How do you rest when you can't?

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mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 10/27/2007 10:20 PM (GMT -7)   
I posted quite a while back, asking for moving advice. It took a while to work out the details, but we finally closed and this is moving weekend.
 
We moved all of our heavy stuff today. I was careful not to lift anything too heavy, but I've been on my feet all day packing, etc. and am just beat. Tomorrow we have to go back and get the rest of our stuff, which is really quite a lot of boxes, packing up the closets, etc. I'm so tired now that I'm overtired...it's like I can't go to sleep.
 
I don't feel like I can wimp out tommorrow because my help is definitely needed. But I'm afraid if I push myself as much as I did today, I'm going to be really ill by Monday. And the rest of the week (and probably the next week, too!) involves unpacking, cleaning up the old house, getting it ready to go on the market. It's not like there's a real break on the horizon for a while.
 
Do I take more frequent rest breaks? Do I insist on sleeping in each day? Take extra painkillers and just slog my way through?
 
I'm so tired I'm not sure that I'm making sense...I guess I am mainly asking for any BTDT advice on how to deal with being tired and sore when it seems impossible to pamper yourself?
 
Thanks!
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 10/27/2007 10:53 PM (GMT -7)   

Hi Kari,

I work full time and am frequently tired, but have found even an extra hour of sleep helps. Taking frequent in-between breaks makes things a little easier too. As a last resort I tell myself tomorrow is another day and just let things go until then. Hope you are feeling better and are able to accomplish some things. Just don't overdo too much or you will be really sick. I learned that the hard way.

Sandy


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, amiloride, klor-con


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 10/28/2007 3:57 AM (GMT -7)   
Good morning Kari, I understand how you feel. I too, am trying to close one home and move into another and work 50-60 hrs aweek. Yes, just try and take more breaks, because you will not be any good later if you can't move. My wife and I go to are new home on the weekends...where there is no phones, tv, computer or children. I have found myself a sleep at 9pm. I have a saying "ENJOY WHAT YOU CAN TODAY AND LEAVE THE REST FOR TOMORROW".

Kari, enjoy your new home and have a Great day.
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/28/2007 7:14 AM (GMT -7)   
Hi Kari, First congratulations on your new home! Second but more important I think at this point it's too late to worry about not getting sick. Sometimes we have no choice and we have to do what we have to do. Don't be surprised if who end up in a major flare by the time you get everything moved. Hopfully your family is sensitive enough to your needs to let you set down or lay down every few hours. Even if it's just for a half an hour or so. If you take predisone I would suggest taking a little extra. It's good to hear from ya I hope all you really enjoy your new home! keep in touch
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/28/2007 8:19 AM (GMT -7)   
Kari, I agree with Carol that it might be to the point where you might end up pretty sick after you get things moved. I've been in several situations like that where I just had to keep going and pushing myself and then ended up flaring. The really important thing is to try to get as much rest and work hard to recover after you have things moved. The thing you have working against you is all the unpacking, but I would recommend only unpacking the neccessities at first and do the rest little by little.

If you can do any of those things you mentioned like sleeping more, taking breaks and taking your pain meds, that might help you not get as sick.

I really hope you don't end up getting too sick and that the rest of the move goes smoothly. Try to take care of yourself the best that you can.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/29/2007 12:04 PM (GMT -7)   
Make sure you are taking the time to EAT right! I find that when I'm the busiest it's not only sleep that gets shortchanged but also food. Watch out for sugar and instead focus on protein -- it'll help get you thru this busy time.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 10/29/2007 12:12 PM (GMT -7)   
Thank you for all the insight and advice. I have been taking it! Plus, it just helps to hear that others have, at times, just had to say, "OK, I know I'm risking a flare but this has to get done." It seems that when I overdo it, someone always scolds me and in turn, I end up feeling dumb for doing something that I felt like really needed to get done...if that makes any sense! I guess it's all about finding balance and realizing when we can't.

Anyhow, thanks also for the congrats on the new house! We're settling in nicely and though we still have TONS of work to do, it feels good to have the bulk of it behind us.

Thanks again for being there! :)
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/30/2007 2:15 AM (GMT -7)   

Hi Kari, I'm sending possitive thoughts and prayers your way that you don't get too worn out. Remember once everything is moved you don't have to put it all away in one day!

hugs

carol


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/30/2007 5:26 PM (GMT -7)   
Hi Kari,
   Congrats on your new home! I agree with taking extra breaks and eating right. Sometimes we have to do more than we think possible. I hope this doesn't take its toll on you...((Hugs)). Rest when you can and take care. You will be in my thoughts and prayers.
                                                                 Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 10/30/2007 5:51 PM (GMT -7)   
Kari, I am bring you cup of coffee. So, have a set in front of the fireplace and enjoy.

Have fun!!!!
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/30/2007 8:03 PM (GMT -7)   
Hi Kari--
I have tried in the past to take the pain meds and slog through, but then I'm flat on my back for a week or two afterward. I believe I do less in a way on the pain meds, and might be more inclined to sit on a box or a comforatable chair and rest. If you have a comfortable folding beach chair, like one you can lay on, or a cot or sofa or something, try bringing that first so that you can lay down on it while others work. Then as you feel up to it you can help a little. I think the key is setting people's expectations beforehand, like saying, "I'm not going to be able to help hardly at all, I might be able to do a little bit, I will be on pain meds, I wont be driving or making any trips alone and I won't be lifting. I can unpack and figure out where things go but ..." You get the idea. Perhaps you can pay a teenager to help with the move, or find a relative or buddy who would help some. Unpacking can be alot of work and stuff that guys don't like to do, so they may let you off just to do that. I don't knowif this helps. I'm just guessing a little not knowing your situation completely. I wish you the best and will pray that you don't hurt yourself or get wornout during the move and that everything goes ok. And I share your excitement about your new house!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 10/31/2007 7:33 AM (GMT -7)   
Kari,
 
definitely BTDT... and what works for me is to sleep as much as possible.  Go to bed an hour early, sleep an extra hour, and try to get a nap somewhere in the middle of the day.  The painkillers help some, but its the sleep that does the best for me.  My teenagers joke that I sleep more than a newborn baby sometimes.... :-)
 
 
 
 
Victoria
 
Mother of four, full time Systems Analyst
 
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
 
Meds:  Medrol injections; Darvocet as needed, Methotrexate, Benadryl, Zyrtec


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2007 4:33 AM (GMT -7)   
Hi Kari, I was wondering how the moving was coming along and how you are doing with it.
let us know ok?
hugs
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 11/7/2007 10:22 PM (GMT -7)   
Hi there!

Sorry I've been MIA since the last post...I bet you can guess why? LOL

The move has gone ok. We hired a teenager to help, and between him, DH, my oldest son and my sister, I didn't really have to lift anything. I took rest breaks, sometimes before I felt I needed them, and upped the pain meds.

But, we're still unpacking. And I just found out that my mother in law is coming with her sister to visit the entire first week of December. So that adds more stress, feeling like I need to have the house company-ready, decorated for Christmas AND her presents bought by then. I'm tired just thinking about it.

The past two days have been tough. Both my and my DH's cars have broken down this week, and I was up during the night with diarrhea. My stomach has felt funny all day and I have an awful sinus headache. I don't know if I just picked up a bug somewhere, or if it's just flare-related. No easy way to tell.

Sorry to complain! I do like the house, though, and I know that eventually it will all come together. I just have to stop comparing to when we last moved. That was seven years ago, I had only one child, weighed forty pounds less, and did not have lupus yet!

Thanks again for the advice, and for asking about me!
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 11/9/2007 10:09 PM (GMT -7)   
Oh, Kari! I hope you can manage to slow down a bit and not pressure yourself to make everything perfect for your MIL and her sister!

Maybe one tree can be up and that's it for the decorations this year. Also, online shopping with free gift wrap is great for us lupies! And, for older family members, gift cards are great Christmas gifts! You can "wrap" them in a pretty gift bag to make it look festive! Get everyone nice Christmas PJ's for the evenings and a few Christmas sweaters and/or shirts for the days and you will fake it like your the best organized lupie ever!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


mamamuse
Regular Member


Date Joined Dec 2006
Total Posts : 102
   Posted 11/9/2007 10:18 PM (GMT -7)   
Audrey Ann, you are so sweet! I love your ideas and will definitely implement them. I'll probably be at the Dr. on Monday because this feels like a sinus infection now.

And the mechanic let us know what is wrong with my minivan. It's a blown head gasket and possibly cracked engine block (I think that's what hubby said the guy called it.) $1300 to start with, possibly more if it's more damaged than they think.

NOT good news to top off the week, that's for sure! But thank you for the prayers and the encouragement. My MIL loves Starbucks so maybe her big present will be a loaded Starbucks gift card. That's easy enough to buy online! :-)

Thanks again for all the support!
Kari
Wife, writer, artist, homeschooling mom to 2 wonderful boys
Lupus (dx May '04), arthritis, PCOS, being tested for vasculitis and Behcet's
Now taking: plaquenil, limbrel, metformin XR, ibuprofen and the occasional percoset for pain


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/10/2007 8:29 AM (GMT -7)   
Kari, I'm sorry to hear that you are getting sick and am glad you are getting checked out at the doctor. I love Audrey Ann's ideas and am going to use a few of them myself. Make sure you are taking good care of yourself, especially now that you aren't feeling well.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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