Can Lupus cause a mini stroke or any other type of stroke

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 815
   Posted 11/28/2007 10:25 PM (GMT -6)   
My dr told me right before Thanksgiving that I've had a mini stroke and we're not sure when. She had me get an MRI because of things I've been going through such as memory lost and aches and pains. I had one back in 2002 and no kind of stroke showed up but now it has.
 
So can Lupus cause this? I'm going on the 18 of Dec. to have an ultrasound of my neck to make sire that the blood is flowing properly. Then off to a specalist. Another MRI in 3 months biut first I'm going to see if I can get state help with bills.
 
Veronica

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5511
   Posted 11/29/2007 12:02 AM (GMT -6)   
Hi Veronica,
 
You have brought up a very valid question.  I had a stroke in 2002.  2 years after my diagnosis of lupus.  I have the antiphospholipid syndrome or APS.  It's a protein that lupus will create that makes the blood thick and sticky.  That syndrome, along with microscopic pieces of my mitral heart valve, caused the stroke.  My mitral valve was inflamed.  So the little pieces sort of broke off into my blood stream.  The inflamed heart valve disorder is called Libman Sach's Endocarditis. 
 
So that is one cause for a stroke with lupus.  Other causes are vasculitis.  Or inflamed blood vessels.  If you have that along with CNS lupus, that is a risk.
 
Another one that is not mentioned very often because it is rare, is the health of our vertibral arteries (located on either side of the vertibrae in our neck).  They're big, major arteries that supply a lot of blood to the brain.  If the arteries are dissected in any way - meaning if they look like a wiggly worm with lots of bumps and narrow places, then that can be a cause for stroke as well.  I had that!  Didn't know it until I had a routine MRI to check on my stroke recovery.  Within a year, the arteries had healed themselves.  It was weird.... That is why I can't have manual neck adjustments at the chiropractor.  Big no no.
 
Having the ultrasound done on your neck is a very wise thing.  My guess is that they're looking at the vertibral arteries, the Circle of Willis, and your carotid and jugular veins.  If you "google"  Circle of Willis, it will explain everything to you. Easier than me typing it!
 
Mini strokes, or TIA's (trans ischemic attacks) are serious.  There is really no such thing as a mini stroke. Every stroke, needs to be taken equally as serious.  The word mini should be removed.  Every stroke has complications and side effects.
 
Mine was considered "mild".  But it left me with a seizure disorder, balance problems, and a slightly crooked smile.  I don't have as much muscle control on the right side of my face. It's barely noticeable, but I do smile differently now.
 
So yes, lupus can cause strokes. No doubt about it.  Make sure you get tested for APS.  First and foremost.  It's treated with daily aspirin for mild cases, and blood thinners like Warfarin, Coumadin or Heparin for more serious cases (that's me).
 
This is a lot of information. I hope I haven't put you in a panic.  But knowledge is power!  Take this info and ask your doctors about it okay. Get them to explain everything to you in terms that you can understand.  So many doctors talk to us like we're doctors ourselves.... Annoying.  If you don't understand something they tell you, ask them to explain it in a different way.
 
Please don't hesitate to ask anything else about this okay.  I know there are others here who have had strokes too.  Keep us posted on how you're doing okay,
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1400
   Posted 11/29/2007 8:54 AM (GMT -6)   
Hi Ginny and Veronica.  This is an important topic for me because my neurologist suspects I had a TIA.  Ginny, I really appreciate your explanation.  I'm a med tech, so I understand the whole
APS/INR issue, but I know nothing about mitral valve, carotid,TIA
relationship.  I had an EEG a few weeks ago and go back to the neuro in Dec.  My brain MRI a few months ago was normal.  Thanks again for the info.  Love, Butterflake 
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 815
   Posted 11/29/2007 9:30 PM (GMT -6)   
Ginny thank you so much for your info. I am taking this serious because I want to be around to watch my grandsons growup and to see my great grandchildren.

She also is setting me up with a neurologist and wants another MRI in 3 months. I read on line that 3 months to a year you can have a major stroke. That worries me alot since we don't know when I had the one stroke and I watch children in my home. I have been doing a precation measure though with my neibors incase my b/f isn't home.

Veronica

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5511
   Posted 11/30/2007 10:26 AM (GMT -6)   
Hi Butterflake and Veronica,
 
You're welcome.  It's so important to know what you're dealing with when it comes to lupus and strokes.  There are so many variables.
 
I hope that you both get quick answers and proper treatment to avoid any more TIA's or a full blown stroke. Just remember, if you have any stroke symptoms, even small ones that don't last for very long, get to the ER!!
 
I've attached a link to a couple of websites for everyone.  Learn what the signs are, and Veronica, I am soooo glad you have your neighbours to help you, just in case.  We all need emergency contacts when it comes to lupus.  A medic alert bracelette is very important too. 
 
Love to all,
Ginny
 
 
 Signs of a TIA - http://www.americanheart.org/presenter.jhtml?identifier=4781
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 11/30/2007 2:55 PM (GMT -6)   

Great Job Ginny!! Very informative.  Yeah those buggers can happen.  Mine come and go after years in between episodes.  Also watch for those seizures that can sometimes come with the mini-strokes.  They were mild for me but brought on a lot of havoc because I wasn't aware I had them when I was driving.  A few tickets later... luckily only mild accidents.  There weren't any warning signs with the petite seizures.  Just cautionary advice. 

Veronica - My doctor just told me to take asprin religously and that ended up working out the problem.  Not sure why they elected not to use the Heparin, but you should look into preventative medicines until they find the cause of the TIAs.  Also RESTING and deep breathing exercises helped some I noticed.  They seemed to come on more with activity and stress. If they come on back to back or you feel/look very ill rapidly (white in face/lightheaded, etc.), get to the ER and/or put family, etc. on alert.  When I got the dementia they came on very rapid and then a big one where I lost consciousness.  My friend also ended up with a major stroke in a similar way.  (I have CNS Lupus and she had Kidney Lupus).

I hope you get treated early to avoid any potential serious consequence like my friend and I went through.  The doctors wouldn't listen to me and my friend's came on very suddenly so we didn't have your luck.  Sometimes the best thing is a warning then early treatment.  Kind of an odd blessing I guess.  I wish you the best - Kristin


 
  Dx:  Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 23, 2014 5:07 AM (GMT -6)
There are a total of 2,249,089 posts in 250,188 threads.
View Active Threads


Who's Online
This forum has 157440 registered members. Please welcome our newest member, herbalextract.
232 Guest(s), 6 Registered Member(s) are currently online.  Details
Summersun, Wrap_down_unde, THE HAPPY TURTLE, Wondering161, ChelseaFootball, paulroy


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer