How much hand swelling is too much?

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Jenny S.
Regular Member


Date Joined Oct 2007
Total Posts : 80
   Posted 10/29/2007 5:11 PM (GMT -7)   
Hi everyone,
 
I am currently off working & trying to get my Lupus flare to calm. :) I persistantly have swelling in my hands (joints especially).  I am taking 400 mg Plaqenil a day - but the puffyness will not subside - cannot even wear my wedding rings!  Does this seem out of the ordinary since I'm not working now (less activity typing, filing, etc.)? 
 
Jenny

~Jenny~

I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)·Lupus(2001)

Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg

  


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/29/2007 5:55 PM (GMT -7)   
Jenny, I also get swelling in my hands and have had times I can't wear my ring. If your lupus is still flaring, your hands might stay swollen even though you aren't working right now. Something I learned from this forum is to take pictures of anything you want to try to explain to your doc. I took pictures of my hands when they were swollen so I could show my rheumy so he could see what I meant about my hands being swollen.

How long have you been on plaquenil? I see that you've had lupus for a while, but if you have started plaquenil fairly recently, it takes months to build up in your system so it can make a difference. Are you still taking prednisone? Sometimes prednisone will calm my swelling a bit, but my hands always seem a little swollen.

I hope the time off allows your lupus to get a little more under control. Make sure you are taking time to get plenty of rest.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/29/2007 7:38 PM (GMT -7)   
Hi Jenny, I'm sorry you are having this flare and I have to agree with Hippi, see if the rheumy will let you take a little extra predisone. It does seem to help a bit. My fingers havn't swelled alot but I can tell you that my feet and calves have swollen so badly when I flared that they actually bled. So it would not surprise me at all that you would have to take off your rings. I hope you get passed this flare quickly and get the swelling down.
hugs
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Jenny S.
Regular Member


Date Joined Oct 2007
Total Posts : 80
   Posted 10/30/2007 5:24 AM (GMT -7)   
Hippi & Okie,

Thank you for the encouragement & suggestions.

Hippi - I've been on Plaquenil since I was diagnosed with Raynauds (7 years). I was thinking I'd build up a tolerance to the med - having been on it for so many years. I will see about upping the Pred doseage - I just hate constantly gaining weight. :)

Jenny

~Jenny~

I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)·Lupus(2001)

Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg

  


aggscott
Regular Member


Date Joined Oct 2007
Total Posts : 35
   Posted 10/30/2007 7:44 AM (GMT -7)   
Hi Jenny,
 
The Prednisone was the only thing that helped my swelling. I had it really bad in my hands, wrists, and feet. When the doctor would try to take the prednisone down a bit, up went the swelling, if I went up on the med, the swelling went down. I am finding that 15-20 mgs a day helps so much with the swelling. I hope you can find relief soon..I know how uncomfortable it is to have swollen limbs..
 
Aggie
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