New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 11/30/2007 6:51 PM (GMT -7)   
So, since March I've pretty much been in a flare.  My Dr. recently got me to try Methotrexate instead of all the prednisone.  It's starting to kick in, I'm not quite as fatigued, but as you all know with Lupus fatigue is still going to be there.  A few weeks ago I missed work due to pain everywhere in my body-it was awful and I rated it as a 9 on the pain scale.  I had enough.  I finally made an appointment to do accunpuncture at my local clinic, just to try everything.  Well, I went yesterday and was surprised that it did not hurt at all.  That is a major misconception.  Everybody thinks that its like getting shots in your body all over, and really the needle is just under the skin.  Getting a tatoo stings-this only felt like a little pressure.  I had 45 needles in me between my legs, feet, arms, hands, and ears.  10 of those needles were in my ear.  My ear did hurt a little bit, since it was in the cartlidge-and I did get a small bruise from it.  I have to say though that I think it was worth every penny.  I felt more relaxed last night when it came time to go to bed-so relaxed that I slept all night-I even slept through my fire pager going off (that's almost impossible)  I haven't felt my muscles this relaxed in such a long time.  Most people don't feel the effects from accupuncture right away, and the clinic is actually going to call me in a week to see how I'm doing, so I'm guessing I should expect more positive changes from this.  My goal is actually to get off the prednisone and down to just the Methotrexate for now.  If any of you have thought of doing this, I would recommend it.  I paid for mine, but found out that my insurance company actually covers the cost and I will get reimbursed-and more and more insurance companies are covering at least a portion of the cost.  I'm very excited for the future to get feeling better and think that I may be on the right track now!
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 11/30/2007 7:41 PM (GMT -7)   
Firebabe,

I have been doing accupuncture for about 6 months was once a week now down to 2 times a month. I have almost 0 joint pain now since doing that. The plaquenil took it to a minimal amount of pain and the accupuncture does the rest. By the time it is for my next session I have some joint pain in my hands and toes again but once I get the treatment it's gone again until the next one. Plus I have NEVER slept like I do the week I get the treatment done. Yes and my insurance company pays for it also. I now have my mom doing it and it has greatly reduced her hot flashes and menopause symptoms.

Angela
UCTD Plaquenil 400 mg and  Diclofenac 150 mg on really bad days Tylenol Arthritis.  and omega 3 with Moducare supplements


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 12/1/2007 7:30 AM (GMT -7)   
I'm excited to hear that you have had good results with it.  I think that will help keep me on the right track.  It's been 2 nights since I had it done and I have slept so well.  It's unbelievable!:)
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


Jenny S.
Regular Member


Date Joined Oct 2007
Total Posts : 80
   Posted 12/4/2007 4:48 AM (GMT -7)   
Is accupuncture something that you seek on your own, or did your Rheumy reccomend it? I've been in a flare for months now & am willing to try anything that will get me back on track.

Thanks!


~Jenny~

I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)·Lupus(2001)

Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg

  


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 12/4/2007 6:34 PM (GMT -7)   
HI, actually a friend of mine who has MS told me that she's been doing it for a while now.  I've been in a flare for quite some time and been in miserable pain, so I figured having it done couldn't make my pain any worse.  When I mentioned it to my rhuemy, he didn't have too much to say-however, he wasn't against it.  He is trying to get me off of prednisone, so I think he knows I'm trying to help myself as well.  I mentioned to my chiropractor this morning that I went and he thought it was interesting-especially the fact that I've slept so well.  I'm going to do accupuncture again.  I think it has a really good effect on my body and mind. 
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 12/4/2007 6:57 PM (GMT -7)   
I worked with a lady who has a positive ANA and positive anti bodies for 32 years.  She does not tell anyone what speific iillness she has as she has no idea really over the past three decades she has been too 48 rhummys in three countries. She has been told she has every type of AI disease possible including HIV. She finally gave up about 12 years ago on trying to find a specific dx and just decided to treat each individual symptom as best she could. Five years ago she started doing accpuncture and told me that it helped her so much with her total over all well being and made her feel so much better in all areas that it made the symptoms she did have that much more tolerable. So that is why I tried it and now I see what she means.  I am not saying it is a wonder cure but for ME it makes life that much more tollerable and comfortable.
UCTD Plaquenil 400 mg and  Diclofenac 150 mg on really bad days Tylenol Arthritis.  and omega 3 with Moducare supplements


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 12/4/2007 7:27 PM (GMT -7)   
I should clarify my earlier post... this lady still see's a rhummy on a reguler basis and takes all her perscribed meds as well
UCTD and sjogrens ( terrible dry mouth) Plaquenil 400 mg with 150mg of diclofenac as needed, all biotene products and refresh liquigel eye drops 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 7:25 PM (GMT -7)
There are a total of 2,731,917 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151133 registered members. Please welcome our newest member, lizabehrher.
307 Guest(s), 12 Registered Member(s) are currently online.  Details
bluelyme, jennydancingfish, Xmaslover, JEN02, madisongrrl, Ljm2014, poohcheez, Mustard Seed, kcsmith72, multifacetedme, julymorning, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer