UCTD, and Sjogrens

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canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 11/27/2007 9:23 PM (GMT -7)   
Hi everyone,
 
So was just coming to terms with UCTD( lupus) dx and dealing with the plaq feeling life half a human and BANG sjogrens rears it's ugly head. I am wondering if any of you have any tips for dealing with the eye part. My mouth I drink lot's of water, chew gum etc. But my eyes ITCH 24/7 no matter what I do.
 
Anything you can suggest would be appreciated
 
Angela
UCTD Plaquenil 400 mg and  Diclofenac 150 mg on really bad days Tylenol Arthritis.  and omega 3 with Moducare supplements


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 11/28/2007 9:23 AM (GMT -7)   
Sjogrens is terribly annoying, at least for me. I use the Biotene products (mouthwash & toothpaste) for my mouth. I use Premarin topical cream for vaginal dryness. For my eyes, I'm currently on a steriod eye drop and will start Restasis next week. The OTC eye drops didn't help much. My eye doc, at my annual exam last month, said it was time for Restasis. My problem was stinging/burning though, not really itching. You might want to schedule an appt with an eye doc to check it out.

For those of you that have taken meds for Sjogrens (I believe it's "Ev" something), does it really help?
Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/28/2007 4:59 PM (GMT -7)   
I was going to recommend seeing an opthamologist too to get your eyes checked. For some reason my Sjogrens has been getting a lot worse lately. My eyes are so dry in the morning that they feel stuck shut and my nose and mouth are even more dry than usual. It could be because the weather is colder and more dry. All I know is that it is very uncomfortable.

I used restasis for a while and I think it helped some, but it was really expensive so I have been trying natural tears for extra dry eyes and it is almost like a gel. It does help, but I am finding I need to use it more often now. There is also a gel I put in my nostrils from the brand Ayr. The nasal spray doesn't help, but the nasal gel does.

I hope you can find something that helps. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 11/28/2007 5:40 PM (GMT -7)   

I have my opthomalogist appt next week. The crappy part for me is Restasis is not available in Canada it's supposedly coming but who knows how long that will take. I finally found some relief last night in the form of a person humidifier that helped I woke up this morning and felt a lot better then I normally do in the morning.

Hippi you are not alone my eyes are terrible in the morning

 


UCTD Plaquenil 400 mg and  Diclofenac 150 mg on really bad days Tylenol Arthritis.  and omega 3 with Moducare supplements


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 11/29/2007 7:21 AM (GMT -7)   
Angela, you brought this subject up at a time when my Sjogren's is probably at it's worst. Even drinking a lot and sucking on candy isn't working much anymore. I feel like there is no moisture in my eyes, mouth, or nose. I see my rheumy in a little over two weeks and will be sure to talk to him. I'm due for an eye doctor appointment soon too. I think I'll get my humidifier out tonight and see if that helps. Hopefully we will both find some relief because this is very uncomfortable.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 11/30/2007 2:27 PM (GMT -7)   
Hi, Angela, Jeannie, & Hippi. Just a note about the eyes...Before I was even diagnosed with lupus and sjogren's, I already suffered from extreme dryness in my left eye especially. That eye does not close completely due to trying to repair third nerve damage from my car wreck (head injury) with one of the surgeries to the eye-lid itself. I have tried lots of things on the market. The artificial tears have never done anything lasting. I have to tape my left eye closed each night before I go to sleep, but I also put a lubricating gel called "Paralube Ointment" on it. This gel contains nothing damaging. It is mainly petrolatum based. It is one of the cheaper gels on the shelf. I get it a Wal-Mart. Since I sleep with that in my eye and have it taped all night long, I don't have much problem throughout the day unless it comes from another source. The gel seems to maintain the moisture much longer than the tears, which for me are gone within just a few blinks. An Opthamologist can provide something stronger to help calm the irritation to get you back to a point where you could just use something simple like this. I hope this helps.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 8mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg, DocQLace 200mg, Flax Seed (milled) 2Tbsp

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