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JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 10/30/2007 2:52 PM (GMT -7)   
Hey everyone! It snowed here today and everytime i go outside, even for just a minute i start getting sharp pains in my fingers. Do you find you experience more pain when its cold?

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/30/2007 3:55 PM (GMT -7)   
Oh yes.  That's Raynaud's Syndrome or Raynaud's Phenomenon. Lots of us have it here! It's really important to keep your fingers and toes warm in the winter if you have Raynaud's.  It's a circulation thing. Just check with your rheumy to make sure you have a proper diagnosis of it. 
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 10/30/2007 4:27 PM (GMT -7)   
Whoa. Really? lol. i feel kind of silly. Well apparently I have Raynaud's then. I guess i will add that too the list of things to talk to my doctor about! Thankyou!!

Jana

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/30/2007 4:51 PM (GMT -7)   
Hi Jana,
   I get more stiff in the cold weather from RA but, I like it better than the heat.
   Like Ginny said, keep your toes and fingers warm this winter. Raynaud's can be painful and turn your fingers and toes different colors. Take care and stay warm.
                                                          Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 10/30/2007 5:56 PM (GMT -7)   
Yes, I have been going though the same thing....Afew days ago it was in the high 80's here in Virginia Beach, Va. Now, it is in the 50/60's. But, for me it feels like the 30's.

Please stay warm and cover up.
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/30/2007 6:42 PM (GMT -7)   
LOL, don't feel silly Jana.  There's a lot to learn about lupus and its host of cousin disorders! I seem to acquire a new one every year! eyes
 
Raynauds will definitely cause the pain you are experiencing. I get that too and it can be really awful.  You might also notice your fingertips turning blue.  There is reason for concern with Raynauds if you don't protect your "didgets".  Unfortunately, the lack of circulation can cause in severe cases, gangrene.  Loss of fingers or toes can happen.  But this is in extreme cases.  So the best thing to do is just wear those gloves and keep those feet warm. 
 
I'm glad you're going to talk to your doctor about this too.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 10/30/2007 9:08 PM (GMT -7)   
I just put my electric blanket on my bed for tonight!!!! So at least tonight i will be nice and toasty!!

Jenny S.
Regular Member


Date Joined Oct 2007
Total Posts : 80
   Posted 10/31/2007 6:24 AM (GMT -7)   
JD,

I have Raynaud's & have been having trouble with my hands too. I live by the electric blanket in the colder months - have one on my bed, another on my recliner & a third on my couch! :)

I've also found it helpful to dress in layers during the colder months - something like an undershirt, short sleeve shirt & a sweater or sweatshirt - that way you can bundle up outside, but remove layers once inside. Also, my Rheumy has me on Norvasc to help with circulation - my doseage increases from 5 to 15 mg depending on the temps.

Hope this helps.

~Jenny~

I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)·Lupus(2001)

Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg

  


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/31/2007 7:00 AM (GMT -7)   
Jd, another thing I do for my raynauds is to wear some nice cotten gloves even in the house if my hands are feeling cold. Also make sure to keep your feet warm too because raynauds can affect your toes too. Talk to your doc and he can confirm whether or not you have raynauds.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/31/2007 10:57 AM (GMT -7)   
I wish I was allowed an electric blanket. Unfortunately, I was told by several doctors (including a cardiologist) that I am too susceptible to electrical fields. My blood pressure skyrockets if I am near high power power lines. We lived near some for 4 months and I was so high I should have had a stroke several times over. I have problems with Raynauds too. My fingers and toes get really white before turning bluish purple. Worse, my hands get cold really easy. My oldest has constantly freezing hands even in summer. Hers are pale too. As soon as a new doctor can be found she will likely be referred out to be checked up on.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 10/31/2007 6:26 PM (GMT -7)   
It, was very hard for me this morning....with the cold weather. At least cold weather too me. Both of my hands hurt this morning. Most of the time it's just my right hand. Went out to Wal-mart and got my gloves and hat tonight. Warmth to all....Here is a cup of coffee
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2007 4:04 AM (GMT -7)   
Hi Jana, sorry you have yet another symptom. I don't have it myself but a friend of mine does and she's already wearing gloves while she drives. and it's in the 60's. It seems to be fairly common with A/I. Please keep the gloves and socks with you. and let us know what your doctor says. When is your next appt?
hugs
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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