I'm going away for a week

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/23/2007 4:39 PM (GMT -7)   
Hey All:

I'm going to go on a small vacation. This coming Sunday I'll be flying to Florida. I'm going to go my dear friends house. Debbie and I have been friends for over 20 yrs. She and her hubby, Jay, want me to come to their home and allow me to be pampered and waited on. I'm not really feeling up to flying but she's got time off from work and my doctor said it may do me some good, to have different sites to see.

Speaking of my doctor I saw her yesterday. She's feeling that I'm just hanging in there status quo. She realizes that I feel terrible everyday and that I'm frustrated beyond my limits. I'm anxious to get things moving along so that we can begin looking for a donor for me. This waiting game is enough already, if you know what I mean. I'll be getting another CT scan on the 5th of Nov and if my blood clot is gone, my internist will contact my rheumy and see if he'll agree to the humira to treat my RA. We changed my blood thinners from coumadin to lovenox shots. So I'm giving myself a shot twice a day instead of having my INR all over the place. I may need some blood before I head out to Florida on Sunday. I'm expecting to hear from the doctor tomorrow, if I need to come in and get a couple more units.

Anyway, I just wanted you to know that things are basically status quo and I'm just sitting around waiting for my MDS to worsen. I'll think of you all while I'm gone. I'll be back home on the 3rd of Nov. I'll miss you all and I hope you all have a good week next week.

Love ya,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/23/2007 5:15 PM (GMT -7)   
Sounds fun Barbara!!! Wooo Hoooo!!! Have fun at your frend's house!! I bet she WILL take care of you!! Bring us back some great stories of girl talk, the ocean & tea!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/23/2007 6:11 PM (GMT -7)   
Oh Barb, this is great!  I hope you have a lovely time and can just relax and breath in that fresh Florida air!  Take care my friend and we'll chat when you get back!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/23/2007 7:23 PM (GMT -7)   

Hi Barb, that is great news. I hope you have a great time just lounging and being treated like a queen! They sound like wonderful friends. As for the airplane right I understand that very well with my breathing problems and the checkpoints and security hoops ya have to go through. I hope you asked for a wheel chair they can get you where you need to go qucikly and effeciently and without alot of energy on your part. The trip I just came back from I didn't ask for a wheel chair. That was a terrible mistake. I could walk 20 ft and have to set down to catch my breath for 5 min. (not knowing I had pnemonia at the time). It's just not worth it. If you havn't asked for one yet call the airline and tell them you need it. Tell your friends I think they are wonderful!

God bless

love ya

carol


God Bless
Carol
Primary Biliary Cirrosis,  COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 10/23/2007 7:50 PM (GMT -7)   
Hi, Barb. This sounds like such a great opportunity for you to just relax and be pampered. You deserve it! Take full advantage and ENJOY! We'll be waiting to hear all about it. Definitely take Carol's advice about informing the airline of your need for a wheelchair. Give them the heads up so they'll be ready to help you. I used that service when I went on a trip with my mom a couple of years ago, and now with all the crap they put you through there's NO way I'd do it any other way! Take care and be ready to share all the fun when you return!
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 9mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg, DocQLace 200mg, Flax Seed (milled) 2Tbsp


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/23/2007 8:15 PM (GMT -7)   
Hi Barb--
You'll be down my way. I don't know where you'll be but Moffett Cancer Center near Tampa is good if you need anything. They saved my stepmoms life she has multiple myeloma and had her stem cell transplant done there and they are really good because they do tons of them there. Don't forget to bring a light jacket as it has got chilly a couple of nights. The mosquitos are ferocious at this time because we've had heavy rain. It rains mostly every day some now, but the temps are better and sun is not so scalding. I really hope you enjoy your vacation and your time for you and your friends. Don't forget pictures and goofy souveniers. I don't know if we are having red tide problems now, but it is coming up so be careful when you go out by the beach because you can get very very ill if it is bad. On the gulf its been worse every year and starting earlier. Last Christmas we had to eat inside at a beachside restaurant because of it and my lungs and skin reacted pretty fast but got better when I went inside. I didn't get sick but my skin started to burn and my asthma kicking up. I think the atlantic side has it some to some degree. I know that the water does not seem as clean but doesn't get like the shallow gulf. Well, not meaning to be negative, I'm just a natural worry wort. Enjoy, enjoy, enjoy! I'm so glad you feel up for the trip as much as you do and that you are actually doing it! I think it sounds like it will be restful for you and the weather will be a nice change for you as will the change in scenery.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/24/2007 8:30 AM (GMT -7)   
Barb, How wonderful to have friends like yours who want to pamper you and take care of you. Hopefully the trip will be great and that you'll have a good time and not get too worn out. Sometimes a change of scenery can be good medicine.

I've been out of touch lately and have thought of you so much and have wondered how you are doing. Hope things are going well with you.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/24/2007 10:33 AM (GMT -7)   
Barb, I really hope the trip goes well for you and that all of the rest and the pampering at least help to lift your spirits. I just hope the traveling isn't too hard on you. I'll be thinking of you and hoping that you are having a great time with your dear friend and her husband.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/26/2007 7:11 PM (GMT -7)   
Evening Everyone:

UGH, I'm feeling sick and I've yet to even leave my house. I'm cold, with a lot of joint stiffness. I'm super super fatigued and I just want to sleep. I don't know why I thought I could do this.

Of course I'll go on Sunday, we're not in a position where I can through away airline ticket money. Plus my friend Debbie only has time off this coming week. I've talked with her several times, and I've expressed to her several times that I'm not up to doing to much. It's likes she's a duck and she just lets my statements roll off her back. I hate the thought that I'm going to disappoint her.

She's been to my home 3 times in a row and I've yet to visit her home. I understand that she wants me to see what she's done with the house and that she wants to see me. I guess I let my feelings run my life at times. I feel obligated to go down to Florida now. I'm not sure how much time I really have left and I want to see my friend. I'm just dreading making this trip, I hate to go anywhere when I feel yucky. Please send me well wishes and prayers that I get through the next 8 days. I'll let you know how the trip goes when I get back.

Yes, I've told the airlines I'll need a wheelchair to move me from gate to gate and to baggage claim. I hope you all are feeling better than me. Have a good weekend and I love you all.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/26/2007 8:15 PM (GMT -7)   
Oh Barb . . . I'm so sorry. Of course this is a huge job just getting ready and getting there. I think the visit will be nice its just so hard traveling when your body isn't right. I hope one of the flight attendants befriends you and sets you up in first class with extra room and better seating . . . ask the ticket counter if they have room to bump you up . . . they'll sometimes do it for free if you say pretty please and Rosie sent you!!!

Don't forget to carry your Dr. list with you (names, phone numbers, meds, etc.) Just in case you need it.

I pray that you sleep well tonight sis . . . that might help a whole lot.

Prayers, hugs, tea and blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/27/2007 7:58 AM (GMT -7)   
Barb, my prayers and thoughts are with you. I know how much I dread traveling when I feel really sick and I am nowhere as sick as you are, so I can't imagine how much you must be dreading the traveling. Just please don't overdo it when you get to your friend's house. Let her take care of you and try not to feel guilty about anything.

I'll be thinking of you and hoping your trip goes well.

LOve,
hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/27/2007 9:27 AM (GMT -7)   
Hi Barb,

Life just refuses to get easier for you, doesn't it Barb. For some reason I thought you were to have left last Sunday and I've been thinking all week that you were in Florida relaxing. I just hope your trip goes smoothly and that you can somehow get through to your dear friend how much you need your rest. Just remember that even though you will probably feel awful while you're there, you'll never regret your visit to see your friend. It goes without saying that I hope you don't get in trouble and have to go to the hospital while you're there, so please take care of yourself!

I'll be thinking of you and praying for you more than ever.

Sending you many (((((hugs))))) and healing thoughts.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


ocean1
Veteran Member


Date Joined Dec 2006
Total Posts : 707
   Posted 10/27/2007 7:45 PM (GMT -7)   

Barb,

You are in my thoughts and prayers.  I know just the thought of the traveling seems overwhelming but am hoping once you get to Florida that you will be able to just relax and forget about things for a while and just allow yourself to be pampered by what sounds like to be some great people.  A change of scenery and the love of friends may be just enough to boost your energy and spirits.  Don't worry about "disappointing" your friend if you aren't able to do much.  I'm sure she will understand and want to just do what is best for you.  I hope you have a nice trip.


Diane (ocean1)
________________________________________
Primary Biliary Cirrhosis 2007; UCTD 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra, Zantac, Lunesta, Ultram PRN, Xanax, Darvocet, Ursodiol.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/27/2007 9:15 PM (GMT -7)   

Barb, I will be praying for you. I know how you feel about even the idea of the trip. I traveled around alot when i was on vacation. Not far but a few hours here and there. All I really wanted to do was stay in bed. The thought of traveling made me fearful and exhausted. I didn't think I could pack one more bag or travel one more mile. Even when it was time to go home I dreaded the trip. In the end though I did make it through and I was glad that I went. I didn't let others dictate to me what I was going to do though. When I got tired I laid down. I hope your friends can comprehend that and take care of you.

I hope you have a wonderful time

love ya


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/27/2007 10:38 PM (GMT -7)   
Hi Barbara,
If you are really feeling lousy, please don't feel obligated to go. It might be bad if you got down there and got really sick and ended up in the hospital down there and that could cause more disharmony with your friend than just not being able to go down. I'm sure she would understand, though she may miss you so much she isn't picking up on your hints. My parents do the same thing with me and there have been times I really regretted going down to visit them and letting them kind of guilt me into it even though I wasn't well enough to go. They don't mean to, they just love you and want to see you. But healthcare in Florida is catch as catch can depending where you are at and I've not good things to say about many of the large medical centers here, not so much from the doctors and complete failure of the support staff (like nurses) to follow a doctors orders and take proper care. Like most places Florida has a real shortage of nurses. Of course, maybe the right thing to do is to force yourself to, maybe you will regret not going and maybe the weariness of travelling will be the only problem you have and it will wear off once you rest after you arrive. But if in your heart you know you shouldn't go, and you can talk with your family about it, price of the ticket shouldn't be too big a deal because they will refund some and its better than you ending up stuck in Florida, in the hospital away from your friends and doctors, which could happen if you aren't feeling well. And the airlines won't let you fly if you are too ill. I know how you feel to some degree and I just want to say that I support you in whatever you feel is right in your heart for you to do. Only you know your body and its not like you planned to make plans and get sick, it just happened. I'm sure your family will understand and perhaps could help you in explaining if you don't feel you should go. But if you are going to try to go and feel like you can make it there and back, then that is good too and I send good thoughts and prayers for a safe and fun and healthy trip for you. I just feel your doubt and that little voice is often right and then we regret when we don't listen, but it could just be some fear too. When I was on heavy narcotics, I had this problem frequently because I felt good enough I would make all these plans forgetting how stressful it really was and how sick I really was and then I ended up having to be rescued and stuff because something would happen and I couldn't drive home or whatever. I also had a friend who I believed was a very close friend get mad when I came to visit and was on chemotherapy and had so many problems. I had trouble doing anything and I wasn't mentally up to snuff and my hair was falling out in gobs and I was on really strong narcotics and this friend just flipped out at me, like how dare I come to visit being so sick and it was really weird because they felt so bad about how sick I was they were totally frustrated they could do nothing for me and it came out as anger at me and it was a very uncomfortable situation and I haven't spokend to this ex-friend again. Some people can't really handle seeing their friends sick. Also, if you are afraid your friend is not going to understand if you can't come down because you are ill and you go down there anyway, she's may not understand when you can't keep up with her pace or do the things she wants to do. If she understands that possibly you cant' make it down due to illness, she will likely understand that you may not be able to do alot once you get there. I don't mean to discourage you, I just want to be on your side in thiss and not have something bad happen away from home, but I also want you to do the things you want to do for fun too. Only you really know inside if you are really up to it and forcing yourself to get through it may not help keep your body from screwing you over. If only you had your own leerjet so you could be wherever you wanted to be at a drop of a hat, and your own personal doctor and treatment room. Just a thought, but maybe travelling in a large camper where you have a bed and a toilet might be a more comfortable way for you to travel, though expensive. Just a thought, that's what my stepmom and her ninety year old mother do and her mother could never handle traveling any other way. Well take care, Barbara and know I will pray for you to whatever you do and I do hope you are well enough to travel, because your head and heart want to. Let's hope God listens and lets you have a wonderful trip.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/29/2007 11:59 AM (GMT -7)   
Barb,

Just posting a note here as I'm thinking about you and hoping you're feeling well today. I hope the travel day wasn't too exhausting and that you are resting while your friends are at work.

Hugs,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/31/2007 9:55 AM (GMT -7)   

Hi Everyone:

Just wanted to check in.  I made it to Florida and Debbie had to work on Monday.  So I slept most of the day on Monday.  Yesterday, she took me around and showed me the area and took me to the gulf of mexico.  I put my feet in the water and enjoyed the white sand.  We had lunch at the hard rock cafe, and she pushed me around an outdoor mall in a wheelchair.  Both she and her hubby are pampering me and caring for me.  After our outing we came home and I was bundled onto the couch with a blanket and pillow for a nice nap.  I'm going to bed by 10pm each night.  Debbie starts her day at 4am, so she's not an night owl.

I slept until 8am this morning, while I was sleeping Debbie did her 3 mile morning run.  In a bit we're going to go to the movies.  We're also going to go go JoAnn's Fabrics, I'm going to pick out a pattern for a quilted handbag and the material and she's going to make me one over the next month or so and mail it to me.  After that I'm sure she'll bring me home for a nap again.  I'll be leaving Saturday afternoon and be home Saturday even at 5:30pm.  Just wanted you all to know I'm doing alright  and I made it safely.  Thanks for thinking of me and I love you all.

Hugs,Barb


dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 10/31/2007 10:09 AM (GMT -7)   

Hi Barb,

I am glad you made the trip safely and that you are being pampered. You seem to be enjoying yourself and I am so glad. Enjoy the rest of your stay.

Sandy


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, amiloride, klor-con


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/31/2007 1:30 PM (GMT -7)   
Oh Barb, that sounds wonderful. putting your toes in the ocean! Sounds like you got some pretty great friends there. Thanks for letting us know how it's going. Enjoy the pampering!

love ya
carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


dave z
Regular Member


Date Joined Dec 2004
Total Posts : 164
   Posted 10/31/2007 2:10 PM (GMT -7)   
Hi Barb    I am so happy to hear that you are having a good time.  This visit with your best friend is just what you needed at this point in your life.  Love and understanding refresh the soul.  It's great that you are being pampered and well taken care of, as you are so deserving of this. Have a great time and we will see you in chat soon.  Love.  Dave.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 10/31/2007 4:11 PM (GMT -7)   
Hi Barb.  It's good to hear that you're able to rest and enjoy yourself.  Florida is a good place to relax.  Take care Sweetie.  I'm sending you love and prayers. 

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/31/2007 7:14 PM (GMT -7)   
Hi Barb,
 
Sounds like you had a great day!  The warm white sand would be lovely!  Just wanted to let you know we're all thinking of you and hoping that tomorrow will be a good day too!
 
big hugs,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/31/2007 7:50 PM (GMT -7)   
Hey Barb . . . *big smile* thanks for the great update . . . sounds like you are having a great time with your friend. What a bright spot in a difficult journey . . . enjoy the rest of your week!!! See you back here in a few days!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/31/2007 8:25 PM (GMT -7)   
Hi Barb--
Sounds like fun! I'm glad things are working out and you are getting to rest and a chance to be yourself without family for a while. Sounds like you are very well taken care of! Hopefully you haven't been getting the constant rain we have been getting. My folks live near the gulf and I grew up near the gulf for a while, so I know about the sugar sand and can imagine you putting your feet in the sand and in the gulf. Sounds like you are making great memories! Say hi to your friend Debbie for me and thanks for letting us know how things are going. Don't forget postcards!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 10/31/2007 8:56 PM (GMT -7)   
Barb,
I'm so happy your friend understands the kind of pampering you need. You deserve a friend like that. Drink in this week--it's the best kind of medicine. It's good for the soul. We love you too!
xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

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