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RebeccaDestiny
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 12/13/2007 8:42 AM (GMT -7)   
Close to, 2 weeks ago when I was in the hospital for a bad lupus and arthritis flare.. they upped my plaqunil and prednisone and put me on cell-cept. Large doses.. and every since then I've been horribly sick at my stomach. I've been throwing up bile all the time, having horrid heart burn.. and no matter what I do it won't stop. I went to the ER last night, in the town I live in.. which I generally try not to do, but I knew I was getting dehydrated and they said they didn't know why I was so sick at my stomach.. has anyone else ever had anything like this?
They put me on a ridiculous amount of prednisone they started me on 70 mgs and had me taper down to 10 which is usually what I'm on.
Diagnosis - SLE, FM, high blood pressure, A-fib, SVT, renal stenosis.. Biliary C, seizures, hypoklemia, anemia, ovarian tumor, arthritis. chronic kidney stones.
Medications - Oxycodone, depakote, ativan, lyrica, metrapolol, zantac, prednisone, plaquinil, cellcept, phenagren, potassium, shots of cortisone, shots of lidocaine.
http://www.myspace.com/lupusgroup
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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/13/2007 11:42 AM (GMT -7)   
did anyone even consider the cell-cept? It is a form of chemo. Call you rheumy RIGHT AWAY! You may need antinausea meds or to have one of your meds lowered on dose. Pred can be hard on the stomach, but I have never been that ill from it.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 12/13/2007 2:24 PM (GMT -7)   
Hi:

I also agree with Redrose, it could be the Cell Cept that you're taking. I've been on as high as 100mg of prednisone and never been that sick, stomach wise, at least. I'm thinking it's probably the CellCept, give your Rheumy a call. Wishing you the best.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


lupus fighter
Regular Member


Date Joined Nov 2007
Total Posts : 50
   Posted 12/13/2007 4:01 PM (GMT -7)   
Hi Rebecca,
I take high dosage of Cell Cept and sometimes experience extreme nausea. I would defintely contact my rheumy. Your rheumy can prescibe something for the nausea. I see you are taking pheneragan already, maybe prevacid will work better for you. Also there are different forms of phenergan that may work better for you . There is a type that you can rub on your skin that is absorbed through your skin that has worked for me in the past. Sometimes when I have a flare I often have fluid on my lungs and sometimes that makes me nauseated.
Loving Life 
 
 
Diagnosis Lupus Sle 2006, Fibro 2006, Nephirits 2007, anemia 2005,  Hypertension 2006.
 
Plaquenil 400 mg, Prednisone 15 mg, Cell Cept 3000 mg, Diovan 320, Procardia 120 Mg, Fosonopril 80 mg, Iron supplement, Calcuim W/ Vitamin D, Folic Acid, Tramadol


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/13/2007 6:02 PM (GMT -7)   
zofran is another idea for an anti-nausea med, it works really well with chemo meds.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


halfcrazy
Regular Member


Date Joined Jan 2006
Total Posts : 22
   Posted 12/13/2007 8:08 PM (GMT -7)   
I agree with everyone else, Cellcept can certainly cause the nausea, I am on a pretty high dosage and end up throwing up sometimes too. When I couldn't take it at one point, I was one a STRONG stomach liner ... I'll try and find the name of it if you would like. I just remember it was a one month dose and it was REALLY effective.
I really hope everything works out for you!!!!!
-Scribbles and Hugs
<halfcrazy>
Rube: You like falling, do ya?
Betty: Well, it's not the fallin', it's the jumpin'.
Rube: I'd feel a whole lot better about the jumpin' if it weren't for the fallin'.
Betty: Fallin's easy, you just fall. Jumping involves strength of will.
Rube: Unless you're on a plank

- Dead Like Me


RebeccaDestiny
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 12/14/2007 8:25 AM (GMT -7)   
Thank you very much, for the advice, I saw my rhuemy and he did say that it was the cell-cept, but he told me to continue on it.. he thinks I might have an ulcer as well, so I'm getting tests done for that. He gave me nexium (Which is so expensive, and I don't have insurance) but to help until I can get it filled to take previcid over the counter for the acid reflux, and he gave me the phenagran to rub into my skin as well.. which, has really helped a lot. If everyone could send positive thoughts or prayers that would awesome.. I really don't want to have an ulcer, I already have a long list of problems.. and I'm sure most of you know how adding something else to that list is very discouraging. He also thinks that I might have bronchitis as well... and I'm going back to my regular doctor for that... and I'm sure the ones of you that have been on cell-cept know that getting any type of illness while you're on that could be really bad.
Thank you for all the advice!
I hope everyone is doing well.
Diagnosis - SLE, FM, high blood pressure, A-fib, SVT, renal stenosis.. Biliary C, seizures, hypoklemia, anemia, ovarian tumor, arthritis. chronic kidney stones.
Medications - Oxycodone, depakote, ativan, lyrica, metrapolol, zantac, prednisone, plaquinil, cellcept, phenagren, potassium, shots of cortisone, shots of lidocaine.
http://www.myspace.com/lupusgroup
Help spread awareness.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/14/2007 9:41 AM (GMT -7)   
Rebecca,

I'm glad you saw your rheumy before this got any worse. It's a shame you're having this reaction to CellCept. When I was taking 2,000 mg a day it made me feel absolutely terrific! But it caused my creatinine and bun levels to rise so I had to lower it to 500 mg a day. It's obviously a very strong medicine but when we can tolerate it it really helps. I hope the other meds you're taking help you tolerate it a little better. And good luck with that ulcer. Some days I wonder what else can go wrong! I know you feel that way. I'll keep you on my mind and in my prayers.

Hang in there,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 12/14/2007 10:09 AM (GMT -7)   
i am on cellcept also, and in the beginning i had the same problem, but i never actually threw up. some of the side effects of cellcept is nausea and heartburn. with the cellcept if you take it with food it will usually help the nausea and my doc put me pepcid for the heartburn and it works wonders. but remember dont take an antiacid 2 hrs before or after taking the cellcept.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


RebeccaDestiny
Regular Member


Date Joined Nov 2007
Total Posts : 47
   Posted 12/14/2007 1:43 PM (GMT -7)   
Yeah, I take the antacid 2 hours before I take my cellcept, I also take the phenagran in advance as well.. I'm on 1000 mg of cellcept, and I've had to go up on my prednisone as well because it's about to snow, and my arthritis is kicking back in. Fun fun! But, yeah he told me that heart burn and nausea was a side effect of the cellcept but because I had a bit of blood in it, he thinks maybe it's an ulcer. Fun times. Thank you for the thoughts and prayers. I really appreciate them.
Diagnosis - SLE, FM, high blood pressure, A-fib, SVT, renal stenosis.. Biliary C, seizures, hypoklemia, anemia, ovarian tumor, arthritis. chronic kidney stones.
Medications - Oxycodone, depakote, ativan, lyrica, metrapolol, zantac, prednisone, plaquinil, cellcept, phenagren, potassium, shots of cortisone, shots of lidocaine.
http://www.myspace.com/lupusgroup
Help spread awareness.


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 12/14/2007 10:07 PM (GMT -7)   
((((Rebecca)))),
You absolutely do not need another another problem added to your "resume". I'm hoping that the blood was caused by the terrible shape your esophagus must be in after the awful heart burn you've had. Take care and add my positive thoughts to all the others.

emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/15/2007 3:36 AM (GMT -7)   
Oh Becca, I'm so sorry yu are going thru this. I don't take cellcept so I have no experience to draw from there. Te nausea is right up my alley though. It takes so long to get over the heartburn and nausea especially is you have a problem with your esophgus. Have you ever been tested for a hiatal hernia? I have one and noticed that alot of people on this board have them. With the high doses of meds you have been on it could cause a hiatal hernia to cause some serious problems. You may want to the a upper GI done for that.
praying that you get soe releif!
love
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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