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JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 11/23/2007 3:09 PM (GMT -7)   
Hi! Everyone, i hope all had nice Thanksgiving!!
Now on to my questions maybe someone can help.. Do any of you get severe neck and head pain with your lupus?? I have horrible neck, head, throat pain. I am so tired all the time it isn't funny!! I mean NO energy period!! Most of the time I feel like I will collapse... I have always had some anxiety but now it's full blown panic!! I swear I'm dying everyday. I was on Methotrexate until my last rhuemy left. Do you think this is because of not being treated?? I also get so hot and sweaty it's unreal!! Always lightheaded constantly afraid to be alone!! I also have chronic pancreatitis due to the lupus. I will be re-starting methotrexate soon though however actually afraid to even start.
I sometimes think I must be losing my mind!! Maybe I need a mental hospital?? anyone else feel this horrible or go through this???
Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/23/2007 8:38 PM (GMT -7)   
I have migraines and bad neck pain due to deterioration. I would see if you could get an xray of your neck and maybe an MRI of the head and neck. No mental hospital you aren't losing it mentally. I had some really dark days when I was at my worst. It was horrible. I got through it because my rheumy cared enough to see me frequently and change my meds until we found what worked. I hope others come along who can help more. I am tired and supposed to rest as much as needed.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/23/2007 9:33 PM (GMT -7)   
Hey Cathy,
 
Yes, I have pretty bad neck and head pain.  For me, it's all due to my Fibromyalgia. Also, we tend to store our stress in those upper body muscles.  If you're stressed and fatigued, it will hybernate in the neck, shoulder, head region.  Not nice is it.  I can understand 100%.  I'm in a bad neck state as we speak.  It's been going on for 3 weeks now.  It's exhausting.
 
The anxiety/panic thing is really common too, also in Fibromyalgia.  Have you been tested for that?  It's a pain syndrome that is very often associated with lupus.  If you press on your arms, legs, ribs etc, do you feel like a big bruise?  Any tissue pain at all?  I'd check with your rheumy next time you're in.  The neck/head pain, anxiety/panic symptoms are HUGE Fibro symptoms. 
 
You're not going crazy, just like Redrose said.  It's part of the disease process.  It's just the way it is.  Unfortunately.  If it gets so bad you can't manage, please see someone.  I saw a psychiatrist earlier this year and instead of putting me on another medication, she taught me how to turn off the tap.  The tap being our adrenal glands which produce cortisol, the "fight or flight" hormone.  That is what you're feeling when you get anxious or panicky.  Too much adrenalin/cortisol in your blood.  It's a horrible feeling isn't it. 
 
Best thing for me is to take long deep breaths, just calm the heart down, calm the breathing down.  Put your mind into a peaceful place, think about peaceful, joyful things.  Just remember, you're not in any danger, so turn off the tap.  I say that to myself when I feel the anxiety come on.  I just say, "Okay Gin, turn off the tap.  You're not in danger.  You have nothing to run from.  You're in a safe place. Calm down, turn off the tap."  It works!
 
Have a peaceful evening Cathy,
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 11/27/2007 8:19 PM (GMT -7)   
Thanks for your replies ended up in hospital from sat. until today had to have PPN due to mal-absorbtion from the pancreas that lupus has messed up need prayers hugs
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day

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