I am so sorry to hear of your struggle right now. Please know that you are more than a conquerer through Jesus Christ, and God will see you through this trial. Continue to be strong, and continue to never give up. I am praying for you for health and healing. I know we all are.
Love and blessings...
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
Hi Bab's, hipppi, ginny, kris, 4mylife, lupus fighter, thank you sooooooo much fo responding. I had to go out in the rqin today and I am really taking it easy tonight. I really didn't have a choice in the matter. When I got sick it was the end of the month so of course my bills all HAD to be paid now or risk paying late fees. Some things I was able to do by computer but other things I just had to get out and do them. Plus I left my cell phone charger at the hospital sao I had to go get that. Fortunately I say I did alot but the truth is I sat in the van and my brother did most of the running in and out of places for me. I had scripts to pick up and insurance payment to drop off. I had a fridge full of food that went bad and my bro got it all together and out to the road for me. I leaned into the grocery cart to move around and pick up some easy cooking stuff by the time we got back here I tried to carry one lousey little bag of groceries in the house and had to set it down so I could use my arms to pull myself up the steps to the house. I'm measuring my energy level by tsb.spoonfuls rightnow.
Right now am starting over on my plaquenil because I was on so much meds they weren't giving it to me almost the whole time I was in hospital. Don't know if that was on purpose or in error but I had to stat over again. Hopfully it doesn't take another 6 months to stat working like before.
I guess I should give someone my # so at least I have a contact if this happens again. There were a few times I could have used an encoraging word. but I knew yu were out there and I really wasn't alone.
Ginny, thanks for the heads up. right now my hair is realy nasty. Between laying inbed and sweating and stuff I have knots all over my hair. There is no way i have the energy to shower and try to comb it out yet. Maybe in a couple of days. As for the predisone I was on I think 160 in hospital but she dropped it to 30 mil. the day before I came home. So Now she has me one 30mil. taper for 3 days and than 20ml. taper for 5 days and 10mil. for what seems to be about a 2 months supply. There was a totaly of 70, 10 mg. pills so it's a little confusing.
If anyone would like to email me please feel free. I would really like that. I think it's gonnna be awhile before I can really get back in the swing of things here.My PCP was really pushing me to get into to the rheumy again but I just can't take that trip right now. Maybe the first of the year.
Even if I don't post I will still try to get by here and read what everyone is up to.
you all be good for goodness sakes cause santa claus is coming to town!
Thanks for the update on how you're doing. I know it's a struggle to try and maintain when you're sick. God bless your brother for being there. Hopefully you were able to get it all done, and now you can get some rest, relax, and concentrate on feeling better. Here's lots of hugs and kisses to you!!! Take care, and stay encouraged!
Hi everyone, thank you for your thoughts and prayers. I wish I had better news but I was still so weakened when I got home from the hospital I picked up a virus. I had diareah and vomiting coming out of me for about 12 hours straight. There was no one here to help me and I was to weak to do anything about it. I passed out/fell asleep I'm not sure off and on even than I was dreaming I was throwing up and stuff. To top it off we got hit by a ice storm. I truly beleive if it had not been for those praying for me and keeping my power from going out I would quite possibly have laid on the floor and died. I was so dehydrated I tried to get somthing in me but in 36 hours I think (it's all fuzzy) I got one coke and one cracker in me. It took me until this afternoon to drag myself into the shower and wash all the (stuff) off of me. I finally was able to get a little soup in me today. I am really worried though. I can't get any of my meds down. I mean I can't even look at them. I am really worried that I'm gonna relapse. I don't want to have to go in the hospital for iv drips. well hopfully in a couple days I'll feel good enough to get back on my meds without throwing up.
thoughts and prayers
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Sorry, I'm just getting to post. I am so sorry you are sick and have been having such a rough time lately, but I'm glad to know you are doing a bit better. I pray you continue to get better. Have you been able to take you additional meds? Have you been able to eat a little more and keep it down? ...and yes does your brother know you have been this ill, and about this situation??
I know you don't want to have to go back to the hospital. I don't want you to have to there either, but please make sure to go get checked out from this. Just as everyone has stated, this situation definately called for an ambulance and hospitalization. Here's sending you lots of love and hugs to get better soon!
Barb, prayers and blessings to you too to feel better and get back on the mend. Sorry to hear you have been sick.
Love and blessings…