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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/30/2007 5:36 PM (GMT -7)   
So I had a ton of blood work and such done today- the high risk doctor insisted on retesting my antibody levels- they have been negative for years and I expect they will stay that way. But without blood work to back me up he says there is no proof I have lupus or RA- of course he thinks lupus is RF negative RA. IDIOT! I also had to give a 24 hour urine for protein and creatin clearance that was something no one has ever bothered to do before, the blood work is always fine for my kidneys. The test that annoyed me the most was the blood sugar testing. I had to fast 14 hours- excuse me I am pregnant here people (nothing but water in my mouth not even toothpaste for 14 hours). Then I had to go eat a prescribed meal- this is the part that really made me angry, I had to eat the following in 15 minutes or less from first bite to last: A sandwich with mayo, 2 servings of veggies, 1 bowl soup, 4 saltine crackers, and 1 cup orange juice. Then 2 hours after I swallowed the last bite I had to return for a second draw of blood. I throw up when they give me that sugar drink so this was my only alternative- I was gagging by the time I finished the soup- which means I gagged through ever other bite. I still feel ill. This is with zofran, I don't eat that much in a day let alone in 15 minutes. I take an hour to eat a bowl of soup. *** are they thinking making a person eat that much in such a limited time? I mean half an hour would have made me less ill.

I just hope they are happy with themselves. I may not eat tomorrow from how ill I still feel and that is the only food I will eat today. nono I am so sick of this, I am 11 weeks pregnant IT IS WAY TOO SOON TO BE CHECKING ME FOR GESTATIONAL DIABETIES, especially when my fasting blood sugar is 68-70 on 4 tests.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/30/2007 6:51 PM (GMT -7)   
Hey Redrose,
 
Ummm, yeah.  That's a lot of food to eat in 15 minutes.  You probably looked and felt like you were in a food eating, speed contest... I hate that orange drink stuff too.  Makes me go cross-eyed.  I can't do the 10-14 hour fasting tests.  My blood sugars are too low.  I'd end up in an ambulance. No joke.  I think it's wise that your doctors are checking your sugars early. You can't be too careful with a high risk pregnancy.  Better to be over cautious than lazy about it, right?  This is all for your baby after all!  Just think of it that way. It'll make future trips to the lab/doctor a lot more tolerable if you know it's for the health of your little one! smurf
 
Stay strong, girl!!!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/30/2007 7:03 PM (GMT -7)   
Redrose,
   Bless your heart! That sounds awful! I hope the test will give the doctor the answers he needs finally. Hang in there and keep us updated. You are in my thoughts and prayers.
                                                                    Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 10/30/2007 7:47 PM (GMT -7)   
Thanks. I just dread the repeat of the test in 14 weeks
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/30/2007 8:29 PM (GMT -7)   
Redrose--
I know the diabetes test is lousy and especially when you are pregnant but the numbers you gave are actually LOW, hypoglycemic. Hypoglycemia is often a precursor to diabetes due to hyperinsulinemia. It also can help determine if you may have metabolic problems. I'm with you that I hope they don't have to repeat it, but being hypoglycemic can be dangerous and if your sugar is diving and shooting up high (which is what they are checking for) you may really appreciate it if they can get it to be more stable. I get sick when it is'n't dead 100 anymore, which is right in the middle. The zofran, someone here told me, is only good for nausea caused by other medications, not general nausea, but like nausea from morphine or something. I didn't know that. That may be why it isn't working very well. RF neg RA? Didn't know there was such a thing. With my horrible arthritis I would've thought they would've pinned that label on me. I found I have to bring my important test results with me. The office staff never seem to get it together to have the right test results. I imagine though that you will get him on the right track, you know those who can't learn have to feel. I just did one of those 24 hour urines and the girls in the lab just totally were lazy and probably screwed it up and I don't even know if the results will come out right. It's a good thing that he's doing some testing like this, you never know, he might be onto something. You and the baby doing fine? Are you starving and eating like crazy or barfing all the time or both? I give you lots of credit, taking on pregnancy being sick! You're a really strong person! Truth be told, I do miss holding a little one, and I wish my sons would have children so I could enjoy being a grandma at least. Take care and know as always, you are in my thoughts and prayers, you and your family and the little one inside. You should probably take it easy on the ole doc, he's probably secretly freaking out that you are pregnant and have ai disease!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2007 4:24 AM (GMT -7)   
Hi Rose, I was just wondering if you have recuperated from your tests yet? Did you get any results back? Let us know what you found out. Have you seen your kids lately? I havn't heard anything since you posted about your visit with them.

hugs
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/1/2007 8:40 AM (GMT -7)   
I won't be given the results until I see the high risk specialist next week. As to the low sugars, I have had low blood sugars since I was in my early teens, never had the spikes though, I rarely see a blood sugar above 100 and that only if I binge on sugar. I am eating when I can but most of the time I just feel ill. I hate feeling nauseous all the time but for me it is a part of pregnancy right up till I deliver. It took 2 days for the horrid feeling after the meal they had me wolf down. My hand is really bruised from the needle sticks. As to the tests, I have all the tests the high risk doctor ordered except blood sugar and urine every 6 months and the results are always the same now. Oh, my RA dx is with a neg RF. RA can be a problem even with a neg RF, the thing is my joints get swollen hot and red plus there were some minor changes in a few joints so my rheumy dxed the RA and began heavy treatment for it in addition to the lupus so I wouldn't end up with joints that were beyond horrid. The baby and I are doing okay. I may have lost some more weight but we won't know until tomorrow. My rheumy faxed all the records the high risk dr asked for while I was in the office, so I got to see that they arrived and were put in my file. I was told up front if this time my blood sugar was good they would do this again at 26 weeks and then maybe at 32. I would rather just take my sugar 3 times a day like I did for all my other pregnancies. I can't hold down the stupid glucose drink, I puke within 15 minutes. Twice they tried to make me drink it a second time right after I puked and twice I threw up at the first swallow on the lab tech. They learned not to make me try that one again. I offered to monitor my blood sugar myself but noooo, it wasn't enough.

My blood sugars are likely low because of how little I eat- at least that is what I was told in the past. This little one has made it slightly worse. I get really dizzy if I don't eat all day. Which given how my stomach feels is what my preference would be. I have considered buying meal replacement shakes so I could gag down some vitamins and minerals during the day. I dunno. So long as I don't eat the Zofran works fine. If I eat I have to eat really slow and only a tiny amount at a time, otherwise I begin having serious problems keeping the food down. I go see the girls Sunday, was over two weeks ago but it feels like months. I am dreading the last 3 months of pregnancy, as the high risk doctor implied I would not be allowed to go see them. That would really suck. I will discuss that with the regular OB tomorrow because they have a really good hospital over there if I had any problems. I delivered my girls at that hospital and they always controlled the preterm labor issues for me.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/1/2007 8:17 PM (GMT -7)   
Redrose--
(((hugs))) and so sorry you are so sick and pregnant. Can you eat oatmeal? That seems to be one of the only things I can keep down in the morning with my nausea. Bananas seem to be ok too. I eat soup for lunch, which is easier for me to digest. I read something about acute fatty liver and hypoglycemia during pregnancy, maybe they should check your liver if they haven't. My hepatologist said that with all the drugs I take (and I don't take as much as some people) he'd be surprised if I didn't have some fat in my liver just from the drugs. Did they ever diagnose your hypoglycemia as a teen? there are some hereditary glycogen storage diseasese that can cause hypoglycemia and other problems. I guess I was probably hypoglycemic through my childhood, I always felt awful, like a horrible feeling of impending doom, or was really hyper. I ate a lot of candy and other crap. Now they say I have a glycogen storage problem that is hereditary. Everyone on my dad's side has it.

I'm sorry you are having such problems with the test and the hospital. Those drinks made me sick, but then I had to drink the kind with no sugar and they are really extra awful. Carnation instant breakfast isn't so bad. That's what my son drinks when he is nauseaus. I dont' see why they have to use that drink. I was just given sugarwater, but then we are out in the country here. Oh, can you eat icecream or at least popcicles? Sometimes that helps me. Well, sending you a cup of tummy mint tea and hoping that you get better and past this stage and can eat again. You and the baby are in my thoughts and prayers.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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