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JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 11/16/2007 9:05 PM (GMT -7)   
Hello everyone. For about the last 5 hours everytime i take a deep breath in i get sharp pains on the right side of my chest and my right shoulder, as well as my right side of my lower back (over the kidneys), and on the right side just below my ribs. Im not sure whats going on. Any suggestions on what i should do about this? Im starting to get a little worried

Jana

Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/16/2007 9:59 PM (GMT -7)   

Jana,
If the pain started suddenly and hurts when you breathe you really do need to have it checked out.  Please go to the ER and let them check you out.  It's better to be safe than sorry!  One of the symptoms of lupus does include chest pains and chances are with it on the right side of your chest it doesn't have anything to do with your heart, but you do need to go have it checked out.  Please post when you can.  Hugs!


Gidget^
 
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Clinoril, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Loratab ,Percoset, Toradol
 
There is no psychiatrist in the world like a puppy licking your face.
 
 

Post Edited (Gidget^) : 11/16/2007 10:09:48 PM (GMT-7)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 11/16/2007 10:11 PM (GMT -7)   

Hi Jana, It could be a gallstone or kidney stone. Are you running a temperture. I mean 101 or so? If it 's too bad you may need to go to the ER. If it isn't bad enough for the ER or it goes away you need to keep an eye on it anyway and mention it to your doctor.

hugs

carol


God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 11/17/2007 11:10 AM (GMT -7)   
So i took some tylenol last night and just tried to go to sleep because i didnt think the pain was bad enough for the er.....and i live in Canada and our er system is retarded and i would have had to wait at least 4 hours before i saw a doctor when i was in pain and really just wanted to lay in my own bed. But i woke up this morning and its definately not as bad as last night. So im going to keep an eye on it and if it gets bad again then i will make the trek over to the hospital. Thank you for the advice!

sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 11/18/2007 1:02 PM (GMT -7)   
Hi, Jana. The first thing I thought of was a chest ex-ray. I have lung involvement with my lupus. They can see fluid on a simple chest ex-ray. The way you describe the assorted pains in your chest, back, and shoulder are very familiar. If this continues happening especially associated with the deep breathing, that's a simple way to rule that one out. Take care and I hope the problem gets better for you,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 8mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg, DocQLace 200mg, Flax Seed (milled) 2Tbsp


Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/18/2007 4:32 PM (GMT -7)   

Jana,
I was hoping that you had posted again to let us know how you're doing.  I hope that everything is okay, please post when you can.  Hugs!


Gidget^
 
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Clinoril, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Loratab ,Percoset, Toradol
 
There is no psychiatrist in the world like a puppy licking your face.
 
 


JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 11/19/2007 10:25 PM (GMT -7)   
Hello everyone! I am having some problems with the doctors here. They are not listening, and its sooo frustrating! I told my doctor today about my chest pains and she just brushed it off really. Didnt ask me any further questions....nothing. As well i mentioned to her that i thought i had Raynaud's and i said in fact right now my fingers are numb, cold and turning a bluish colour and she didnt look at that either! Problem is, she isnt the first doctor who hasnt listened to me. Im beginning to think that its going to take me dropping dead in pain and screaming before they listen to what im saying. My doctor said "i think all your symptoms have to do with mood". I was like, excuse me? lol. She said im too stressed. Which is so ridiculous! Im a massage therapy student, i get massaged EVERY DAY. And if thats not enough, my class does yoga twice a week, as well everyday we do relaxation exercises and breathing. Also, im already taking Welbutrin (i did have depression, however recently ive been thinking i dont think i need them anymore). Anyways, this doctor told me to keep taking Welbutrin AND to start taking Celexa! To me, this is totally absurd. I am the happiest ive been in sooo long (minus the whole being in pain etc.). But in general im happy. I lost my best friend 4 years ago in a car accident and became SEVERLY depressed and i wasnt even on two antidepressants. Ugh, sorry this has turned into a rant. Im just not sure what i'm suppose to do. Also, she said "you will just have to hang in there until you get better or until you get more symptoms". I was just like ah! you arent listening to me, i just told you 2 new symptoms. Anyways, im getting angry now. If anything else comes up ill post it for sure! But without a doubt, if i get bad breathing pains again im going to the er. even if i have to wait 4 hours....

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/19/2007 10:35 PM (GMT -7)   
I suggest a new doctor if that is even possible. Maybe one associated with a medical school? It would be nice if she listened. Since she didn't the ER might force her to. Make it clear you are happier than you have been in years because otherwise they will blow it off as depression. Here you often wait 4 hours or more to see a doctor at the ER and I am in the US.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/20/2007 8:45 AM (GMT -7)   
Hi JD . . . SO sorry your doctor is SO indifferent.

When she says mood . . . she may be referring to seratonin. My new rheumy actually talked about that. He said that low seratonin can account for huge muscular/skeletal problems. I have a really hard time sleeping and he suggested that eventually we do a sleep study to see what's wrong. But pain also depletes seratonin . . . so although she isn't saying it in a way you could understand, she might actually be right. But having said that, I don't know that Celexa is the best anti-d for that, there are some others like cymbalta that really help even more with pain.

*sigh*

I feel so bad when people get ripped off at their doctor visits . . . we wait so long to get our 5 minutes. Did you go in with your list??? I don't know why, but the written word goes deeper into their heads (most of them). Just a thought. And . . . that chest pain??? ER for you with the next attack!

Some hot tea for you sis!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/20/2007 9:13 AM (GMT -7)   
Jana,
I'm sorry that your appointment did not go so well.  It is so very frustrating when you go into the doctor and they do not listen to you.  It just makes you want to scream!!  Your doctor saying "i think all your symptoms have to do with mood" is just as bad as if she said to you "it's all in your head".  Girl, if you can at all possible find another rheumy RUN don't walk!!!  That comment just proves she doesn't know squat about Lupus.  How dare she say that your symptoms have to do with your mood ... that's like telling someone with MS or Diabetes I think all your symptoms have to do with your mood.
Do you live in the U.S. Jana?  If so, maybe one of the members on the forum can recommend their doctor.  If at all possible, please find yourself another doctor! 
Gidget^
 
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Plaquenil, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Loratab ,Percoset, Toradol
 
There is no psychiatrist in the world like a puppy licking your face.
 
 


JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 11/20/2007 1:34 PM (GMT -7)   
Thank you so much everyone. You are all so wonderful and your comments make me feel so much better.

The whole me taking Celexa thing because of physical depression symptoms i can absolutely understand. Just one problem and that is i'm not depressed. lol. So frustrating. However, im in the process of looking for a second opinion because i actually CANNOT live like this anymore. I can barely function in daily life. I feel like im just dragging myself around everywhere, but wherever i go im not actually "there". Anyways, thank you all for letting me vent to you. Hopefully someone will listen to me and what i'm saying soon.

Gidget- I live in Canada and its somewhat difficult to find a doctor- let alone a doctor who knows what lupus or any autoimmune disease is for that matter. My parents are actually considering flying me to Phoenix to the mayo clinic and just paying the ridiculous amount of money. It would be worth it at this point!

Just a side note on how retarded doctors here are in my experience (im sure they aren't all like this!!)....I had a really bad eye infection in my left eye two years ago and i passed along from doctor to doctor and finally one of them diagnosed me as having herpes simplex virus in my eye. It was the most excrutiating pain ive ever felt in my life. The doctor did absolutely NOTHING. He gave me medicine that made it TRIPLE in severity and then kind of said in a round about way "ooops, i think im making you go blind". then he called a doctor in another city 2 hours from here to get him to see me and they were booked solid and i couldnt get in for 3 months. Long story short...........im only 22 and im completely blind in my left eye because he diagnosed me wrong and did nothing to fix it. However on the up side, i just need a cornea transplant now. But it could be four years until that happens. Anyways just a little side note. Would this kind of infection be lupus related by chance? Its called Acanthomoeba Keratitis

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 11/20/2007 1:45 PM (GMT -7)   
JD19 said...
I can barely function in daily life. I feel like I'm just dragging myself around everywhere, but wherever I go I'm not actually "there".


This description is the kind of thing that Celexa would be able to treat. Even though you don't think you are depressed, it can't really hurt to try this 3-4 weeks and see if you make progress. Sometimes the doctors have good ideas, even if they don't always explain them to us!

Good Luck,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 11/20/2007 8:53 PM (GMT -7)   
Lynnwood, I hope you are right! I think i will give it a try. I hope shes right, but her voice didnt sound hopeful. *sigh* Oh how life is so complicated sometimes

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 11/20/2007 9:02 PM (GMT -7)   
JD . . . I'm SO SORRY about your eye sweetie. That is just aweful. I know people here in the States moan and complain about health-care . . . but they don't see how frustrating it is when there are'nt enough docs or you have to travel for hours to get to your specialists. . . the waiting for procedures is unbelievable. And then there are areas of your country where that doesn't seem to be a problem. I think ginny does well with her medical community. Maybe you could try another area in Canada . . .

PS . . . I was not sad and depressed either . . . but the anti-d was my first real medication and it did wonders. As I said in the post above, that seratonin has a lot of big jobs in your body.

((((((((JD))))))))

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/20/2007 9:40 PM (GMT -7)   
JD,
I am so sorry what has happened to you.  I hope that in the future you will be able to have a cornea transplant.  I feel bad complaining about my health care after the things you have gone through. 
 
How is your chest pain, has it let up at all? 
 
Please keep in touch with us and don't disappear ... and please please take care of yourself and if those chest pains reappear, please go to the ER.
Gidget^
 
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06, Enchondroma on my skull 11/07
Plaquenil, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Pepcid, Folic Acid, Loratab ,Percoset, Toradol
 
There is no psychiatrist in the world like a puppy licking your face.
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/20/2007 10:06 PM (GMT -7)   
I understand about being treated incorrectly and having things go seriously wrong as a result. I was sent home with no treatment and told I had IBS when my gallbladder went critical all because there were no stones. I went to a different hospital and they found the problem, but I became very weak from how bad things got first. I nearly died. Though seeing as I didn't end up dead I ended up better off than you did. I spent from 14 until 28 in so much pain from the gallbladder every couple months I could have cried. Funny thing is during one of the flares the ER doctor offered to admit me to the mental hospital since obviously nothing was wrong with me- yeah I had pain in my right side so bad I couldn't stand and his poking and proding made it absolutely horrid. I got my husband to help me to the car and left. I ended up just suffering through it. I was in a really rural area then with no decent medical care. The last incident was in this area at a supposedly good hospital.

I say if you can find a way to come to the US do so. I have a rheumy here in MI near detroit who is absolutely wonderful. Maybe you could come here instead of the Mayo clinic? It would be cheaper and much faster too. You could likely get in within a month. She is just wonderful and really listens.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


JD19
Regular Member


Date Joined Oct 2007
Total Posts : 31
   Posted 11/21/2007 5:04 PM (GMT -7)   
Redrose- Oh my goodness! The gallbladder thing with no stones happens to me too!!! I cant count how many times ive gone to the er with pain over my gallbladder and they send me home because there are no stones. Do you know exactly what this is? I'm so sorry you have to go through that pain. It is awful!

Also, i'm only 22 so I will have to talk to my parents about taking me to the States because they will have to pay for it. Im in school and have no money! But I am definitly going to talk about it with them. Today was AWFUL.

And just an update.....my chest pain is getting better. It only happens occasionally throughout the day but nothing serious enough for th ER. Thank you everyone! You are all so fantastic! I love all of you!!

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/21/2007 6:34 PM (GMT -7)   
get a hida scan it is pronounces hide AHHH no clue on spelling. It shows gallbladder issues without stones. It is the best test to have done for it. Have you considered pleursy or costrocondritis? Both cause chest pain and anti-inflammatories help.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

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