Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
dazed,I had a doctor where I use to live that set aside my negative blood tests and treated me on the symptoms I had. He told me that he thought I had lupus but my blood tests might never show anything more than they did (which was nothing). He put me on Plaquenil and when I had a flare he'd treat me with Pred. Ask your doctor what he thinks might be wrong with you and ask him if he'll set aside your blood tests and treat you with the symptoms you have. If your doctor will do this, you can't ask for anything more. It could take years for your blood tests to show positive for lupus. Along with finding a doctor to treat you, you have to learn to pace yourself and when you're in a flare don't overdo it. If your doctor is unwilling to treat your symptoms, then you need to find a doctor who will. Good luck!
They may not know for sure if there is a genetic link with lupus and other autoimmune diseases but I cannot ignore the fact that my half-sister and I both have lupus and fibromyalgia. We share the same mother, different fathers. Strange how when you trace back in my family tree we are related to John Wayne and in 2003 John Wayne's son died from complications of lupus.
Post Edited (Gidget^) : 11/15/2007 9:56:13 PM (GMT-7)