Worried and Sad

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted Today 2:59 AM (GMT -7)   
I am on strict bedrest and won't even be 15 weeks until Wednesday. All because they don't want to place the stitch until the changes begin.

That makes me sad because it means I may not be able to spend Christmas Day with my girls.

I am worried because I have a dull ache in my upper right quadrant. Last time that happened my liver enzymes were up and I needed imuran. If they are up again it likely means I have lost my remission already. That would be very bad for both baby and me. It is a really scary thought. I see the high risk doc today and hubby is going with me to try and convince them to just schedule the darned stitch already. I also have to ask for a liver panel and the monthly kidney test. I hate collecting 24 hour urine samples. It sucks big time.

Hubby bought a mini fridge for the bedroom so I could have drinks during the day without spending too much time on my feet trying to get them from the kitchen. My furnace should be repaired this week. I am now on 60mg Procardia XL a day for the blue fingers/toes and my horrid blood pressure readings- 178/102 last office visit. I am hoping the numbers are back to normal now. It feels weird to be on procardia now when they usually start it around 28 weeks for contractions and blood pressure. Maybe this time there will be no contractions. Well, I need to shower and lay down again so I will cut this short.

I just really needed to vent my fears somewhere.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted Today 8:20 AM (GMT -7)   
Redrose - My heart goes out to you. Both my pregnancies were complicated. A new mom has enough worries and then being ill on top of it can be overwhelming. Somehow, things have a way of working out in the end. You sound as if you are doing your best and keeping on the ball with your treatment. You deserve a pat on the back. Speaking of which, sounds like you have a good man there. I'm glad to see you have support and someone to help comfort you. My thoughts were to practice on the deep breathing and meditation skills to conserve energy and slow the heart rate down. My contractions were still there with the procardia but very light, made birthing easier. It was either that or the umpteenth steriod shots. My son popped out in 20 minutes with 2 minutes hard labor. Such a blessing, almost worth the torture I went through during pregnancy. Has the doctor talked to you about your high blood pressure. The cause, various medications, ways to naturally slow it down, eating, etc.? I had it with my daughter. Talk about some nervous doctors. Funny thing, was that it went back to normal a couple of hours after giving birth. But the trouble was during labor. They really need to get it down as much as possible prior. Remember limit stress, everything can wait. Your girls will see you next year, and the following years. I'm sure it breaks your heart, but first things first. Right now you and baby have to get through this year. My thoughts and prayers are with you - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted Today 12:25 PM (GMT -7)   
Redrose,

You are really going through a scary time and I feel so bad for you. Kudos to your hubby for being there for you and recognizing that rest is what you need right now. I hope you can get your rest and keep your stress level down as much as possible, for the good of both you and your baby. I remember how vulnerable I felt when I was pregnant with my kids and I was completely healthy. It must be so much worse for you. Can you keep yourself entertained while in bed? It has been a while since I've posted and my heart just broke to hear how rough things are for you right now. You're doing all you can do and one of these days you'll look at your beautiful baby and you'll be proud of what you did to have a healthy baby. Hang in there. We're all praying for you.

(((((((hugs)))))))

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted Today 8:07 PM (GMT -7)   
Redrose, I so sorry you must go through this right now. Try not to imagine things that might happen. Try to push those kinds of thoughts out of your thinking. It is best to only imagine good things and to only think of the prize - a healthy and happy and beautiful baby. You have a great team of doctors who seem very proactive. They will do their best possible work for you and the baby. I have you, your hubby, and your girls in my prayers!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/6/2007 8:25 AM (GMT -7)   
Well, the high risk doctor said they would monitor me more closely for change and that so long as I felt okay I could be up out of bed but not to lift anything or walk more than absolutely necessary. I lost some of the water weight but my blood pressure is still slightly higher than they want. Since the blood pressure meds were only increased Friday they decided to wait and see if it would come down the rest of the way. I see the regular OB on the 14th and that is when they will decide if increasing my dose is needed. I have a blood sugar test and ultrasound to check for changes this morning. I will write more later.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/6/2007 9:55 AM (GMT -7)   
Redrose, my thoughts and prayers are with you - I'm sure this is scary and I know it is sad that all of this affects your holiday plans. I'm really surprised they didn't put the stitches in yet - I'm not sure how you feel about it.

Please just take care of yourself. Even though the doc is letting you get up, it sounds like you should really take it easy and get lots of rest. Keep us updated.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/6/2007 10:50 AM (GMT -7)   
The check was fine so I can spend Saturday with the girls and taking my oldest to a movie and dinner for her birthday. I am still rather angry that no stitch placement has been scheduled but am willing to wait and see what happens. I am spending a lot of time sleeping, I think I have also been fighting a virus on top of everything else and am finally beginning to feel somewhat better. I think they are letting me out of bed so that if I am going to change it will happen before it is too late to do the stitch (24 weeks and later it is no longer safe).
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

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