Had my echo done today.

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 11/1/2007 8:24 PM (GMT -7)   
I do have some fluid built up around my heart. The guy doing it said everyone has it but mine is alittle above average. He was gonna wait and see what his boss had to say so I'll know monday I guess. I got my blood work back today. My ANA went down from 1:2560 to 1:1280. and still nucleolar. the only things that were off were my globulin whatever that is it was low and my albumin/globulin which was high and my protein was low. again I have no idea what that means. She did say that no tests for cirrosis were off so I don't know where I go from here.
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 11/1/2007 9:01 PM (GMT -7)   
Hi carol,
Sorry to hear about your heart. I hope they can do something about it to get it back to normal. Wow, your ANA is really high. The globulin and albumin are proteins and for some reason, its sounds like you aren't producing or just don't have as much as the test says you should. The link below explains. It may be the liver or kidneys? Well its good your tests for cirrhosis were ok, I think they look at Alkaline phosphatase (ALP) and GGOT and SGOT and other liver panel. Albumin is a protein produced by the liver and they usually test that too. The ALP is the one that is the worst one to get elevated of the liver panel ones because it can be a sign of liver cancer. My other ones go up and down all the time.

Heres a good link about your tests and what they are looking for and what the results mean:
http://labtestsonline.org/understanding/analytes/tp/glance.html

It sounds from the link above like they will probably have to do more tests to figure out why the proteins are messed up maybe. I hope that you continue to do well and stay relatively healthy and that they get you treated for your liver soon, if they havent' already. It's funny, I have anticardiolipin antibodies and had heart problems and don't have other antibodies that other people with AI disease usually have, then I have them to my endocrine system. Anyway, I hope that you feel better and know you are in my thoughts and prayers. Have they put you on a special diet? You may want to talk to them to see if there is anything dietary you can do to help your liver, since it is so involved in digestion. Let me know what happens.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


lunadara
New Member


Date Joined Oct 2007
Total Posts : 9
   Posted 11/1/2007 10:50 PM (GMT -7)   
I don't know about those other tests now, but I do know that fluid around your heart isn't good.  Hopefully they can treat it before it becomes worse.  A low sodium diet is a good thing for the heart, (not really fun for us) but it helps with fluid retenion.  If they caught it early on that you should be ok from it.  I hope they can figure out what is going on with the rest!  I know how frustrating it is when you just want to know what is going on and can't get it treated unless they can find the exact cause, it sux!! Good Luck.

Lupus "tendency" dx 1993 cardiomyopathy/CHF dx 2003: better 2005: rediagnosed with CHF 2007 ,Fibromyalgia dx 2003/ Coreg 40mg, Coumadin, Lisinopril, Prozac, Elavil, Digoxin, CoQ10 300mg, 81 mg aspirin//30 yrs old 
 
-Mandy
Luke 13:30 And behold, there are last which shall be first, and there are first which shall be last.


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 11/2/2007 3:56 PM (GMT -7)   
Carol, I'm really sorry to hear about the fluid around your heart and it stinks that you have to wait until next week to hear more about what all of your tests mean. You sure are going through a lot and I wish there was something I could do for you. You are in my thoughts and prayers.

Lots of love,
hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 11/2/2007 5:31 PM (GMT -7)   
((((( Carol ))))) sorry to hear of your echo results. I just wanted to let you know you are in my thoughts and prayers. Hugs and love to you
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 11/2/2007 6:21 PM (GMT -7)   
Hi Carol,
 
I wish I had some advice or ideas for you about your test results.  I just don't know enough about them.  I'm sorry you have a heart issue to deal with.  I can relate in some sense.  I have mildly inflamed heart valve.  So I get Echos every year.  Please let us know what the "boss man" says on Monday okay.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/2/2007 7:08 PM (GMT -7)   
I'm loosing my mind. I just realized I hadn't answered any of your replies. I am so sorry. I'm having a brain fog day.
Marji, that was one thing I didn't understand is that my phos were too low the last time I had a test done. thank you for the links I'll check them out.
Mandy you seem to be fitting in quiet well with the family here. LOL your right it sux. I'm already on meds to reduce the fluid but it may not be working anymore. :(
Thanks Hippi, I'm gonna try to look at it like they had yesterday aand today and I havn't heard anything. So like when my son was in Iraq I'll stick with "no news is good news" Keeping me in your prayers is the best medicine there is. Thank you. I will continue to keep your family in mine as you go through this nightmare.
Stacie MY GIRL! I don't get to hear from you much anymore. Hopfully that is because you are doing pretty well. Thank you for the shout and the prayers "love ya"
Ginny lol yeah I couldn't remember what they call the person that reads the test so I just said boss LOL. Sorry you have to go through those stupid tests. Hope they at least warm up all that yucky jel before they put it all over you. All though I can't remember the last time I was in the room with a man rubbing anything on my chest. (sorry couldn't help myself)

thanks again every one
love ya all
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 11/3/2007 8:17 AM (GMT -7)   
Carol, I'm still around just don't post much. Right now I am fighting a cold and it's kicking my butt! I feel like I have been run down by an ole mack truck! I am still in a flare and the past month has been pretty hard on me, the fatigue has been bad, the joint pain is killing me and of course the GI problems have reared it's ugly head too. Anyway enough about me, I pray your appt goes well on Monday. hugs and love
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/4/2007 6:57 PM (GMT -7)   
Hi Carol:

I've been gone for a week and I'm just getting caught up. If the fluid around your heart is related to percarditis, there are two ways to treat it. With high doses of steroids or they can put in a window into the percardium (that's the lining around your heart) and put a hole in it it will drain the fluid out. Usually, fluid around the heart is know as a pericardial effusion. I've had 3 of them. Mine have all been treated with pred. If I can be of any help give me a holler.

Take care,

Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

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