activity. Also started with pain under my arm last week that has moved around to my shoulder blade and hurts when I breathe.
Thanks for any suggestions.
 
Beth

UCTD 2005, Meniere's since '97, ITP,MVP,Raynaud's
Low WBC, Thrombocytopenia, Brain Fog, Fatique
But Hanging in There!!!!!!!


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 10/22/2007 1:48 PM (GMT -7)   
I am sorry to hear about your flare. I wonder about the advice of your rheumy too, but glad that you hv a responsive PCP and can provide you great help. I know that CRP, CBP are definitely the bloodwork can be done. The others might have more knowledge on that.
I hope you feel better soon.
DX SLE 1988; Pred 10mg, Cellcept 2500 mg, Verapmil 120 mg (for migraine headaches), Famotidine 20 mg BD, Volteran 150 mg (temporary), Calcium + Vitamin D 1200mg


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/22/2007 2:42 PM (GMT -7)   
Hi-
    I wonder what clinical evidence makes your doc think the kidney issue isn't related to your AI disease.  Has he done any extensive testing?  I'm no doc,  but if I were you I would insist on a referrel to a neph.  I have lupus nephritis and they key to successful treatment and better outcomes is early detection and treatment.  If you have a falling GFR you probably need a kidney biopsy to determine whether or not it is related.  Really,  whether it's related or not is a moot point.  Kidney issues need to be addressed quickly!  Run don't walk to your nearest nephrologist!  Keep us updated.  Hope you feel better soon.  God Bless you,  Judi
 
P.S.-  I hope I don't sound like a "know it all".  I've been down this road.  I have ESRD.  It's not a pleasant trip.  Take care of yourself and advocate for yourself.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/22/2007 5:28 PM (GMT -7)   
Beth . . . I'm glad MJLD could address the kidney issue, I have no background for that. But a flare is a flare. Sometimes the bloodwork does not indicate the degree of the flare. Many here will tell you that. The blood is just one indicator and some have seen their blood work worse off when they were feeling better confused . . . and, if you are lucky, you will get to know your flares and you'll start to notice little things that give you a bit of a warning. I notice increased pain at night first and a few other odd things (an odd ear pain, itching that is internal, not on the skin, some bowel pain, increased malar rash, etc.) If I am proactive, I can really nip them short most of the time.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Beth1
Regular Member


Date Joined Apr 2005
Total Posts : 54
   Posted 10/23/2007 8:08 AM (GMT -7)   
Thanks for everyones replies. I will let you know how my PCP visit goes today.
 
Beth
UCTD 2005, Meniere's since '97, ITP,MVP,Raynaud's
Low WBC, Thrombocytopenia, Brain Fog, Fatique
But Hanging in There!!!!!!!


Beth1
Regular Member


Date Joined Apr 2005
Total Posts : 54
   Posted 10/23/2007 11:34 AM (GMT -7)   
cool  Just got back from my PCP. He has diagnosed me with Fibro as well as Chronic Kidney Disease Stage III.  Is going to do some more bloodwork and send me to a nephrologist in December.  Finally somebody doing something!! He said in today's exam he could actually feel bumps in the tender point areas in the Fibro exam.  I asked him why he thought rheumy did not diagnose this and he said maybe the acuteness of my symptoms and today's positive exam made it easier for him to diagnose. My PCP still thinks kidney function could be related to AI disease of some type considering I already have one auto immune disease;ITP.  .  I also have trouble keeping my potassium levels normal even with supplements.  He wants me to try amitriptyline for the Fibro.
Anyone have experience with it?  Funny in the dictiation he got from my rheumy last week he said looked like my UCTD was not currently active.  Amazing how a week makes a difference
UCTD 2005, Meniere's since '97, ITP,MVP,Raynaud's
Low WBC, Thrombocytopenia, Brain Fog, Fatique
But Hanging in There!!!!!!!


Staceymommy
Regular Member


Date Joined Oct 2007
Total Posts : 24
   Posted 10/23/2007 11:51 AM (GMT -7)   
I have been on amitriptylene before for my fibro and it worked for awhile but I grew immune to it and it quit working then I found out that I also have degenerative bone disease so most of the typical fibro drugs aren't working for me. But everyone's diff. I hope it works great for you. IF not then there is still nortriptylene and cymbalta. During my flares my kidneys will act up too and then usually go pretty much back up to par afterwards my rheumy sucks too my pcp usually runs a sed rate on me to see if I'm flaring but in last 2 years that seems to be one continous flare for me.
dx Aug 2001 SLE and Hughes, 2003 Chrondromalaysia patella, Hashimoto and IBS, 1995 Gerd and Osteo Arthritis, 2004 Migraines, Chronic Bronchitis, Sinus Tachycardia, 2006 Fibromyalgia

Married 9 1/2 years
Mom to 1 miracle boy born 11/10/02 (took 12 pregnancies)
Meds
Darvocet
Toradol
Prevacid
Toprol
Vistaril
Prednisone(during flares)
Albuterol Nebulizer

Supplements
One a day
Ho shou wu(helps with the infamation and break through pain)
peppermint and green teas
Primrose oil
chaste berry


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/30/2007 2:06 AM (GMT -7)   
Hey Beth, I was just reading what you have been going thru and was wondering how you are doing getting thru this flare. If you are up to it please keep us posted.
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Beth1
Regular Member


Date Joined Apr 2005
Total Posts : 54
   Posted 10/30/2007 3:53 PM (GMT -7)   

Carol,

 

Thanks for asking.  I have had several really bad nights with alot of pain but have started yoga and that seems to be helping some.  Also just started with a sore throat and cough on top of everything else so thinking this might not be a great week.  I am lucky my husband is now retired and can do alot for me at home because I am exhausted when I get home from work.  I am having a retirement party for hubby this Saturday and If I can get thru that I am going to start trying to slow down a bit and take better care of myself.  Will keep you posted.

Beth


UCTD 2005, Meniere's since '97, ITP,MVP,Raynaud's
Low WBC, Thrombocytopenia, Brain Fog, Fatique
But Hanging in There!!!!!!!


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/30/2007 5:15 PM (GMT -7)   
Hi Beth,
  It sounds like you have been going through alot...((Hugs)). I hope the amitriptylene works well for you. Zanaflex works well for me. Like Stacy said, we are all different!
  Try not to over do it with the hubby's party this weekend and take care. Keep us udpated.
                                                          Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2007 3:56 AM (GMT -7)   
Hi Beth, Wow I hope you can get some help with this party! Yes it is a good thing that your hubby can help you more now. I'm sorry you have a sore throat and cough. When you add that with exhaustion it doesn't sound real promising. Just remember don't be afraid to rest and ask for help. You don't want to be getting any sicker. I have thought about trying yoga sense it isn't real hard on the lungs but I have one problem with that. ............I'm lazy! but I know it would make me feel better afterwards. I used to do yoga when I was young but I have forgotten most of it.
Let us know how the party goes and how you ar feeling
hugs
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:40 AM (GMT -7)
There are a total of 2,733,991 posts in 301,165 threads.
View Active Threads


Who's Online
This forum has 151299 registered members. Please welcome our newest member, ABBear.
219 Guest(s), 2 Registered Member(s) are currently online.  Details
tdnjam, fiddlecanoe


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer