Update - Rice Krispie neck stuff we all talked about.... I have a diagnosis...

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 12/19/2007 5:31 PM (GMT -7)   
Hi gals,
 
So, you know how I was asking if anyone had issues with their necks?  Pain, immobility, cracking, popping, crunching stuff?  All that chiro talk?
 
Well, it got to the point where I was feeling quite disabled from it.  I've had this for over 2 months now with no relief.  So my family doctor had me do some neck xrays last week.  She called me on Monday and asked me to come in before Christmas to see her.  I knew that meant she had news....
 
I have fairly moderate disc degeneration and arthritis in my C3, C4, C6, C7 vertibrae.  It's not rheumatoid arthritis either.  Which is something she was wondering about because I have lupus.  Nope, it's plain old arthritis.  Not caused by my lupus or fibro at all.  She said it's not common, but is seen in people my age (I'll be 34 in February), and especially if there is any genetic link.  So I need to find out if anyone in my family started getting arthritis at an early age.  So isn't that just a kick in the drawers.  How ironic.  Everything else that is a health issue with me is lupus or fibro related.  I can't win.  I'm falling apart, LOL!
 
So, I have to go to physio.  Can't get neck adjustments at the chiro or any massage, until a physiotherapist sees me.  That's about all we can do.  Typical anti inflammatories are out for me because of drug interactions.  So, I'll try more conventional things like heat, ice, and strengthening the muscles.  Which isn't easy.  I hurt. I have flippin' arthritis in 4 of my 7 neck vertibraes!
 
So I just wanted to let you all know, that if you are having continual pain in the neck or back, don't assume it's your fibro!  I'd get it xray'd to be sure!  You just never know! 
 
From one rice krispie to another,
 
Ginny
 
Oh, this is going over to the fibro forum too.  I've been talking with the gals there about it also...... It's a big topic of conversation in fibro-land.....
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Post Edited (ginny) : 12/19/2007 5:34:26 PM (GMT-7)


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 12/19/2007 10:21 PM (GMT -7)   
Oh Ginny . . . sorry sis!!

Cold doesn't have the same immediate comfort, but does more good in the long run. I hated ice packs when I had to start using them *tears* but darned if they really do help.

YES! Posture is everything with a neck problem. If you picture a bowling ball as your head, that is the approximate weight of your head. When you don't line yourself, posture-wise, the perceived weight is much greater. (I don't have dx'd arthritis in my spine . . . but I have a twested spine and some vertabrae issues plus spasms and trapped nerves etc.). I do exercises in my care (because it is trapped time and it reminds me to do the PT that I can do while at traffic lights etc.. I do my shoulder shrugs and rotations and I practice holding in my tummy from one light to the next, etc. Sounds little, but I've really made some progress with just a few back exercises like this. Some must be done on the floor. I hope you get into PT for some help with this.

Thanks for sharing and I'm really very sorry Ginny.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 12/19/2007 10:22 PM (GMT -7)   
I can sympathize. In 2001 they found degeneration in my neck. I am 30 now which tells you how young I was then and I had been having problems for years. I likely should have a second xray done to see how much worse it is since my neck is worse now than it was.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


emmi
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Date Joined Apr 2005
Total Posts : 1529
   Posted 12/19/2007 10:31 PM (GMT -7)   
Hi Ginny,

I have the same thing. I was diagnosed when I was about your age. I now have something else along with it but the name escapes me now. It doesn't go away, but it does become easier to manage. In fact, at times it goes into a "remission" of sorts. I can't take anti-inflamatories either (anaphylactic reaction). I found heat to be the most beneficial but everyone is different. One important thing I was told is to not force anything. Do the prescribed exercises and in time they do help. Sorry to hear this is the cause of your "rice krispy" neck as well.

emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 12/20/2007 7:36 AM (GMT -7)   
Ginny, just what you needed - one more thing to add to your list, but at least you know now what was causing the pain. I'm glad you got you it checked out and it's a good reminder to us all that if we have something new going on, we should go to the doc and not try to diagnose it ourselves.

I hope the physio helps.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 12/20/2007 8:25 AM (GMT -7)   
Ginny, so sorry about your arthritis. I know just how much it hurts! A little story to give you hope: when I was 23 I went to the doc complaining of horrible neck pain, grinding, etc. and after tests I was told that it was arthritis. Boy, was I scared to think that I had such bad arthritis at 23. Miraculously, it didn't last long and here I am at the ripe old age of 58 and my neck has hardly bothered me since. I'll cross my fingers for you and pray that you have the same miracle!

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/20/2007 9:42 AM (GMT -7)   
Hey gals,
 
Thanks for your support and encouragement.  I'm doing better today, emotionally.  But we'll see as the day goes on, how I"m feeling....The neck pain and stiffness gets worse as the day progresses.
 
Here's another theory.... I'm having wickedly weird periods, mood swings all month long, all over body aches, weight gain around my middle that WON'T go away, and now this arthritis... Could I be in the throws of perimenopause?  I'm 34.  I've brought this up in other posts.  Now I'm really wondering. I'll get my hormones checked again and see what's up.....
 
Oh, here's a snipit of info I forgot to mention in my post.  I've shrunk a full centimeter since February!  In 10 months, since my last bone density test, I've lost some height!  Crazy huh. 
 
Anyway, I have to rock and roll here.  Busy day. 
 
Love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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