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In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Hi Mandy, welcome to the group. It sounds like you have been given very good advice and I am glad to see you are going to see a doctor about your heart. I have CHF off and on. However I suffer from COPD which is causing my CHF. The other thing is I have two doctors fighting over my diagnosis. One says Lupus and one says PBC(liver). Both are auto immune and both can effect your lungs and heart. I have an appt with a new Pulmonologist on the 6th so I'll be interested on his in take about it. Do you have trouble breathing with your CHF? My rheumy was looking at the last hospital report for me and it said I had CHF at that time and I was in a major flare at the time. I'm 50 now but I was in my 30's when all of this started with me.
I'm also sorry about your parents. My husband died when my kids were 15 and 19. I know it has been very hard for them.
Again welcome to the group I look forward to hearing what your doctor has to say.
In answer to Okie, I have trouble breathing when I exert myself. My symptons aren't too bad with my CHF, my most bothersome one right now is the fatigue. I don't really have any fluid retenion, and no SOB except when I do something. (So I'm fine when I just sit around, sux) I am hoping getting the meds adjusted will help with the rapid heartbeat and shortness of breath. It seems to be, but I am just tired from the meds right now til my body catches up too. I'm sorry about your husband, it's just not fair to lose a parent or a husband so young.
Marji, that is exactly the way I was diagnosed with the fibro! I am going to speak to him about it when I go next visit and insist he delve a little deeper into the Lupus search, with the rash and the pain, and then oh all of a sudden my heart, well, I think he needs to recheck that. I also had a REALLY bad "flare" for several months when I was teen and couldn't walk or move well at all. A different Dr then diagnosed me with a "Lupus tendency" he said. I kinda haven't thought much of it since a rheumatoligist was with my Dr when he diagnosed me first with the heart problem and they said, nope, it's not Lupus. I am gonna have a little conversation with him about it again now though, and talk to the cardioligist when I see him on the 6th. I have a echo tommorrow, no telling when they will have results, but when they do, I'll let you all know, thanks a million again for all the response, it helps to have people to talk to.