Like chopped hamburger!

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/15/2007 10:49 AM (GMT -7)   
Ok I know this is gonna sound weird but consider the source. My feet have been giving me alot of discomfort lately. Let's say you look straight down at your foot and you seperate the front from the back.  so the heel part feels fine but from the arch forward feels like it's a frozen block of chopped hamburger. That you could literally take a sharp knife and slice it. I'm sure you have all taken a chunk of hamburger out of the freezer and tried to cut it with a knife. That's what my foot feels like. It's a cold feeling thaat goes way beyond freezing cold. I've been in cold weather that almost gave me frost bite. but this feels worse than any frostbite. but the fact is it's not really there it just feels like it's that cold. It feels like it swells but it doesn't really swell. Does that make any sense? I'm probably not explaining it right. but thanks for reading it anyway
love
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/15/2007 1:14 PM (GMT -7)   
Carol, that is a very interesting description you just gave us..... Actually, it gave me the willies.... LOL!  I have no idea what that might be.  Do you have Raynauds?  That's the only thing that I can think of.  Did all this start after your infection?  Is it relatively new?  Hmmmmm.  I'll do some investigating too.  UGH.  I keep having visions of taking a knife to your feet!!! BAH!!!!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/15/2007 4:36 PM (GMT -7)   

LOL sorry ginny, it must be the liquid diet I'm on with all the frozen popcycles. tongue . It actually just started about the time I started getting sick a couple of weeks ago. I was told i might have CREST at one point. I know the R in crest stands for raynauds but nothing was ever determined. It's just weird because half of my foot will feel fine and the other half will no just be freezzing cold but more like frozen solid almost to the point where it doesn't have any feeling anymore. Than out of no where I notice it feels normal again. LMBO yeah like I even know what "normal " means. smurf I suddenly have this vision of a bird belly up at the bottom of a bird cage!

love ya carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 12/15/2007 5:43 PM (GMT -7)   
(((Carol))),
   That sounds awful! Does your foot or toes turn colors? Like Ginny, Raynaud's popped in my head. I hope this gets better for you soon. Keep us updated and take care. You are in my thoughts and prayers.
                                                       Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/15/2007 6:39 PM (GMT -7)   
LOL, Carol, at least you can laugh at all this.  You have a wonderful humour that is totally infectious!  Just as long as that bird isn't belly up with frozen feet......
 
Yeah, your description of them getting super cold and then going "normal" is exactly what Raynaud's will do. I get that with my hands.  I'll be ice cold and stiff, and then super hot to the point that my hands and fingers are swollen, red and throbbing from the heat.  Raynauds is really weird.  So if your doctors mentioned CREST to you in the past, it's pretty likely that is what it is. 
 
When is your next doctor's appointment with your rheumy?  I'd bring it up for sure. "Normal" for us is a brief moment in time when we say to ourselves, "That's weird? I don't feel any pain.  No discomfort.  How odd?"  Is that sad or what! LOL!
 
Hope your evening is going as well as it can!  Love and hugs to you and pup!!
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/15/2007 8:57 PM (GMT -7)   

Hi Bab's, I have noticed that sometimes my little toe turned kind of dark purple but it doesn't turn all the shades they talk about with reynauds. How is your physical therapy doing? Aren't you doing somthing for your stroke? Gosh I am so far behind. How bout your dad?

Ginny that's a great discription of normal. LOL. I was so nice to hear that my humor is contagious. Usually if I give someone something it's diarrhea!

 


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 12/15/2007 11:12 PM (GMT -7)   
Hey Okie,

I agree with all the others who mentioned raynauds. The first stage is a white-ish or yellow-ish color to the affected area. That's when it feels and looks like it's "dead". Next comes the purple (some call it blue; I am always purple). Following that is when it turns red as the blood returns to the area. The hands, feet, nose and ears are the common areas that can be affected by raynauds. You don't have to have all areas affected to be diagnosed with it.

You can help prevent an attack by staying warm. It's important that the core of your body is warm not just the affected areas. Also stress can bring on an attack (like we don't have that!). Good gloves and warm socks and a hat on your head are what you need to where when you go outside. For me, I wear gloves in the grocery store, when I get things out of my freezer and sometimes have to resort to them or get outside in the heat in the summer. Then the heat makes me feel like cr*p. oh, well, if it isn't one thing, it's another. Once an attack is underway, putting the affected area in warm--not hot--water helps. Not sure how to put ears or nose in the water!

Also, CREST is now part of what is limited scleroderma (that's what I have). I have the REST part of it along with other stuff that is part of limited. Try to find out if that is what you have...good treatment is important.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 12/16/2007 2:12 AM (GMT -7)   
I have raynauds and this sounds all too familiar. My toes and fingers go really really white then a bluish tinge comes on. I have been worse this winter and my rheumy prescribed procardia for it, then my OB decided since I was on it anyway that is the med they will use for my blood pressure (also because it is what controls my contractions later in pregnancy and they are hoping it will mean no contractions later on).

I suggest calling your rheumy right away. I have a friend who lost part of 3 fingers because of poorly controlled raynauds.

I can honestly say my problems this winter begin if it gets below 70, my hands and feet go all pale and if it drops below 65 I go very white. Since the procardia was started I now can go to 60 before my hands and feet get pale. The temperature it happens at is unique for each person and can change. My friend was in a 75 degree house but her raynauds got so bad that even that didn't keep the problems from getting worse and she was on meds for it. Raynauds cuts off the circulation when the area affected is cold, this can cause tissue death and even gangrene. I am not trying to scare you, just give you the facts on what can happen if it is let go.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

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