Carol (Okie) any results from your tests yet?

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 11/12/2007 8:11 AM (GMT -7)   
Hi Carol.  I was just checking in to see if you had heard anything from all the tests you had done.  I imagine you are worn out from all of the appointments.  You've been in my thoughts and prayers.
 
Love,
hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 11/12/2007 12:07 PM (GMT -7)   
Me to! I've been so out of touch. Hope you're feeling ok.

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/14/2007 1:27 PM (GMT -7)   

Hi Hippi and Pat, Thank you so much for checking on me. My doctor has been out of town since last wenesday. She just got back yesterday. The only thing that the nurse said she was able to get to thru her stack of backed up files on the desk was my ECHO. She said I have I'll probably misspell it but here go's Cardiomyopathy which she said it to be expected with Lupus and COPD. She still says I have Lupus and my rheumy said I don't. I just wish they'd get locked together in a room until they figure it out. In the mean time from what I gather my heart is becoming (involved) to some degree. They didn't suggest doing anything about it so I guess I will go on being in the dark. sad

I'm sorry it took me so long to get back to you. I'm just really having a hard time right now and can't be good company. I do try to take a min to check out all the wonderful new peep's on here though. WOW there sure is alot of them.

thanks again love you all with the GOOD side of my Heart!!!!!!!!!!!!!!!!!!!!! tongue


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 11/14/2007 1:44 PM (GMT -7)   
Carol,

I'm so sorry to hear that you're down. I understand what you mean about not being good company. I have crawled into a cave myself and am just feeling a little antisocial. Anytime you want to talk.....you know I'm here. Do you need to find another rheumy? Heather and I both see a good one here in the City which is sooo far from you. Let me know how I can help.

Take care and hug yourself for me.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/14/2007 6:02 PM (GMT -7)   
Carol, I'm sorry to hear about your heart and sorry to hear you are having a rough time. Please don't hesitate to come here and talk about it if you want to. You are always here for others and have helped to lift many of us up when we were down. We'd like to be able to do the same for you. You are always good company to us whether you are up, down, or all over the place. Like Pat, I wish there was more I could do for you. Just know that we are here for you and we care about you.

Love,
hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/14/2007 9:15 PM (GMT -7)   
Hi Carol, sorry to hear you are having heart and respiratory problems. Even though I only have "a lupus like, sjogrens like autoimmune condition caused by liver disease", I do strangely have anticardiolipin antibodies, like why my heart? and had some damage that repaired itself when the flare was over. Also have COPD. Just for some weird reason I have those antibodies and not some others. I have an odd grabbag of them compared to normal lupus patients because of having like secondary autoimmune disease. I had to laugh on you saying your docs need to be locked together in a room until they figure it out. I like that. I hope you get good results and feel better soon.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/14/2007 10:18 PM (GMT -7)   
Hi Marji, thanks hun I appreciate you responding. I was glad to hear your son finally came home. I hope he can get things straightened around in his life. 19 is a hard age to be. You need to take care of yourself. I know that you worry about your kids. You'd worry about them until they're 100. That's just the way it is. Just try to take times for yourself. Kids don't understand what it's like until they have kids of their own.
love ya
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/16/2007 6:51 AM (GMT -7)   
Carol,

Thanks for the update. Sorry you've got heart issues . . . but glad they've identified what it is so they can treat it better. I hope you are feeling better soon . . . sending you some hot tea sis!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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