New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/19/2007 3:19 PM (GMT -7)   
Hi everyone.  I could write a book about this past week, but I won't.  We had about 5 days without power, but some people around us were without power longer and some still don't have any.  We sill have a huge mess in our yard to clean up with lots of trees down. 
 
My son ended up getting really sick and we took him to an urgent care center on the weekend and his white blood cell count was really elevated, so he was placed on strong antibiotics then a a day later, I got the flu.  I know that I ended up getting completely worn down so it's no surprise that I got the flu.
 
Of course the flu made my lupus symptoms flare and I'm finding it hard to get the rest I need because things are so busy right now, but I'm trying because I don't want to increase my prednisone.  It's just frustrating because I had really been doing pretty well before all of this happened and I had even managed to taper down to 7.5mg of prednisone.
 
I saw my rheumy yesterday and had a good appointment with him.  He said that my mouth and eyes are so dry now that he'd like me to try evoxac (sp?) to see if it gives me some relief.  He said it should help with saliva and that some people have told him that after a while it had also helped with tears too.  I have my samples, but haven't tried them yet.  I look to look things up about the med just to be awayre of possible side effects before I take it.  He wanted to run some labs but when I told him I was getting a physical soon, he wrote out a script for the labs when I have my physical done.
 
So, that's my story.  I'll slowly try to catch up with everyone here.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



AnnieRae
Regular Member


Date Joined Nov 2006
Total Posts : 76
   Posted 12/19/2007 4:37 PM (GMT -7)   

Hi hippimom2, I was in the same situation last week too.  But we got our power back by Wednesday night.  The rest of my family had theirs back slowly for the rest of the week.  You are so right, I feel like I lost a whole week trying to get things back in order and worrying about everyone.  I too ended up with a cold from the cold.  This week is beautiful.

Anyway so glad your appt went very well.  I'm located in Tulsa OKlahoma.  I guess we can say that on here.  Yes they said it was the worst ice storm in the states history.

Take care and good luck with your new meds for your eyes.  Hope you and your son are feeling better.   AnnieRae   tongue


There Is Always Hope


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 12/19/2007 4:45 PM (GMT -7)   
Glad you're back online -- but don't come on here too much -- REST (sung to the YMCA tune) :-) yeah

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 12/19/2007 6:33 PM (GMT -7)   
((((( Hippi ))))) I sure hope you and your son feel better soon. Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 12/19/2007 8:07 PM (GMT -7)   
Hi Hippi glad you are back and that things are getting better. We are in the same boat I am starting salagen it's another version of exovac as we don't have it Canada yet. From what I read the med works very well and I guess when taken at night you can actually wake up in the morning with no dry mouth... Can you even imagine.. LOL
UCTD and sjogrens ( terrible dry mouth) Plaquenil 400 mg with 150mg of diclofenac as needed, all biotene products and refresh liquigel eye drops 


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 12/19/2007 9:18 PM (GMT -7)   
Hi hippi! So happy that things are on the way to normal. Please try to keep rested and don't overdo even though that will be very hard with children and the holdiays!

My rhuemy suggested I try Systane for my dry eyes and that has been somewhat effective. It is rather pricey, however, so see if it is effective for the long haul or I'll ask for something stronger than an over-the-counter solution. (Strangelt enough, a prescription is less expensive for me than over-the counter because of my low insurance co-pay.)

Anyway, please rest LOTS and take your time with the ice storm chores if possible.
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 12/19/2007 10:23 PM (GMT -7)   
(((((Hippi)))))))

Glad your power is back on . . . do rest!!! I hope you and your son get back to "normal" before Christmas . . . *sigh* what a long week for you and just before the holidays.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 12/20/2007 7:43 AM (GMT -7)   
Thanks for all the welcome backs. I think I might actually get to rest today for a while. My daughter has a Christmas dance program tonight, but there's nothing going on today besides me staring at a messy house thinking I should do something about it.

I started the Evoxac this morning and I'm looking forward to having more spit. Canuckgirl, I hope salagen will work for you and yes it would be great to wake up with no dry mouth. I really hope it helps my eyes too. My eyelids are literally stuck to my eyes in the mornings and even my gell drops aren't helping as much. I'm super fatigued, so I think I'll get off the computer and get some REST (lynnwood, you gave me a much needed laugh this morning).
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/20/2007 2:18 PM (GMT -7)   
Now Hippi, you would be the first one to tell me forget the house you need to rest! So I'm throwing it back at ya. I'm glad you checked in but like everyone else has said you need to rest rest and rest! Wern't you the one that said you couldn't wait until summer was over? I hope this is not an inndication of things to come. How is your son doing? Bless his heart. It's hard enough to deal with this as an adult but a child it's just totallly not fair!
Please take care of yourself forget about the house. Some times my house is a mess when I'm not even sick. LOL.
if you're going to your daughter dance make sure you a bundled up real good and take your pills with you just in case!
love and prayers
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mamarose
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 12/21/2007 1:15 AM (GMT -7)   
Hi everyone im new around hear i was told i had sle lupus in may of 2006 so this is realy new to me. Im the mother of six and the grandmother of two im gowing to be 43 on the 28th of this month and im just misserable im not able to work i also have neropathy in my feet so don"t walk that well and thay had me on predisone for over 9 monthes so i gained over 150 pounds so that also dosn"t help me . The question that i would like to ask is my doctor sugested gastrobypass surgary for the weight but im a little scared is their enyone out their that has had it done that could give me a little heads up. I thought about exercise but since i can"t stand or walk for long that is kind of hard for me to do eny good words of help i would realy apreciate it thank you mamarose MERRY CHRISTMASS
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 11:50 PM (GMT -7)
There are a total of 2,731,976 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151141 registered members. Please welcome our newest member, LydiaLoftis.
221 Guest(s), 5 Registered Member(s) are currently online.  Details
rollout, Tagier, desert bound, LydiaLoftis, Oranged


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer