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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 10/27/2007 5:57 AM (GMT -7)   
Came home yesterday and opened all my post. My heparin injection appointment is not until the 17th of January 08! over two months time and prof hughes was dissappointed about the appointment being in two weeks well I got THAT wrong.
I rang GP, in hysterics and she said we did not have enough of haemotologists and I asked her "What DO we have" she said "very little of everything" I told her I wouod go private and she said its the same in that sector.
Ireland may be green and awash with m oney and rain but little in the health sphere unless you have 'the right connections, like my millionaire sister who knew a surgeon who actually drove sis's daughter into hospital and operated on her knee and another who did the same for her son. I am only in social housing with no influence.
Spent all morning writing up my proposal to get to the Louise Coote Unit at St. Thomas's in London to deal with the sjogren's and the sticky blood.
My gp has told me to tell twin not to come home, she had parkinsons and I might have too, but we want to be together as we fail in health.
I am now in bed with my two dogs which I got back.
I have a blinder of a headache.
my neuro, will get another belching on tuesday, I feel it coming on.......a rant down the phone that is.
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 10/27/2007 7:26 AM (GMT -7)   
Ann I am sorry you are going through all this trouble just to get feeling better. I hope things turn around for the best for you. Don't give up!!!

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/27/2007 9:41 AM (GMT -7)   
Ann,

I too am sorry you're having to go through this nightmare and I wish you and your sister could be together. You're in my thoughts and prayers.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/27/2007 5:34 PM (GMT -7)   
Ann . . . my mouth dropped as I read your post. Will your doctor at least suggest an amount of aspirin to take each day between now and Jan appt ??? Aspirin does a fair job of thinning the blood, but its hard to know how much to take and it can also be hard on the tummy.

Injection???? Can't they prescribe the heparin in pill form???? confused

So sorry your in SUCH a pickle with your medical needs. Just so difficult. Some hot tea for you then!

Hugs and blessings sis!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/27/2007 5:48 PM (GMT -7)   

Hi Ann, well to say the least it sucks! Sadly I know how ya feel. All though I don't suffer from the same things you have I do suffer from the lack of physicians to help out. It took me 4 months to get an appt to see a rheumy. Than after I saw him I waited two weeks for him to send the paper work to my pcp and than the nurse called and said My pcp wants to see me because she doesn't beleive what the rheumy said was wrong with me!!!!!!! I'm like you I don't know any doctors by their first name or have money to grease a palm with . It's so utterly frustrating somtimes. I didn't understand the one thing you mentioned though. I couldn't figure out why the doctor doesn't want you sister to come be with you?

Take a deep breath and try not to break anything. Hopfully you can get a little somthing to get you through until Jan.

hugs


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


ocean1
Veteran Member


Date Joined Dec 2006
Total Posts : 707
   Posted 10/27/2007 7:29 PM (GMT -7)   

Ann,

Sooo sorry to hear about the health care system failing you when you need it most.  Sad some can get whatever they need and others wait and wait and wait.  Why did your GP tell you to tell your twin not to come?  I don't understand that.  I have a twin sister and can completely see and understand why you would want to be together.  Most of the time, having my twin sis close is the best medicine for me.  I hope you can get all this worked out and get an appointment sooner than next year.


Diane (ocean1)
________________________________________
Primary Biliary Cirrhosis 2007; UCTD 2007; Lupus Sept. 2006; IBS 2004; Chronic Hives 2002.
Medications:  Allegra, Zantac, Lunesta, Ultram PRN, Xanax, Darvocet, Ursodiol.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/28/2007 12:05 AM (GMT -7)   
Ann, so sorry you have to wait. Is it possible to go to a more populated area where you might be able to get treatment faster? Perhaps your doctor has some influence to get you your injection sooner or at another place, or mayb put you on pills or something like Rosie said. Wll I'm so sorry this is happing to you and I hope that at least you can be with your sister soon and perhaps you can take care of each other and be each other's advocate. Aspririn, like rosie said, might be something to ask about too. I hope you feel better and get the care you need soon.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 10/28/2007 8:24 AM (GMT -7)   
Thanks folks very, very much for all your support, yes, I will go back on the aspirin although I did try it and it didnt agree with me.
Oh, remember the incident of the fish pie! I have a sis who is a WOW cook well just been down there for lunch! Boy, quite a spread, all the family were there as we went to Mass in honour of another sis who died ten years ago.
Well the fish pie incident was when I asked her if she could 'add me to the pot' and cook me stuff from time to time to help me out. She thought that was the worst thing I had ever asked "ME! Cook YOU a fish pie = AND bring it to YOUR house!? needless to say I got one and was told not to get any ideas it was just a once off, it WAS!
She lives not too far away.
Actually I enjoyed the luncheon but not the mass, all in the front were wheelchairs including a woman with MS I used to teach at the polio fellowship.
I have not got used to being in a wheelchair and was concious of the jigging and jerking. brother, niece and two sisters behind me and they would never have seen it and I was gently weeping behind very dark glasses - er, any o you have to wear dark glasses INDOORS!!!!?
xxAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/28/2007 9:53 AM (GMT -7)   
Ann . . . How sweet of sis to make you your own fish pie. I hope you'll tell us how its made . . . never heard of fish in a pie before, but love the recipe. My family makes a meat pie which is popular in Canada (we live in the States, but Mom and Dad are from Ontario).

Your church story brought a tear . . . I can only imagine how you felt. I have found ways of hiding my stiffness upon rising from a chair in church or a restaurant, but there is no way to escape the glory of the wheelchair . . . sorry Ann . . . that has to be rough. I look at wheelchairs and I just groan inside . . as they look SO uncomfortable to me. The sun glasses were so Jackie-O . . . you went in style girl!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 10/28/2007 10:10 AM (GMT -7)   
Well, I have to say, the wheelchair is a darn site more comfy than the pews or benchs. I suffer enough without the connection of bare wood on sore skeleton.
Although I converted to Quakerism, I gave the sermon some thought but couldnt get myself to thank god for my blessings!!! I kinda believe thats a manmade thing, I think he really wouldnt want me to thank him for this but I have, of course ALWAYS thanked God for my gift of my talent in art and the beauty of nature.
I actually took a coffee to a glorious place overlooking the whole of Dublin Bay, likened to the Bay of Naples by George Bernard Shaw who lived very near by.
It was just stunning and very warm.
I strolled amoung the changing foliage, very slowly with a stick, smelt the sea air watched the fluffy clouds and felt truely happy. I always am when out in nature.
There were very few people around and I was quite impressed how my legs did. Apart from steps, they couldnt manage them. I was really impressed!!!! HA!
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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