dry mouth + mouth sores

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canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 11/13/2007 11:29 PM (GMT -7)   
Hi everyone hope you are all well !
 
Can anyone shed any light on the dry mouth issue to me. I have not had any problems since starting plaq in March. Then last friday I wake up with cracks in the corners of my mouth. By Sunday my tongue now has a crack in and a big sore. And I still have salvia but its bubbly and seems strange. Does this mean I have sjogrens? How bad does this dry mouth thing get? I bought the biotene toothpaste today as after a reading about it seemed like a good thing to use even if this wasn't sjogrens. Does dry mouth mean sjogrens all the time or can you get it with UCTD/LUPUS as well?
 
thanks for responding
 
Angela
UCTD Plaquenil 400 mg and  Diclofenac 150 mg on really bad days Tylenol Arthritis.  and omega 3 with Moducare supplements


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/14/2007 9:15 AM (GMT -7)   
Hi Angela,

I've had the dry mouth and eyes too. I'm not dx'd with sjogrens, but was using a rx which increased my saliva. The one I used was salagen and it worked well for about 2 hours at a time and I could take it 3x a day. You might like the Biotene mouth wash too. It is very different than other mouthwash. I bought a little spray bottle and filled it with the Biotene mouthwash . . . that way I could use it frequently and not waste it. It was helpful to keep it on my nightstand so I could moisten my mouth in the middle of the night w/o getting up.

I'm not sure if my dry mouth issues were from meds or sjogrens, but I've gone quite a while w/o any problems this year and it is just now returning. This time my eyes are more dry than before and they feel gritty sometimes. I'll be asking the doc about that when I see him.

Be sure to let your doctor know that you have the dry mouth issues. This is VERY hard on your teeth and should be addressed pronto.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 11/14/2007 9:49 AM (GMT -7)   
I have a question regarding Salagan's the product that you take for dry mouth. Does it cause excessive uncontrolable sweating?
I have heard it can do that?
UCTD Plaquenil 400 mg and  Diclofenac 150 mg on really bad days Tylenol Arthritis.  and omega 3 with Moducare supplements


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/14/2007 10:16 AM (GMT -7)   
It didn't for me. I thought it was worth a try. If it did cause a problem, you could either discontinue it or use it less often. I had great control over when I was taking mine so that the increased saliva happened when I needed it most. For me it was morning, mid-day and evening. I did make sure my last dose was at least an hour and a half before bed-time so I didn't have an over-abundance of saliva while sleeping.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/15/2007 2:18 AM (GMT -7)   
It could be somthing like thrush. You really need to see your doctor or dentist. That sore on your tongue must hurt like crazy.
let us know
hugs carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/15/2007 1:43 PM (GMT -7)   
Hi Angela--
I take a newer drug than salagen, called Evoxac and my rheumy who is really good says it works much better than salagen with less side effects. i don't notice any but if I take too much I might have too much saliva. I like the evoxac because it makes my eyes and nasal passages and gi tract all less dry, though it works mostly on the mouth. I haven't had a sinus infection since I've been on it and that's been over a year. I think I went through a sweating period, at night, for a few days in the beginning, but adjusting when I took it and how much. I have liver disease and am allergic to tons of drugs and I can take it no problem without excess sweating. That's just my experience. I don't use any sprays or mouthwashs, one pill lasts me the whole day because of my liver, but most people take it two to three times a day. In the beginning you might have too much saliva or sweat, but it goes away as your body gets used to the drug and you figure out what dose you need.

Sores in the corners of the mouth are often vitamin deficiencies but all that went away for me with the evoxac, so who knows. It's worth a try. it got rid of the tartar on my teeth and staining due to proper amount of saliva. I didn't even notice the dry mouth, I just figured it was just the way it was, my eyes were the bad part and it even helped them some.

Also, I have had both submandibular glands removed due to sjogrens, so I should be pretty dry and I'm not. Sorry to sound like an ad. I hope you feel better soon and can get this dry mouth cleared up. Chewing sugarfree teeth whitening gum helps me too. I used to use Carmex in the corners and it helped some.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 11/15/2007 2:59 PM (GMT -7)   
Hi Marj thank you so much for responding, I still am not sure what is going on I don't know if it's sjogrens or not now. It's only my mouth not my eyes or nose. I went to the dermy today and she thinks my mouth feels like poo and all dried up from thrush not dry mouth. She gave me diflucan for the yeast. But my tongue is burning really bad and I didnt' think thrush caused that or mouth sores. I would be very interested in Exovac as I have heard great things about it unfortunatly I live in Cda and we don't have it here yet.

Angela
UCTD Plaquenil 400 mg and  Diclofenac 150 mg on really bad days Tylenol Arthritis.  and omega 3 with Moducare supplements


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/15/2007 3:19 PM (GMT -7)   
Oh, that's too bad. It seems to help me a lot. Your mouth will get lots of infections with all kinds of stuff if it is dry, so you are probably right that you have more than one problem there. One sure sign of a dry mouth is lots of tartar on the teeth. But right now that might be hard to tell. Well maybe the salagen will work.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


slotgal
New Member


Date Joined Nov 2007
Total Posts : 1
   Posted 11/16/2007 11:52 AM (GMT -7)   
I have been taking evoxac since June of this year.  I am having hair loss...big time. I am wondering if anyone else has experienced hair loss using evoxac.  I have had all kinds of thyroid tests and thats fine. The hair comes out with the little root ball  or follicle on the end...its not breakage.  I'm really getting desparate.  I am thinking about trying Salagen...anyone have hair loss with that?
 
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