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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/4/2007 6:27 PM (GMT -7)   
Hi Everyone:

Hi Babs I saw your post on the other one that I had. Yes, I'm home now and I've had myself 2 naps today. I'm sorry that we weren't able to meet up we'll meet one day soon though I'm sure. I have to say my flight caused me a small problem last night. I ended up with to much air in my stomach and GI track and my stomach was hurting terribly last night. I literally thought I was going to die last night I hurt so bad. I had visions of a blocked GI track, twisted small bowel, etc. I had a temp of 101 all night. I can say I awoke feeling much much better.

As for my trip is was great. My friends treated me wonderfully. Debbie even talked me into dying my hair and covering my gray hairs up. She said that with the hair cut I got and the hair color I took 6 years off of my age. She took the time to rub my feet and my shoulders. She cooked me 3 meals a day and even baked me brownies and cookies. I can say that I managed to keep down most meals except for 3 which I promptly threw up.

She took me to the beach and didn't keep me out in the sun to long. On Friday she even allowed me to go out into the gulf of Mexico in my cloths. I walked out to hip deep water and just enjoyed the water. I couldn't swim but I was able to stand out there and enjoy it.

Debbie tries so hard to understand everything about my health. When I'd take pain killers she'd ask me where I was hurting and what it felt like. Her hubby Jay was very nice to me also. He took us out to dinner Friday evening.

Anyway, I'm home and I'll probably be out cold the remainder of the week. I see my dr. tomorrow she's going to be shocked about the hair LOL. I've also got a CT at 3:00pm. Hope you are all doing well and I love you all.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/4/2007 8:02 PM (GMT -7)   
Hi Barb--
I'm so glad you had such a good time with your friends and got to take time for you. I bet your hair looks great. Gosh and cooking you brownies and cookies and out to dinner, I don't think I'd come back! That ocean is a little too cold for me now, I'm used to it in the summer, but I bet it's warm to you. Well, I'm glad you made it back ok and are doing well!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/4/2007 9:23 PM (GMT -7)   
Glad you had such a great time with your friend Barb . . . sorry you are having such a hard time with your belly . . . urghhh!! Rest, rest, rest . . .

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/4/2007 10:14 PM (GMT -7)   
Oh Barbara,
 
your friend Debbie sounds just lovely!  What an angel to treat you with so much care and love!  A person like that needs to be a nurse!  I'm so glad you had a good vacation and time away.  It's amazing what a fresh cut and color will do for you isn't it!!  Gives you a boost!
 
lots of love Barbara, glad you're home safe and sound!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 11/5/2007 5:56 AM (GMT -7)   
Hi Barb.  I'm glad you enjoyed your visit.  I spent my teenage years in Sarasota and Tampa.  Standing in the salt water can be such a pleasure.  I hope your pain eases.  (((Hugs)))  Love, Butterflake

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/5/2007 8:02 AM (GMT -7)   
Barb, it sounds like a wonderful visit and one that you will have really good memories of. I was smiling as you talked about being able to wade in the ocean - I bet that was so nice. What wonderful and understanding friends you have and I bet it was great to be taken care of and pampered.

I'm sorry to hear about the GI pain though - how awful. I'm glad the pain from it is better now. Just make sure to get plenty of rest to recover from your trip. Good luck at the doctor's and give us an update when you feel up to it.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 11/5/2007 7:33 PM (GMT -7)   
Hi Barb,
   I hope your appt went well today and the CT. I'm sorry to hear your stomach was acting up so bad but, glad it is much better now...(((Gentle Hugs))).
  I'm glad you had a great time on your trip. Debbie sounds like an awsome friend. When I talked to her on the phone she was very nice to me.
  You rest and take care. Update us when you can. You are always in my thoughts and prayers.
                                    Lots of love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/6/2007 10:30 AM (GMT -7)   
Hi Barb,

It's so good to hear from you again. You were brave to take that trip and I'm happy to hear that it was a success. There's nothing better in the world than good friends and it sounds like you have a great one there. Being pampered was just what you needed. I'm sorry you're going to pay the price this week but I hope your good memories sustain you.

I'm sending a great big hug your way.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/6/2007 7:56 PM (GMT -7)   
Hi Patty, Babs, Hippi, Donna, Ginny, Rosie, and Marji:

Well today I'm feeling it all, I'm totally wiped out. I saw my doctor yesterday and she said I had some color in my cheeks. Which she was pleased to see, I did say I was totally wiped out. She replied, "you've been on a trip and done more than normally, you should be wiped out". She said that if I'm still wiped out by next week then we need to be worried.

I don't see her until the 19th again. That's when I'll get my CT scan results. I'm planning on taking Nikita to the hospital on Thursday to receive her flu shot. Of course, I'm allergic to the flu shot and I can't have it. Bill will be getting his flu shot from work. They offer them to all their employees.

Well I'm off to bed and I'll be in touch, I'm just so tired I think I'll sleep the next 24 hours LOL. You all are great and I love you.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/7/2007 4:58 AM (GMT -7)   
Hi Barb, I'm so glad to see you made it back but wow what great friends huh? That's awesome. You deserve it. I hope you get lots of rest this week. There s actually somthing going around this area that sounds alot like what you mentioned. The fever and terrible stomach cramps. What ever caused yours I hope you are feeling better.
Glad your back
love and prayers
carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 11/8/2007 7:54 PM (GMT -7)   
Hi Barb,
   I hope you are feeling a little better by now...((gentle hugs)). I'm sure the trip did wipe you out sweetie! Keep resting and take care. I hope Nikita's flu shot went okay today! Update us when you can. You are in my thoughts and prayers.
                                           Lots of love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/8/2007 8:48 PM (GMT -7)   
Hi Barb--
Hope you are feeling better and more rested. Allergic to the flushot, that's a drag. Mine last year didn't work, I got more sick than normal. I think I may end up diagnosed with another endocrine problem, Addisons disease, and that is not thrilling because it makes getting prednisone that much harder for me. I hope they do a good job with the flushots this year anyway, I will likely get it anyway because my rheumie has me do it. I'm hoping I don't have Addisons, but if I do I'd rather know early because they can prevent some of the more bad things that can happen. I have polyendocrine deficiency, so this is a move from one stage to another, so better find out earlier. Well, I'm glad you are back and doing ok. Hope to hear from you again soon!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 11/13/2007 12:58 PM (GMT -7)   
Hi, Barb. That was so nice to hear about your refreshing trip. What great friends! I'm sure you will really treasure those memories! I'm sorry you ended up feeling badly though with the stomach problems. Definitely rest up and keep us updated. Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 9mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg, DocQLace 200mg, Flax Seed (milled) 2Tbsp


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/13/2007 1:35 PM (GMT -7)   
I am so glad you had a good time. I hope that you rest and keep the good feelings from your trip. I envy your time in the water- I am told no swimming, no baths unless we disinfect the tub first. I love soaking in warm water.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/15/2007 2:28 AM (GMT -7)   

Hi Barb, just checking in with you and sending my love. I hope you are getting some rest and were able to get some good pics while you were gone.

love ya and praying for ya

carol


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 11/15/2007 10:13 AM (GMT -7)   
Hi Everyone:

Well I know for sure that my trip has caused me to flare. I'm feeling so bad I just wanna die. I've got a mouth full of sores, joint pain, shortness of breath, chest pain when i breath, rash on my joints, and feel like I've not slept in months. I also have the sore down my throat so I can not sallow anything but water. I went yesterday and had my labs taken. I've sent my doctor an email, but she's allowed 72 hours to respond to you. I've got an appointment with her Monday morning. If I can make it till then it'll be a great big surprise. I feel like I may need a few days in the hospital and my steroids IV instead of orally. I hate this Thanksgiving is next week, I bet I'm in the hospital for it.

I should know better than do a trip away from home, it always does me in, plus my friend Debbie is feeling so guilty right now. Lord I hate being sick I'd give up everything I owned just to have one day of feeling nice. Just one day is all that I'm asking. Plus I'm stressed I've had my SSDI hearing and it's been 7 weeks and still no word from the Judge as to whether he's approved my case or not. I've called my attorney's office and was informed that a Judge can take as long as he deems fit to make a decision. Gosh I'm just flat out fed up with it all. I'm gonna go lay back done and see if I can figure out something to be done. Thanks for listening to me vent.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/15/2007 11:35 AM (GMT -7)   

((((((((((Barb)))))))))), I'm so sorry you sound absolutely awful! I wish I could do somthing to help. All I can do is tell you I understand alot of what you are going thru. My doctors have given me no hope for the future. In fact I can look forward to progressively getting worse until I can't get any sicker. I need meds I can't afford to pay for.Even with my insurance. Now this lousey holiday with all the stinking rotten comercials about how happy people are. If I see one more commercial about Nestle toll house cookies I'm gonna throw somthing at the t.v. set. Who are they kidding..............All I see in those commercials is alot of money the stores are making. I hope you aren't in the hospital for turkey day but you have to do what makes you feel better and stronger. I know it's depressing and it gets really old trying to but up a good fight when all you want to do is feel "normal" just for a little while. I used to at least think I would be abe to get a job at some point and make a little money and get a few bills out of the way but now they say my heart is involved. I'm never gonna get out of never and i'm never gonna get better.

Sorry I guess I threw my rant in there with yours. I hope you will go to the ER if you need to. maybe if they get you in sooner you will be out before turkey day? I just wish I could be there to help you some how.

you continue to be in my prayers

love ya carol


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 11/15/2007 2:24 PM (GMT -7)   
Oh, dear Barbara --

I suspected you might have some problems after your trip. I am not nearly as ill as you are and it takes me 10-12 days to recover after a 2-day car trip when I'm not even driving.

I am SO very sorry it's taken you this low. How I wish we could all do something to help ease your pain. I hope to talk to you soon,

Hugs,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/15/2007 3:16 PM (GMT -7)   
Hi Barb--
I'm so sorry you are feeling so bad now. It's terrible that you get so sick over a short trip, but sometimes you just got to do something you want to do. I had to take my son to the ER and some lady sat down next to me and started hacking and said, "Don't worry, its only bronchitis." and of course, I was the one getting the mask, no one else would. and someone else had strep and my son has a staph infection. I'm thinking positive though my throat is killing me and my brochial tubes feel funny and swollen.

And they've pushed these holidays up so fast, I mean christmas before halloween. It's all about buying. I hope you don't have to go in for thanksgiving. When I had my oldest son, my first baby and I was 19 and knew nothing, the ob was an old southern gentleman and really nice and looked just like Colonel Sanders from KFC, esp. the white coat and all. Anyway, he saw me two days before turkey day and said we should try to eat thanksgiving early because my son was due on thanksgiving day and then I wouldn't have to have an enema from that big dinner. So I went home and we all made a big turkey dinner and by early evening I was in the hospital being shaved and getting a nasty enema from a mean old bat. He planned the whole thing, the old coot, just sos he wouldn't have to deliver my son on Thanksgiving. I was glad though because then I had my new baby with me for Thanksgiving day. So that's my thanksgiving story. And, to boot, when old colonel sanders delivered my son, he forgot to hold something down and got a face full of pee. It was funny, Right when he was saying "It's a bo-o-o-y!" Right in the mouth.
Funny what we remember.

On the SSDI decision, my attorney told me they don't have forever to make a decision. It must be rendered in thirty days or sixty days, something like that. I would definitely call another social security attorney and just ask the question, not specifically, but just about the law. Your hubby or someone could do that. It sounds like your lawyer doesn't know what's up on that. My lawyer was really good and all they did was social security ad they used to work for social security. I believe its thirty to sixty days that's it. Redrose might remember, she just got it not too long ago. Maybe the judge is going to play games or something by saying he doesn't have all the paperwork or something, but your lawyer should be on that. Boy, you'd think they were giving you the Hope Diamond or something. They have to deliver a decision promptly, at least by government standards.

I hope you feel better soon and am praying that you will have this giant burst of strength and for once your immune system and body will work for you instead of against you and you will get good treatment for this stuff and get well for the holiday season, at least well-er!

I'm guilty of the same crime, living and not being a mushroom at times. Sometimes you just got to take the pain meds and steroids and just do things! There's only so much law and order or whatever other crap is on that I can take.

You are in my thoughts and prayers, Barb. I go to the endo tomorrow to find out if I have adrenal problems or pituitary problems to go along with my autoimmune polyendo deficiency syndrome. I feel like the final boom is coming here. I just am getting to the point of too much wrong that wont go away. I'm hoping that a daily dose of pred will make me well, or they can give me cytoxan for it I think, but my brain just feels fried and then I'm just hopped up and fried. and with my drug sensitivity and liver, I wont take the cytoxan. Hopefully the steroids will pull me out of this funk and actually fix one of my problems (the brain is hopeless, i think!).

Well, sorry for the ramble. I hope your family is doing well. Is there snow up north? It's 76 here but cloudy and dark. Just my kind of day anymore!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 11/16/2007 8:41 PM (GMT -7)   
Barb,
   (((Gentle Hugs))) I'm sorry your flaring so badly sweetie. I hope the next couple of days won't be too rough for you. I know you have alot going on and need to be resting instead.
   You amaze me lady!! With all that you have going on, you called to check on me today. Your a wonderful caring friend and I love you!!
   Please try to rest as much as you can this weekend. It sounds like you will be in the hospital monday when you see the doctor....((Hugs)). Update us when you can. You are always in my thoughts and prayers.
                                        Lots of love, Babs 
  
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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