coming out of a flare

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Forum Moderator

Date Joined Jun 2006
Total Posts : 1534
   Posted 12/5/2007 9:27 AM (GMT -6)   
Hi Everyone.  I 've been flaring and unable to post.  My BF caught a virus which I then caught and went into a flare.  Several days of bed ridden and all holiday plans (not to mention housework) on hold.  Don't you just HATE lying in bed unable to even watch TV because the pain & fatigue have you pinned?!  Lupus sucks.  I'm finally past the worst of this one and able to send some positive energy out to all of you.  Love, Butterflake
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 12/6/2007 11:23 AM (GMT -6)   
Butterflake, I'm really sorry to hear about your flare and hope that you continue to improve. I know it's easier said than done, but the holiday plans and household stuff really can wait, just make sure to take care of yourself. I agree that it really stinks to have no choice but to lay around and watch tv. Before I had lupus I used to love having the luxury of taking a nap once in a while - now I despise napping because I feel like it is forced on me and not an option anymore.

Take care of yourself. ((((hugs))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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lupus fighter
Regular Member

Date Joined Nov 2007
Total Posts : 50
   Posted 12/7/2007 3:05 PM (GMT -6)   
Sorry Butterflake,
Hope you feel much better soon.
Loving Life 
Diagnosis Lupus Sle 2006, Fibro 2006, Nephirits 2007, anemia 2005,  Hypertension 2006.
Plaquenil 400 mg, Prednisone 15 mg, Cell Cept 3000 mg, Diovan 320, Procardia 120 Mg, Fosonopril 80 mg, Iron supplement, Calcuim W/ Vitamin D, Folic Acid, Tramadol

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 12/15/2007 12:26 PM (GMT -6)   
Hey Donna, How is that flare coming along sis? ave you been able to get out of bed and put any plans together for the holiday? I am so sorry I have not been a better friend and mre on top of things. Like you said Lupus sucks. It tries to take all the joy ot of your life. I hope your B/F was able to get over the flu too. These losey bugs just seem to want to hold on forever. Like I told others I got a king size bed and it's close to the bathroom and the kitchen, lots of soft pillow fights and some of Rosie's tea and we will be all set.
love ya
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 12/15/2007 7:50 PM (GMT -6)   

Hi Donna,

   I glad you are feeling a bit better now. Hopefully, by Christmas you will be perky... :-) . Take care and keep us updated. You are in my thoughts and prayers.


Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 12/15/2007 8:42 PM (GMT -6)   
Hi Donna,
I'm sorry you're feeling so poorly, and so close to Christmas too.  There's still lots of time to get well!  Sending you cyber hugs and Rosie's tea! I think we're all enjoying some of that tonight.
Did you get your flu shot this year?  Stay warm and well,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Apr 2005
Total Posts : 1529
   Posted 12/16/2007 12:58 AM (GMT -6)   

Hope you continue to perk up. Is your daughter home for her break? I'm sure that is good medicine for you. Don't overdo it, though, as we tend to when our kids that are "away from the nest" come home to roost for awhile.

Plus we have some work to do with Okie. I think she needs some *special* humor to help her recover from her latest round of poor health. :-)


SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy

Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 12/16/2007 4:24 PM (GMT -6)   
Yesterday was the first time I've ever not been able to even watch TV because the fatigue has just been too much.  I laid down for a nap after taking my methotrexate (I have a nasty cold too) and I slept for 5 hours, pretty  much on and off.  I had a good night's sleep the night before, and was only awake for 4 hours before my really long nap.  I woke up only to cough and take a drink of H20 every now and then.  WOW, I do really know what you are talking about now.  Yesterday sucked!  Hope you are feeling better soon.
"Challenges make you discover things about yourself you never really knew."
SLE and Class II Lupus Nephritis

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