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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/23/2007 7:37 PM (GMT -7)   
Screwed up eating gained 10 lbs and tapering down.  got two extra pills and don't know where I missed them.  Really puffy this time.  Think gi and ut are liver problems getting worse from liver forum and not ai.  I can think some though.  Even played scrabble. scared some and sad a little sad   
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/23/2007 8:29 PM (GMT -7)   
I am so sorry this is happening. I wish they could find a decent treatment for you.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/23/2007 10:27 PM (GMT -7)   
Thanks redrose, hope your holiday was "relatively uneventful" if you know what I mean. My bf's stepdad and 16 yo son (bf half bro) got in fight and drunk mom watched. Stepdad carted off to jail, sure bf's mom will bail out immediately. I feel sorry for the kid but can't take that on. It'd be like inviting them all to my house. Was glad stayed away from that.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/23/2007 10:28 PM (GMT -7)   
I'm going to ask them about Lasix and aldactone, or at least some kind of stronger diuretic and an MRi of liver which has never been done. Any info on lasix would be appreciated.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 11/24/2007 12:18 AM (GMT -7)   
Not sure what to say about lasix except that it's effectiveness wears off unless higher and higher doses are used. It used to be the lowest dose would cause me to lose 20-30lbs the first week and 10-20lbs the next week then 5-10lbs the week after that. Then I would stop lossing and level off. A few weeks later all the weight would come back. But my blood pressure would be normal again. Last time it took 4xs the original dose I took to get 15lbs off and get my blood pressure down. I lost the 15lbs in 5 days but it came back 2 weeks later. For some reason getting the water off for a short time makes my blood pressure normal again for months at a time. I have no clue how it will work for you but have been told by several doctors that long term it is not a good choice that there are others that work better long term and that don't require jumps in dosage quite as fast or as often. Lasix is very effective though when it works for you.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 11/24/2007 7:55 PM (GMT -7)   
Thanks redrose. I guess that and aldactone--a growth hormone type medicine-- are standard cirrhosis treatment. The side effects to lasix seem a little scary and I don't have super high blood pressure but it is climbing with all the water I'm now retaining. Maybe it will work, maybe not, but might be worth a try. I bet my water will come back too. I'm starting a vitamin E and omega three regimen, 1000 IU vitamin E a day, which is supposed to be very very effective in reversing my type of liver disease. I'm on a low dose now and it sure has helped the gi tract. Apparently, I don't process these vitamins from fats right and run very deficient due to my NASH, so this is very effective. Thanks again for the info, it is really very helpful and hope you and the baby are resting peacefully after the holiday.
Love, Marji
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn

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