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redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 11/14/2007 1:37 PM (GMT -7)   
Well, I got bad news at my high risk OB visit. My blood pressure has become a serious problem. I had to pay out of pocket for a BP machine with large cuff because the insurance company REFUSED! I burst into tears when they told me and the women worked hard to find a way I could afford it. They had a unit that the wall adapter was missing from so they sold me that one (it runs solely on 4 AA batteries thanks to a thief) for 35 instead of 115. They would have lost all the money anyway so selling it at such a high loss was recovering some of their funds. It was really sweet of them. Now hubby has to run the machine 3 times a day (once in the morning, once in the evening and once before bed) because I cannot manage the cuff on my own with my hands as bad as they are. But this way I can show the doctor blood pressure readings next week when I got back to the High Risk docs and get on medication. It is the prednisone of course, I gained 5lbs of water in the last week. My ankles are so swollen I could cry and a water pill is out of the question because I dehydrate so easy when pregnant and also because it could hurt the baby (the one mild enough to be okay for me when pregnant). I have to stop celebrex tonight and up my pred to 10mg (would have done it next week but with the need to know how bad my blood pressure will be he said do it early that it would actually be better for the baby to end it early).

The medicaid I need to afford my prescriptions was canceled because the proofs I sent in never got to my caseworker meaning I am in deep doggie doo-doo on copays. She says she will figure out what happened to it and fix the problem but it could take a few weeks. All my meds need refilled next week.

The good news, I have to take a Microsoft certification exam for one of my classes at 90, one of the guys at the place that sells the vouchers to take the test found a free one for me which means I do not have to pay for it but can still take it. How cool is that?

Now, I have homework and my husband to pick up so I need to get off here. I hope that everyone else had a less eventful day than me.

Before I sign off does anyone know a good way to clear water from the body without medication or herbs beyond drinking tons of fluids (I have been doing that for a week). THANKS!!!
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

Post Edited (redrose77) : 11/14/2007 1:58:37 PM (GMT-7)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/14/2007 1:50 PM (GMT -7)   
Canned low sodium beets will cause lots of peeing in many people . . . works for me. I just eat a half of a can and it acts like a diuretic.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/14/2007 3:03 PM (GMT -7)   

redrose,
I hope that you can get your insurance situation straightened out.  That alone can cause so much stress which would increase your BP. 

Have you ever gone to www.drweil.com?  I really like that web site a lot.  Anyhow Dr. Weil has some suggestions for natural diuretics but he doesn't mention if this is okay if you're pregnant.  I'm pasting what he said on his web site:

Beverages containing caffeine and alcohol have a diuretic effect, and several other foods including celery, onion, eggplant, asparagus and watermelon are said to have a diuretic effect. In addition, the herbs hawthorn, corn silk, and parsley are used as diuretics in natural medicine. Of these, hawthorn, (crataegus oxycanthus) is the most powerful. If you have a medical condition for which diuretics are prescribed, you would be much better off following your physician's recommendation than trying to treat yourself with alternative remedies.

Andrew Weil, M.D.

When you go to your dr's visit next week make sure you take your BP machine with you.  After the nurse has taken your BP with their machine, have her take your BP with your machine.  Hopefully the numbers will be close.  This way you will know how accurate your machine is to your doctor's BP machine.  Make sure every time you go to the dr and your BP is still an issue you continue to take your BP machine with you.
 
Watermelon works for me as well as orange juice.  Maybe some others can come up with some good ideas.  Too bad chocolate isn't a natural directic tongue
 
When you go for your ultrasound do you have a way of posting the photo for us to see?  I just love to look at the ultrasounds (especially when they're the 3D ones).
 
Make sure you take care of YOU ... the housework, the cooking, the laundry ... it can all be put off.  You and this baby are the most important things right now.  Not only do you have lupus to bring you down, you have the other issues.  It's too bad we aren't all close to each other so we could all take a time slot and help you out.    You're in my thoughts and prayers.   Hugs!
Gidget^
 
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Clinoril, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Loratab ,Percoset, Toradol
 
There is no psychiatrist in the world like a puppy licking your face.
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/14/2007 3:33 PM (GMT -7)   
Thanks Rosie and Gidget. I have to take the machine with me next week- dr's orders. Then I will be calling in BP readings and taking it to my regular OB apts too. The insurance issues I have done all I can and the rest is up to someone who thinks I am dirt or worse because I need help. Lovely. Most herbals aren't safe in pregnancy and also many can worsen lupus and other health issues. I am supposed to avoid caffeine because high intake can do weird things to a baby's nervous system. I need to lay down. Hubby handles housework most of the time because a lot of the stuff I just can't do (lifting is a no-no, being on my feet long is a no-no, cooking makes me ill now). I wish we were all closer together too. It would be nice to have local people who I could talk to and who understood. Plus then I could help a lot of the people who have bad rheumy's cause mine is amazing and the most recommended here.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/14/2007 8:57 PM (GMT -7)   
Wow Rosie, cool about the beets, I'll have to remember that! I'm sorry you are going through all this blood pressure and bureaucratic stuff right now. That patient advocate site will pay for some stuff and copays sometimes if you get in a bind. I put it in another post. Did you see Sicko by Michael Moore? In France, they actually have someone free from the government come out and help with your laundry, kids and supper if you are having a baby and the doctors do house calls for free and all medical care is free. No wonder they have money to vacation here. They don't have our medical costs. England is cool too but France, that's where I want to live! You need to be in France. They have a 35 hour work week too, and you get time off with pay to have your baby, I think hubby too! It would almost make you think we DON'T have the greatest healthcare system in the world! Well, I hope you are feeling good and the baby is ok and you get a chance to rest and put your feet up. I don't have any water loss tricks, the one from Rosie is the first that I've heard of. My doc told me not to drink too much, to be conscious of how much you are drinking and write it down and find out how much they want you to have and make sure you drink that and try not to go over. Maybe that is something to ask your doc about. I know that I've had electrolyte problems and was drinking and peeing a ton and retaining a lot of water too and it was hard to be thirsty, but once I did it the cravings went away. But in your case with dehydration, I wouldn't do it unless the doc says to and gives you an amount that you can drink and be safe. Take care and pat the baby for me.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/14/2007 11:19 PM (GMT -7)   
I am to drink at least 1 gallon a day but less than 2 gallons. It is really crazy, but less than a gallon and I start to get dehydrated and drawing blood is near to impossible.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/15/2007 12:28 AM (GMT -7)   

Hi Rose, I noticed that you are taking flexeril. Is that somthing you have been taking for a long time? Flexeril makes me so dehydrated! I feel like a sponge when I take it. Just a thought.

love ya

 


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/15/2007 2:04 PM (GMT -7)   
I think a gallon seems kind of normal I guess, but over that, wow, no wonder you are retaining, that's a lot of water, but obviously the plumbing isn't working like it should be. My doc told me the opposite, that drinking more water would just make things worse and drinking less would force my body to retain water. I don't know. I guess they do. The sound of water running, like a waterfall or aquarium filter makes me have to go. But then I always have to go. My endo told me drinking a lot of water can cause you some dehydration problems because you don't retain water as well because you drink too much, but then there is a trransition period I had to go through where I went from losing fluid all the time to starting to retain it.

I would think they might be able to come up with a better hydration plan for you, like something more to do with electrolytes so you don't retain like that. I know my endo told me, because I was having the same problem, I guess endo problems and thyroid meds can cause you to have water/sodium balance problems, she told me to drink gatorade with the water from time to time to prevent dehydration, so I wouldn't retain like that.

You might ask the docs about that. Like to actually look a little deeper than surface problems and bandaids to determine why you dehydrate like this and get a better solution. I swear, heaven forbid they have to think more than the bare minimum. If your blood is really thick due to sed rate and platelet and all that, I would think there would be a better solution. I mean this is kind of old school, like leeches and all. Aren't they worried about you retaining around your heart and lungs and such? I hope you and the baby are doing ok and that you get through this time ok. (((hugs))) and hope you feel better.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/15/2007 11:35 PM (GMT -7)   
I actually have never retained fluid around my heart and lungs but when it gets really bad a thumb lightly set against the skin on my back or stomach will leave an in print of the whole fingerprint pattern. I end up with whorls in my skin for 20 minutes or more. Right now the sjogrens is bad because the only med to help the dry mouth causes miscarriage and no data is available for after 10 weeks. I have special mouth wash but it doesn't work as well as it does for some of the others. My ankles have big water bags right now. The thing is if I don't drink the fluids I run into serious trouble and end up with IVs. My blood issues have nothing to do with platelets or sed rates (my sed is always normal even when my joints are swollen three times the normal size, bright red, and very hot). To make matters worse I have caught some kind of virus. I just finished antibiotics for a sinus infection and the stuff coming out of my nose is clear again but there is swelling at the sinuses and breathing is horrid.

I have had a 24 hour protein and cretin clearance done and it was normal. All blood work was normal too, except some minor abnormalities in one of my antibody tests. I see the rheumy next week. I see the high risk doc again next week too. I could cry from all of this. I retain water all the time but pred makes it so much worse and raises my blood pressure too. I hate having to be on pred. I will be okay and so will the baby we just have to deal with the blood pressure after we see how bad the required pred increase makes things. Ironically tonight I got my lowest BP reading in 10 years. I double checked and it was almost the same. Since the machine has been giving the same readings as the doctor got (about a 4 point variance range) it is likely the machine is correct.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 11/16/2007 2:52 AM (GMT -7)   
Find out how much sodium you can eat in a day, and stick to that number like glue. Don't eat more than that number of mg's of sodium. Too much sodium and not enough potassium is what causes water retention. Prednisone causes potassium loss, which increases the sodium:potassium ration and thus is one reason Prednisone causes water retention (and may contribute to high blood pressure as well). So eating more fruits and vegetables, and try to eat the right amount of salt to meet your needs (not no salt, but don't eat extra either - I know sodium is important for preventing dehydration, but so are potassium, magnesium, calcium and probably other minerals). Ask a dietician what the sodium recommendation is for someone your age, weight and pregnancy status.

And if your doctor ok's it, you may want to try taking a daily multivitamin/multimineral supplement (if you aren't already), just to make sure you aren't missing some important nutrition for your baby. I know Prednisone interferes with calcium and magnesium absorption, and also may interfere with vitamin C and sulfur metabolism somehow (thus the connective tissue side-effects). I know all about prednisone side-effects - my DH has been on some form of steroids consistantly for 11+ years and he has a lot of the side-effects.

Take care,
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant & Medication Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, Very Low Lymphocyte Counts (T-Cells & B-Cells), malabsorption/malnutrition, etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/16/2007 11:11 AM (GMT -7)   
This is so weird because I do not allow any extra salt to be added to anything in the house and always buy low sodium label whenever I can.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Mariepoms
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 11/17/2007 7:42 AM (GMT -7)   

I got my blood pressure down with meds and dietary changes.My pressure 4 weeks ago was 160/102.It is now 130/80.First,DO go to Dr.Weil's website and reasearch hypertension and pregnancy.Check out his Anti-Inflammatory diet.Think about taking Turmeric powder,Ginger Teas and Omega 3 fatty acid supplements.I use all 3 supplements and Benicar htz 40/25..I feel the combination helped me but the supplements improved all my symptoms.I feel these supplements work for people with Hypertension and Inflammatory diseases but be sure it's OK for pregnant women.Avoid adding salt to your diet and canned foods period.Foods naturually high in sodium are tomatos and celery so you may want to avoid those.Avoid caffiene too.

Check out Dr.Weils site.I think you may find some natural approaches to treat medical problems.Good luck!!!

Fran

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