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MellyMell
Regular Member


Date Joined Nov 2007
Total Posts : 23
   Posted 12/6/2007 4:58 PM (GMT -6)   
Does cold weather make every bone, joint and muscle in your body hurt?  When I go outside and its cold, I automatically get drained of all energy and hurt all over.  It sucks!
 
I just want to die sad   
Mao periculosam libertatem quam quietam servitutem.
("Rather a dangerous liberty than a peaceful servitude.")


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/6/2007 8:39 PM (GMT -6)   
Melly, I'm sorry the cold is making you feel so bad. For me I have problems in both the cold and the heat, although it's the heat that makes me really sick and makes my symptoms flare. I do okay in mildly cold weather, but really cold weather makes my bones hurt.

Have you ever tried an electric blanket. We've talked about them before on the forum and most people who have them really like them. This is the first winter I've had an electric blanket and I love heating it up and crawling under the warm blankets. I'm asking for a heated throw for Christmas so I can snuggle up under one on the couch.

I really hope you get some relief soon. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 12/6/2007 10:37 PM (GMT -6)   
Hi Melly,
   Like Hippi, I seem to do better in the cooler weather. I have more pain in the summer, but the really cold weather does make my joints hurt.
   I also agree with the electric blanket. I use mine every night now. I keep my house temp around 68 and the electric blanket feels good on the old bones.... :-) .
  I hope this gets better for you. I know some of the others have more problems in the winter like you.... sad . Hang in there and keep us updated. You will be in my thoughts and prayers.
                                                     Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 12/6/2007 10:46 PM (GMT -6)   
Greetings, Melly! I have the same problems you mention with the cold. It is dreadful and hard to get through the days sometimes. The electric blanket idea is an excellent suggestion. I prefer my heated mattress pad but I am sure the heated blanket works just as well. Maybe you could get yourself an early Christmas present?
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/6/2007 11:12 PM (GMT -6)   
The cold weather causes me pain- one winter I was so bad I could barely crawl across a room. I do very bad in the heat- I get weak and sick from it. I prefer to have moderate temperatures year round but do not live where that would be possible.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1213
   Posted 12/9/2007 11:38 PM (GMT -6)   
Love the cold weather.  The only problem I have is that I have raynauds and it is worse in the cold.  However, it is much worse when it is in the 30s and 40s and damp.  When winter really sets in it is not as bad.  My joints and muscles do not seem to stiffen up in the winter but most people do have problems.  I was always different and have not changed in my old and sick age.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 181
   Posted 12/10/2007 12:24 AM (GMT -6)   
The cold weather doesn't affect my bones that way... I'm glad about that....I would much rather be cool that hot....

RebeccaDestiny
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 12/10/2007 2:08 AM (GMT -6)   
I have a lot of problems in the winter as well, but it's generally when it's damp.. I have raynauds too, which causes a lot of pain.. but lately the cold has been horrid on my arthritis.. but, it's also been very damp, rainy, and icey. I've had to use a wheelchair off and on, and when I don't use that, I have to use a cane, but the electric blanket does help a lot.. and a hot bath before you go to bed too, helps. I hope the pain gets better for you. I know the feeling.
Diagnosis - SLE, FM, high blood pressure, A-fib, SVT, renal stenosis.. Biliary C, seizures, hypoklemia, anemia, ovarian tumor, arthritis. chronic kidney stones.
Medications - Oxycodone, depakote, ativan, lyrica, metrapolol, zantac, prednisone, plaquinil, cellcept, phenagren, potassium, shots of cortisone, shots of lidocaine.
http://www.myspace.com/lupusgroup
Help spread awareness.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/13/2007 8:54 AM (GMT -6)   

Hi Melly, bless your heart, it sounds like you are in for a long winter. As for me I hate the winter. Even when I wasn't sick. I have always ahated te cold weather. As for the extra pain involved though I noticed I have that more when it's wet out than when it's cold out. Yes I agree with the others get an electric blanket it will really help.

hugs

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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