Update & Thanks

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Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 12/17/2007 1:05 PM (GMT -7)   
Hi Everyone.  Thanks for the well wishes.  I'm feeling much better.  Well enough to decorate a tree and I'm making a beaded night shirt for my daughter.  My neurologist said my EEG shows "slowing" of my brain waves which he attributes to my many meds.  My brain is slow?  Well isn't that a big surprise.  I will continue my periodic search for drugs I can discontinue.  Never happens, but I'll keep searching. 
Anyway, Carol how are you feeling?  I hope you're getting some strength back Sis.  Are your feet warm now?  No birds belly up? 
Firebabe, I'm sorry you had to experience the catatonic flare.  Today I'm wearing my sweatshirt that says, "Some days it's not even worth chewing through the restraints."  Love to All, Your Butterflake 
 
    
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/17/2007 4:51 PM (GMT -7)   
LOL, I love what your sweatshirt says!!!  I need to get one of those.
Yeah, no surprise about the EEG, eh.  Slowing of the brain... Yup, that's us!!  I'm glad you got your tree up and youre making a beautiful night shirt!  That must lift your spirits!
 
Thanks for touching base and keeping up posted on how you're doing.  Merry Christmas!!!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/17/2007 9:02 PM (GMT -7)   

Hi Donna, wow it sounds like you are feeling better that's wonderful! So you have the old slowing down on the brain syndrome huh? I have that too but I never thought to blame it on the drugs tongue   So I'm guessing your doc is saying if you can eliminate certain drugs your brain will get back to it's normal speed?

I'm actually getting some of my strength back that's for asking. I'm afraid I will have to go see my doc though. I noticed last night I have endema in my ankles again. I have that strethcing burning feeling in my feettoo. I have had them much larger than this though so Im not too concerned at this point. I just have to be carful because of my CHF.

I hope you continue to improve and have a wonderful christmas.

love ya carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 12/18/2007 7:52 AM (GMT -7)   
Hi Carol and Ginny.  I hadn't thought about the flip side of drugs slowing my brain which is if I eliminate the drugs does my brain return to normal?  Of course if I drop the drugs, I'll have uncontrolled lupus, diabetes, high blood pressure, depression, high cholesterol, gastro reflux and pain.  Hmmm, this is a no brainer!  Carol, I sure am sorry you've been so sick.  Is your dog staying by your side?  My pets always help. Please monitor your CHF closely.  Love, Donna

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 

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