In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Organicchick,A rheumatologist would be the best one to determine if your rash is a lupus rash or if it is rosacea. (My dermatologist says it's rosacea, my rheumy says it's lupus, personally I think it looks more like lupus than rosacea. According to my rheumy it's typical for a dermatologist to give a diagnosis of rosacea, they don't know what they are looking for when it comes to a lupus rash.)
Regardless you could literally drive yourself crazy second guessing the doctors and the test results. You could go your whole life with vague symptoms and hardly any blood tests to back you up or the tests could turn around and go one way or the other giving you a definite diagnosis one way or the other.
Not all lupus patients get a reaction to the sun just like not all lupus patients have organ involvement or all lupus patients have the butterfly rash. (My sister is 63 years old, was diagnosed with lupus in her late 20's and within the last 7 years is when she first started developing the butterfly rash.) Sometimes I get the sun rash, sometimes I don't.
It's been my experience that if you have a strong case of symptoms but no blood tests to back it up that a good doctor will treat you for lupus. I think that a titer level of 1:40 is still considering in some labs negative but I'm not 100% sure. Chances are they wouldn't take into consideration a titer level of 1:40 though because they've only had to dilute it once to remove the antibodies. A speckled pattern might change a doctors opinion on that though saying titer levels have nothing to do with it, it's all in the pattern.
I think almost everyone on the board would agree with me in saying that the lupus meds we're put on makes you feel better today, controls it for next week and a month from now. It's not like an allergy med where you take it that day and it helps for that day. It is so very important that we all try to follow the plan on doctors set up for us. Feeling bad isn't the only thing we have to worry about, for some they have organ involvement which could turn into a serious situation. We can try to help control the lupus by diets and other ways of trying to take care of ourselves better, but the chances of being able to control lupus by homeopathic treatment only could be dangerous. Please, please be careful and don't ignore a doctors recommendations until you research it completely, it could eventually be a decision that haunts you.
Most of us have gone to at least three or four doctors or more before we have found that "perfect" doctor. And even finding that "perfect" doctor you could find the rug pulled out from under you because they've retired or moved and find yourself on that quest of again trying to find that perfect doctor. It's sad that we have to go through so many rheumy's to find a good one. If you find yourself not feeling good, doctors not listening to your complaints just keep on looking for a doctor that will help you. It's not normal to not feel good day in, day out and I think that most people here would agree if you have more days you don't feel good than days you do feel good then you need to keep on trying to find out what is wrong with you and don't give up until you do find out what is wrong.
The good thing is you found a wealth of information and understanding when you stumbled into this forum. There are so many people here that are so well educated on Lupus and other autoimmune diseases and you should find yourself among a lot of good people that will be able to help you.
Good luck in your quest to feel better! Maybe someone can help you with a doctor if you live in their area!