how are we the same? different?

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misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 12/1/2007 1:23 AM (GMT -7)   
hey everyone i have heard that lupus is common in women of specific ethnic backgrounds and i was wondering if there was any truth to it.

i havent really met anyone else with lupus (well maybe i have, but no one can tell when we're sick!)
i myself am of mixed race...chinese, egyptian and caucasion. i think that i might have been genetically predisposed to the disease not becasue of my mother's asian heritage but from my fathers side because he had a history of cancer and my grandmother had rheumatoid arthritis...

i was just wondering if anyone else would like to share their ethnic background, and what they personally think might be the cause of their genetic predisposition to lupus....

I know there was one time a few years ago when i had what i thought was an awful cold or flu...i was so sick i thought i had mono but all tests came back negative. since that incidence i was much more tired, and i had a blood clot a few months after. and then i got hit with so many other symptoms and events that finally led to my diagnosis.

does anyone else have something they think might have "sparked" or set off the disease? i would just like to hear about other peoples stories.

sometimes i think about had i done something differently...if i hadnt caught that could...would i not have lupus today??
i kno this disease is both a blessing and curse for me...i am so frustrated at times, the pain, the medicine, everything...but it also keeps me grounded and focused on the things and people i should really value in life but are sometimes hidden by other superficial distractions..

anyways... please share your stories if you are comfortable enough to do so! it is nice to hear from people i can relate to :)

Post Edited (misscali415) : 12/1/2007 1:26:57 AM (GMT-7)


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 12/1/2007 7:51 AM (GMT -7)   
Hi misscali, I've read the same thing about ethnic background and lupus. I don't think ethnic background plays a part for me - I'm caucasion. But, I do think I was predisposed to this disease.

My aunt, who recently died, had lupus and there are a lot of people on my mom's side of the family who have rheumatoid arthritis. For me, things seemed to change after I had a bad case of mono a little over 20 years ago. It took me a very long time to recover and I never really felt the same again. For the first few years after getting mono, I constantly got strp throat and would have times where I would get really sick and my blood count would be all messed up. Eventually I got a little healthier agais (after about 7 years) and was able to get really into fitness and running, although I still got tired more easily than the average person.

THen almost exactly 4 years ago, my kids both got sick with a respiratory virus and while they were sick, I felt like all of my energy was completely drained from me. All three of us would lay on our big couch and I felt so tired that I felt like I literally melted into the couch and could not get up. I never got my energy back again and a few weeks later, I started having periods of weakness, diziness and muscle and joint pain. It took me two and a half frustrating years and 3 rheumies before I got an accurate diagnosis.

THis is a great topic and I will be interested to see what other people have to say. My old pcp (who moved) told me that she had been reading studies that showed a connection between having mono and later developing autoimmune diseases.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 12/1/2007 8:16 AM (GMT -7)   
Good topic, misscali! I started noticing slight symptoms after the birth of my dd 25 years ago. But, it wasn't until about 10 years ago that I started deteriorating fast. I had a severe bout of the flu and just couldn't seem to get back to normal. The really bad thing was my allergies went beserk! It took 4 years from that time to get the SLE diagnosis. I have three sisters with autoimmune problems and both my mother and grandmother had autoimmune problems. So, I definitely see a genetic link! BTW, I am caucasion, with mostly german ancestry.

I know this is off topic, but I will add this to the thread, anyway. I am also celiac (gluten intolerance), and on another board, someone had written in that her old PCP (by old, I mean elderly - he'd retired) had told her that celiac as well as many autoimmunes are easily told by looking at a person's hands. ?? Apparently, he'd heard (and claimed found to be true) that if your pinky finger ends before the final joint of your ring finger, you are prone to these type of problems. I scoffed, but have since been checking it out and he may be on to something!

Thanks for the topic, I am curious to see what others have found!
Good Luck.
Fran
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Meds: Plaquenil, Zyrtec, Prilosec, Nasacort, Prednisone, Prozac daily.
Meds: Epinephrine, Benadryl, albuterol (as needed).


gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 12/1/2007 10:27 AM (GMT -7)   
I'm Italian and I have several family members with RA or Lupus. I know that there seems to be more people of African decent with Lupus. My family comes from Sicily and Southern Italy which is pretty close to Northern Africa and there is ancient history of invasions from North Africa. But that being said, it may have nothing to do with my family history of Lupus!

There may not be anything to it, but my symptoms started showing up several years ago soon after I started a new job and they required me to have a measles/mumps/rubella immunization because they had no proof of my childhood shots and diseases. They also would not do a titer. Later that same year, I had the flu for the first (and only) time in my life. I have been very leery of immunizations ever since. I don't get flu shots - much to the dismay of many of my doctors and co-workers (I work in health care.)

Btw, my pinky fingers are shorter than my ring finger joints!
Gloryroad


NanaBee
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Date Joined Jun 2005
Total Posts : 533
   Posted 12/1/2007 2:43 PM (GMT -7)   

Hi,

I think that I was genetically disposed -my mom had Type 1 diabetes which is an autoimmune disease.   But, I also had Mono twice.  Once as a teenager and then again in my early 20's.  After having it the second time I never really felt well, but didn't find out until 3 years ago that I had MCTD at age 46.

My pinky ends before the joint on my ring finger.  Interesting theory....  Hubbies ends right at the joint.

 

Mary Ann


 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Sleep Apnea - February 2006
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 12/1/2007 9:04 PM (GMT -7)   
Greetings! I am caucasion and of German ancestry (mother is German and father is half German) and my Oma (maternal grnadma) had RA. I have always had many strange medical problems but I think I had my first, full-fledged flare shortly after my hysterectomy at age 40. I had a positive ANA at age 38 and my doctor had suspected lupus or hypothyroid since that time. I didn't have enough symptoms until age 45, however, so it was a long time until I received treatment.

Interestingly, my pinky finger is shorter than my last ring finger joint - mmmm, VERY interesting.
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 12/1/2007 10:57 PM (GMT -7)   
thats so interesting!
I like hearing everyones stories. My pinkie ends right before/on the crease...
Its funny that none of us necessarily have african heritage because it is supposed to be most common in africans and asian ancestry. I guess we all have some kind of genetic predisposition to the disease in our family history, but then again, who doesnt have someone in their family who has some kind of disease right?
I think we have all had some kind of really bad sickness in which we never fully recovered tho...this is so interesting to me though i cant wait till more people respond!

Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/2/2007 5:56 PM (GMT -7)   

This is a very good topic!

I'm caucasion. Scottish and British heritage.  No one else in my family has any type of autoimmune disease.  We've researched the generations before me as well, and no one seems to have this type of medical history.  Aren't I the lucky one! LOL.

Triggers for me are severe strep throat as a child, too much sun (I'm a redhead.  Didn't wear enough SPF, spent a lot of time outdoors as a child), had a disjointed childhood. Lots of moving, parents separating then getting back together many times. Traumatic.

Ummmmm, had surgery to treat TMJ when I was 16.  First signs of fibro with that ordeal.  Hard to say really what the trigger was.  Could have been none of these, or all of them!

I don't have the pinky finger thing.  I found that very interesting!

Ginny


I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 12/2/2007 6:37 PM (GMT -7)   
OK, that pinky thing is weird...mine is shorter too...
I'm caucasian...Apparently the 5% of caucasian women who get lupus all belong to this website!  lol  
 
My father was half Swedish.  But - I think my predisposition to autoimmune disease comes from my mothers side.  My half sister has RA (really bad).  Now, she is 16 years older than I and had polio when she was little and has been told there is a connection between polio and RA.
 
I'm 44, diagnosed this past July with SLE.  I've never had mono.  Had strep several times in my 20s.  I was treated for about a year & a half for tennis elbow.  Finally, over the summer (lots of time in the sun - we have a pool) and after a huge amount of stress at work, all heck broke loose.  Got the multiple joint pain and the PCP sent me for an arthritis panel.  After that, things moved pretty quickly.  And, as they say, "the rest is history".
 
I think if you were going to get lupus - you were going to get it.  I don't think anything would have changed it.
 
I agree - about the blessing and a curse thing.  Well - I haven't really got to the "blessing" part yet... but I will agree that it forces you to change your habits and your priorities.  Maybe someday I'll see it as a blessing.
 
And - I also agree about the frustrations...I was the queen of multi-tasking!  Last week...I stood in my kitchen staring at a meat fork for like 15-20 seconds because I couldn't quite figure out what I was supposed to do with it. 
 
Right now, the fatigue is what is on my nerves.  I'm sick of being so TIRED!  I took a two hour nap this afternoon and I'm ready for bed again!  aaaarrrrrrgggggggghhhhhhhhhhh. 
 
As for the meds...I guess I've come to grips with those for the most part.  Although - I've started to wean down the prednisone because it's giving me a tremor and I'm not interested in that.  But - getting off that is a long slow process.  The rheumy had put me on darvocet to try to help with joint pain and that caused headaches for two months that made me about want to put a bullet in my head.  Luckily he sent me to a neurologist who figured out what it was, gave me yet MORE meds and fixed the problem.  The methotrexate seems to make me pretty tired - but I'm dealing with that.  I figure...if the meds are going to keep me from having organ involvement - I'll swallow them.
 
That's my story... 
 
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/2/2007 8:11 PM (GMT -7)   
This is all really interesting. I forgot to mention in my other post on this topic that my 10 year old son has also developed JRA or some type of arthritis and/or connective tissue disease - the docs can't all quite agree on what he actually has. His seemed to have started after he had mono when he was 7, which is a really young age to get mono. Now he gets strep throat and pneumonia at the drop of a hat. Luckily my 6 year old daughter seems very very healthy, so that's a relief.

I can't tell with my pinky - it seems to come right to the crease of the top knuckle of my ring finger. I meant to check my son's fingers, but forgot.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



lupus fighter
Regular Member


Date Joined Nov 2007
Total Posts : 50
   Posted 12/2/2007 9:43 PM (GMT -7)   
 Hi I am an African American. I kept getting flu like symptons that would not go away, which lead to pneumonia, and lots of swelling and joint pains. I had been having a lot of swelling and pain in my hands and wrists I could not open jars. My doctors thought I had corporal tunnel syndrome. After being hospitalized my doctors begin to make the connection with the joint problems and swelling after my tests Finally Lupus Sle January 2006. I recently found about my grandfathers neice died in her 20's because of Lupus and kidney problems. It seems we are the only two in my family that I am aware of. One of my doctors an older gentlemen looked at my fingers and my skin and said he thought I had lupus. He was the one that wanted to have me tested while in the hospital and recommedned a rheumy. I have long slender fingers and yes my pinky is shorter. I never could stay much sun I would always develop a really bad rash.

Loving Life 
 
 
Diagnosis Lupus Sle 2006, Fibro 2006, Nephirits 2007, anemia 2005,  Hypertension 2006.
 
Plaquenil 400 mg, Prednisone 15 mg, Cell Cept 3000 mg, Diovan 320, Procardia 120 Mg, Fosonopril 80 mg, Iron supplement, Calcuim W/ Vitamin D, Folic Acid, Tramadol


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/2/2007 9:56 PM (GMT -7)   
There are statistics that show that lupus favors asian, negro, and American Indians more than other groups.  It also favors women 9 or 10 to 1.  No one really knows why since they are still trying to determine what the actual disease mechanism is.
 
I am a man and my ancestory is Scotch/English.  If you go back almost a 1000 years ago I am probably descended from Vikings so I don't fit the stats very well at all.  I also got it later in life (almost 63).  Don't seem to fit the patterns at all.  I have a younger sister who has a mild case of lupus but no other family members in known history have had an autoimmune disease of any kind. 
 
The thinking is that all of us have a set of genes that predisposes us to some kind of a trigger or triggers in our lives.  Auto immune diseases (not a particular one) have been shown to run in families.  In other words, one member can have lupus, another RA and another something else.  Not a true genetic disease and not all members will have exactly the same genes or the same triggers.
 
There is also some evicence that initial triggers might not be quite enough to display symptoms and it might be a long time between those events and when symptoms are displayed.  That is why it can be difficult to determine the actual triggers.
 
There has also been evidence that in the last 3 decades or so AI diseases (except RA) are on the increase.  Some of the thinking is that we have been exposed to more environmental pollutants and food additives and even viruses from far away places.  Actually, most flu viruses are thought to originate in China from traditional farms where people, hogs, and poutry all live together.  No one is really sure on why AI diseases are on the increase....maybe it is just that they are finally being diagnosed and in some cases just recognized.
 
In my case of MCTD (lupus, scleroderma and polymyositis) there were no obvious triggers.  No cancer, virus, stress, etc.  However, I believe that it had been lurking for at least 15 years and dated to a period of time when I had 2 bad viruses and lots of stress.  However, except for mild anemia and low platelets I remained asymptomatic until 2005.  Nobody has been able to answer my questions.
 
Most likely there is nothing that we have done that would have prevented lupus.  There are many who have myositis (inflammatory muscle diseases like polymyositis) who believe their trigger was a drug....a statin or cholesterol lowering one.  Researchers know that they cause muscle problems but not if they actually cause myositis. 
 
Gene researchers are just now beginning to tackle the puzzle of genes and auto immune diseases.  Hopefully, in a few years there will be some answers and some hope for new treatments.  Lupus and RA will probably be the first as more money is being pumped into research.  Myositis diseases are much rarer and are the poor step children to lupus.
 
I believe that for the vast majority of us the acutal cause is an inherited set of genes and the triggers will never be known.  Some people believe that one thing or another was the cause or trigger but there is usually no hard scientific proof.  Until researchers identify the genes and determine the cellular chemistry that causes our disease all of us are just guessing.
 
Hang in there and deal with it as best you can and define a new normal for your life.  I have gone from near death, being a quadriplegic (lost 40 lbs of muscle in a week), and being unable to swallow anything just 2 years ago to leading a fairly normal life.  Not the same as before but good.  I still hope to recover and return to "normal" but age is against me now.  Despite that I do everything I can to recover and also enjoy life along the way.
 
Good luck.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 12/2/2007 10:55 PM (GMT -7)   
hey everyone!
bill- am i so sorry about everything youve been though...reading your story put a lot of perspection into my condition. I mean I have gone from multiple blood clots to e.coli and end stage renal failure and dialysis back to realtively healthing and active. WE all have problems and it is wonderful that we are all here to support eachother.

one of my biggest fears: i am 20 years old and have 2 blood clots, high liver enzymes, high cholesterol and have recently recovered from renal failure. I have a history of RA and cancer in my family which means like likeley hood of developing RA or cancer are much higher.

however, I also believe that everything that happens to us makes us stronger people. we have a perspective on life that no one will every understand. we are wise and strong beyond anyone else's comprehension. and we are humbled by are sickness and strive.

*are the symptoms of lupus different in differene races of people? are some races more likely to have discoid, or sjogrens...and are others more likely to have lupus with kidney involvement etc? Lupus is such a mysterious disease and manifests itself in everyone differently. it is intruiging to discuss our differences and similarities. we can all relate although we all have different experiences with this volatile disease....

I hope to hear more from all of you! its comforting...

redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 12/3/2007 12:51 AM (GMT -7)   
I am of mixed heritage. As far as the caucasion side my family comes from a bunch of different nations, I also have native american, and also a small amount of asian. I think I had a genetic predisposition because several different AI diseases have shown up in my family over the years. Cancer also runs in my family. I have been sick since I was born but I did not develop enough symptoms of lupus for a diagnosis until I was 14 or 15. I was diagnosed at 27 1/2. I don't know what to think.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/3/2007 6:50 AM (GMT -7)   
I have never seen any studies that showed that the symptoms of lupus differ from one race to another....just that there is a difference in the incidence of lupus.
 
Keep in mind that these auto immune diseases are NOT truly hereditary and you might not get RA. There have been good strides made in the treatment of RA and even more so with cancer of almost all types.  If you are taking anything to suppress your immune system you are at a slightly higher risk anyway.
 
Sorry you have to deal with so many things at such a young age.  My wife and I were talking last night about how it is easier to deal with something like lupus when you are older.  There are so many more demands on a younger person and it is much more difficult to deal with the psychological part of disease and how it will affect your future.  Most of my life is past and I do not have to deal with dating, a young marriage, raising a family, school, financial uncertainty, a career, and a chronic disease.
 
I can only say to take things a day at a time and try not to project how this will affect your future.  Easy to say but very hard to do.  There is so much research going on and you will have the benefit of new diagnostic means and treatments in the next 10-20 years. 
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


misscali
Regular Member


Date Joined Feb 2007
Total Posts : 154
   Posted 12/3/2007 6:37 PM (GMT -7)   
hey bill, thanks for the words of encouragment. sometimes i am thankful that i got sick in a time where medical advancements are moving at such an amazing rate. I can only hope that within the next few years they will have even more treatments that might be less physically draining and detrimental to our bodies.
just a few years ago i was afraid i wouldnt be able to have children on my own because i would have to come off coumadin and take shots of lovenox (which i am allergic to).
i have recently been put on a new drug called Arixtra which is a blood thinner with once a day subcutaneous injections. Since it does not contain any form of heparin I now can take that during my pregnancy (if i ever do decide to have children of course)
anyways i think its important for all of us to stay up to date on the medical advancements that are going on in the lupus world :)

Heidi55529
Regular Member


Date Joined Mar 2006
Total Posts : 147
   Posted 12/3/2007 9:13 PM (GMT -7)   
This is an interesting thread. =)

I'm Chinese and I don't think ethnicity played a role in my case. No one in my family has any auto immune disease. So I'm the odd ball one in the family. I'm not exactly sure what trigged the lupus to become active but it happened very fast. Symptoms started with minor joint pain and fatigue and got progressively worst within 4 weeks. Three doctor appointments and bloodwork done. And by the time I was in such excruciating pain I couldn't even walk, I was admitted into the hospital in a major flair and spent almost a month in ICU. Two years later, I'm still in a flare. Previous to all this, I was a very healthy and active and rarely ever got sick. So go figure, just my luck! LOL.
I was diagnosed with Lupus with Antiphospholipid syndrome in Nov 05.
Current list of medications includes:
Cellcept 250mg/4 capsules twice a day, Prilosec 20mg/1 capsule once a day, Plaquenil 200mg/one tablet twice a day, Metoprolol 25mg/half tablet twice a day, Prednisone 7.5mg/one tablet once a day, Coumadin as directed, Tetracycline 250mg/ two capsules twice a day, Midrin as needed for migraines, Magneseium supplement daily
-Avita cream, Clindamycin lotion, triamcinolone ointment daily to control skin rashes.
-Rituxan infusions twice every six months in March and September


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 12/3/2007 9:20 PM (GMT -7)   
Heidi,
 
Stats do not tell you anything about an individual case...just that there are statistically more of certain groups that get lupus.  When they understand the real mechanism researchers might be able to explain why.  I don't fit any profile at all...ethnically, genderwise, agewise....always swimming upstream in my life!  Why this??
 
Just kidding of course.  Most of us will never get a sound answer why we got sick or what triggered our immune system.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Sheila47
New Member


Date Joined Dec 2007
Total Posts : 1
   Posted 12/5/2007 12:41 AM (GMT -7)   
My first post. I am caucasian of Irish descent. I was diagnosed with Sjogrens 5 years ago and a year later with lupus. about 25 years ago I had the flu for about a week and then became so deathly ill that a friend of mine had to carry me to the car and the doctor's office as I was so weak I couldn't walk. I was tested for mono, hepatitis, strep, they couldn't figure out what was wrong with me. I was weak and fatigued and it took me almost 2 years to get over it. After that I got back to normal, very physically active in all kinds of sports. Would have bouts of fatigue every now and again but then they would go away.

Five years ago I was diagnosed with Sjogrens and a year later lupus. The biggest problems for me are brain fog and short term memory loss. There was no family history when I was diagnosed so we thought it was just isolated case. Since then, my daughter has been diagnosed with lupus, my sister ankylosing spondylitis, and my great niece with juvenile RA.

What Bill said is true about it being easier if you're older. It's much easier for me then it is for my daughter, she is in the middle of raising children and working, my kids are all grown and I'm at the end of my career and could have retired last year but I think it's healthier for me to keep working. I would lie on the couch all day if I didn't have to get up.

I feel very fortunate that my symptoms have subsided the last couple of years and if I take care of myself, I do okay. It has changed my life and I do feel sad at times because I have trouble keeping up with things, concentrating, learning new things or enjoying things I used to. But even that is subsiding as I adjust my expectations of myself. I'm doing the best I can which is all I can do.

The top of my pinkie is even with my ring finger joint.

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 12/5/2007 5:40 AM (GMT -7)   
HI there. I am caucassion and have had Lupus since September of 2006, well that's when I was diagnosed. I was in a serious car accident 5 years ago and it was shortly after that that the symptoms started. My family Dr. thinks that the car crash brought on the Lupus symptoms. She said that something tramatic happening to you can bring it on. Maybe I had it before that without really knowing it, but I can't remember how I felt before my crash.
My baby finger is right on the joint. My oldest daugthers isn't even close to reaching it, I hope that finger theory is wrong.
 
Connie
 
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

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