Keeping it real...

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kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 11/20/2007 10:55 PM (GMT -7)   
Hey everyone -- This is peachy reminding you to keep it real...
 
Yesterday, my little sister from Big Brothers Big Sisters lost her father, who was 38, to complications with AIDS. He died unexpectedly in his sleep. She is 13 years old. I've been with her as a mentor since she was 7. Her mother has been in and out of rehab ever since I've known her and actually went to jail for 6 months for violating probation. She finished her third stint (a 90 day) in rehab the day before he died.
 
Her father was her rock, her backbone. It looks like she and her 16 year old brother will be going to live with their aunt. Despite all of these major obstacles that have been thrown her way, she still keeps a great positive attitude. (I'm not sure if the reality of this has hit her quite yet.) I suspected that he might have been sick, but I didn't ask and he didn't tell. Turns out he's had HIV for five years now. I was diagnosed with lupus three years ago and she saw me go through all that -- the hospital, weight gain, recovery, and me getting somewhat back to normal. (Except for my boobs, of course!) My fear is that maybe she'll fear losing me .. HIV doesn't kill people that often anymore. Lupus (supposedly) doesn't either.
 
When you think your lupus battle is bad, think of the drama that this girl has experienced in her short 13 years and remember how she keeps a smile and upbeat attitude through it all. (Please keep her in your prayers and pray that I will know what to say / do to guide her.)
 
peachy
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/21/2007 1:58 AM (GMT -7)   
She has definately been through a lot. I hope that the move and the shock of all this don't cause a downward spiral for her. She may fear losing people she cares about as a result, if she does there is a chance she will push people away to avoid the pain of loss. Seeing a therapist and having someone she can count on will help a lot. Do not allow yourself to become stressed because that could cause a flare which might make things worse for her as well as you.

On a side note, your signature is over the 10 line limit and you may want to edit it so that the moderators don't have to do it for you. Fastest way would be to use commas between meds and supplements instead of a new line.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 11/28/2007 2:35 AM (GMT -7)   
I had no idea about the signature ... sorry about that! I fixed it.
 
I didn't know her dad had AIDS until after he died. My fear is that she will have this fear of loss if I lose my battle with lupus. So far, I've been doing pretty good overall. I've had minor flares but nothing major during the past year, which is good. I don't take this for granted though -- I know it can be taken away at any time.
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

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