LUPUS OR CANCER?

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wolftrades
Regular Member


Date Joined Aug 2005
Total Posts : 301
   Posted 12/10/2007 12:03 AM (GMT -7)   
Recently I have had my chronic pain issues (3 bulging discs, 2 levels of spinal stenosis and facet hypertrophy) added to by symptoms such as:
extreme fatigue
loss of appetite
joint pain
psoriasis
itching
chills (wear 3 shirts and 2 jackets in South Florida!)
weird kind of deep body ache

My PCP rxed me with psoriatic arthritis, and had me do a blood test to rule out Lupus. The blood test did come back negative for ANA but on the other hand, showed elevated Sed rates and elevated C-RP and at the same time, showed mild anemia.

Went to hemotologist who repeated blood test and said I had a ton of arthritis (which I already knew) and said I had Anemia of Chronic Disease.

Today was a very bad day for me...unbelievable tiredness, high levels of back pain, body aches and then tonight, I looked in the mirror and had the Lupus mask across the bridge of my nose and under the eyes.

But isn't Lupus ruled out by the negative ANA test?

I also am having pain in the upper left thigh. Hemotologist did a lymph node check as far as I know.

So, is it Lupus?
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Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/10/2007 9:30 AM (GMT -7)   
Hi there,
 
Well, it's more common now to still get a lupus diagnosis even with a negative ANA.  The ANA can go from positive to negative relatively quickly, so it's not a clear cut marker to use as a diagnositic tool. You need have ALL of your antibodies checked.  Did you have a lupus blood panel done?  It's extensive.  Lots of blood work and blood cultures.  You'd know if you had one done!
 
Best thing to do is to take a picture of that rash you have on your cheeks and nose.  Take pictures of all your skin rashes to show your doctor. 
 
Also, take that sed rate result with a grain of salt.  It's not a good indicator of what is going on either, unless the numbers are way over normal.  Normal being 0-20. 
 
Hemotologist might be looking at Sjogren's syndrome if he did a lymph node test. I think the dx of psoriatic arthritis fits.  I have a friend with that, who has all the symptoms you do.  So many of these autoimmune diseases mimick each other. It can be a nightmare figuring out exactly what you have.
 
But keep up with the doctors and specialists.  It can take time, but you'll get there.  Please keep in touch with us and let us know what is going on okay.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/10/2007 9:40 AM (GMT -7)   
Hi Wolftrades:

First off welcome to our forum. You'll meet a lot of great people here. To help you out with your questions, some people can have a negative ANA and still have lupus. I'm one of those people, I've had lupus for 19 years and didn't get officially DX'd with lupus until 2001. I went 12 years untreated.

That being said though your elevated SED rate and CRP can be from your arthritis. Lupus is the disease of 1,000 faces and you must be persistent and keep at the doctors. A lot of us have gone through several Rheumy's before we find one that works for us.

I've tried all the medications for lupus, and was on of the unlucky patients, I ended up getting a rare blood cancer from the medication I took. If you are worried about cancer you need to ask your hematologist to do a bone marrow biopsy to rule out the cancer. Chronic anemia is common in people with chronic illnesses.

I'd suggest you start a journal and list every symptom you have. Mark down what you were doing at the time it happened and how it exactly feels. I'd take the journal with you to you next Rheumy appointment and just keep advocating for yourself, even if that means trying a different doctor.

Wishing you good luck and best wishes. Please keep up posted on how you are doing.

Welcome to the forum again and take care.

Best Wishes,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

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