Gallbladder disease and a flare

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2554
   Posted 12/20/2007 11:13 AM (GMT -6)   
I have gallbladder disease and learned yesterday that my pcp wants me to have my gallbladder removed. I hear that gallbladder surgery is no big deal but I've heard from folks here that there are special precautions to take for us lupies. I can't for the life of me remember what they are, so I'd appreciate a refresher course.

I've been feeling absolutely awful and I know now why. My lupus is flaring as well and I suppose it's possibly related to the fact that my gallbladder is hardly working at all so my body is being poisoned. My joint pain has become excruciating and walking is difficult for me. Could this be related to my gallbladder? I hope so because if so, removal of my gallbladder could possibly help these symptoms improve. I feel like I have the flu all the time and my joints are all on fire.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5680
   Posted 12/20/2007 2:01 PM (GMT -6)   
I had my gallbladder removed due to gallstones after my lupus was dx. Basically they give you some extra prednisone around the time of your surgery and that takes care of things. (What they are afraid of is that the lupus might flare as a result of the surgery.)

In my case, I simply told my surgeon of my dx, that I wanted to do everything possible to avoid a flare, and (very important) gave him my full list of drugs.

It was a very easy surgery -- outpatient! (Of course, I wasn't flaring at that time, your mileage may vary.)

Good luck with it,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/20/2007 4:09 PM (GMT -6)   

((((((Patty)))))))), I knew you must be feeling very bad since you havn't been around much. I wish you could have come here so we could have been more support.

I had my galbladder out in 2000, so I wasn't sick with anything else at the time. I was different than Lynnwood though I had to stay in the hospital over night.

The only thing I can tell ya that might help is that they put 4 little holes in me one on the side and 3 straight down my belly. The sugery was not a problem but what was a problem is that they fill you up with gas to move things around to get to your gallbladder. The gas was painful. The only way to get rid of it is to roll around in bed and walk as much as possible so you can get rid of it. I hope they can get this flare out of the way before the surgery.

keep us informed I'm so sorry you are having such a rough time.

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Ginny
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Date Joined Feb 2003
Total Posts : 5511
   Posted 12/20/2007 10:19 PM (GMT -6)   
Patty, it's good that others have had this surgery.  I've heard that it's pretty simple, and can be done with just a few small holes!  Amazing.  Yeah, you'll want to at least double your pred after the surgery for a while to make sure you don't flare.  But your doctors will tell you exactly how much to take.  I think of all the surgery to have, the gallbladder is likely one of the simplest.
 
I think once it's gone, you will notice a difference in how you feel.  If your body is being poisoned it just makes sense that your symptoms will improve when it's gone.  Let's hope!!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5680
   Posted 12/21/2007 12:12 AM (GMT -6)   
In my case it was given to me while I was still asleep, no extra pills to take. I know a lot of people do have pain from extra gas left in the abdomen, but a good surgeon will take care to remove as much as they can before closing those 4 little holes (and one hole is in the belly button, so only 3 tiny scars). It also helps if you walk around a bit as soon as you can -- I didn't even take all the pain pills they gave me, I think I only took 1 days worth & they gave me 4 days or so....

Hopefully removing the gallbladder will give you some relief -- I've been happy without mine. Some people have trouble digesting rich or fatty foods after gallbladder surgery, but I haven't had any trouble eating about anything I want.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 12/21/2007 9:38 AM (GMT -6)   
Patty, I had a feeling that things might not have been going too well for you. I'm so sorry to hear about your gallbladder and about how sick you have become and how much pain you are in. What an awful time of year o have all of this happen.

I haven't had gallbladder surgery, bu my sister in law did and she said it was pretty simple, although she didn't have any complicating factors like lupus. I'm glad some others here were able to give you their own personal experiences.

Any idea when the surgery could be scheduled? In the mean time has your doc offered anything for your pain? I just hate that you feel so awful. Hang in there and know you are in my prayers.

Love,
hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2554
   Posted 12/21/2007 11:27 AM (GMT -6)   
Thanks everyone. I'm not worried about the surgery but am looking forward to having it done because I know I'll fell better. I'm just devastated about more scars because now I won't be able to wear my string bikini anymore. cool (the one I haven't worn since I was 25)

My daughter is going to have a tonsillectomy on the 3rd so we can recover together. I'd rather have my gallbladder out ten times before I'd have my tonsills out.

I still have a houseful because some of my kids still don't have power and some of their friends are staying here too. But it's been great having them around and they all take care of themselves and we bring in food so I'm not doing anything extra. And I have help with the house and laundry. It's funny how it's taken me so many years to learn that I don't have to be supermom or ms. perfect anymore. Life is more fun this way. My daughter-in-law helped me wrap yesterday and we spent hours wrapping and talking. I had been stressed about all the wrapping etc. I had to get done and it turned out great to be able to spend so much time with her. She and my son are moving to Denver next week so this time with them has been precious. My tree is up but still not completely trimmed. May finish it this morning. Then last night my step-son helped me pick up all the mess and put everything up. I have such great kids.

I hope all of you are well and that the holiday season is wonderful and stress-free. tongue

Hugs to all,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


hdgott
Regular Member


Date Joined Jun 2007
Total Posts : 28
   Posted 12/23/2007 12:04 AM (GMT -6)   

Pat,

I am so sorry you aren't feeling well! I will be thinking of you. I saw Dr. Albert Thursday... I am just liking her so much! I feel like I can really trust her. She set up an appointment with Dr. Stanley for me, he's a perinatologist. This way I can be established with him when I get pregnant, and it looks like I'll deliver at Mercy.

I hope you feel better very soon. We were lucky up here and didn't lose power, but we had blizzard-like conditions again today! Take care of yourself and I will be thinking of you and praying for your health to improve!

Heather


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 12/23/2007 6:39 AM (GMT -6)   
I wanted to warn you that high fat meals after the gallbladder is removed could very well cause severe diarrhea and cramping it depends on how your body adjusts. I had my gallbladder out but my experience is very different from everyone else's because mine was 3xs the normal size and close to rupture. I was very ill and hospitalized for a week unable to hold ANYTHING down prior to my surgery. I nearly died. Be glad yours is being cared for before it becomes too bad- because mine was let go to that point it too more than a year to recover- I was left very weak from the prolonged illness. Heck I began having problems with it at 14 but was misdiagnosed with an ulcer for years. Funny cause ulcer meds didn't work while pain meds did. No gallstones made it hard for them to dx the problem because they always think no gallstones means all is okay. I had to have a special nuclear medicine scan for them to find the problem and by then my gallbladder did not function at all. It would explain why I seemed to have stopped absorbing much of the nutrients in the food I ate. Good luck. My hubby had his tonsils out and I swear I need mine out but after seeing how it was for him I don't want it done unless they leave a thin layer of tonsil tissue to protect the muscles of the throat (new technique).
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2554
   Posted 12/23/2007 11:53 AM (GMT -6)   
Thanks Heather and Redrose,

Heather, Dr. Albert truly is a fine doctor. I haven't talked to her about my upcoming gallbladder surgery but will see in in a week or two and will do so then.

Redrose, I do worry about having the surgery. I know it's an easy surgery but I hate to lose the old thing. I've been seeing a naturopath who has helped my symptoms a great deal with the use of enzyme supplements. Forgive me for being so graphic, but after I used her supplements for just a week my very yellow bm's started looking normal again. She believes she can heal my gallbladder. :-) We'll see.

I am ready for Christmas. Everything bought and wrapped and I'm not cooking Christmas day, so it's time to sit back and enjoy the holidays. I plan to do a lot of knitting. The kids are still here and it really cheers up this big ol' empty house.

I wish all of you the very best holiday ever!

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/23/2007 11:05 PM (GMT -6)   
Patty, I was just thinking about you and I hope you aren't overdoing it with all the guests. Hope you didn't get hit to hard down there. We lost the computer and cable yesterday but at least we kept the power so I watched DVD's that I hadn't seen yet.
stay warm don't over due it on the food. Before I had my gallbladder out it seemed the worst time it would bother me is when I really over did it eating. I don't know what's wrong with yours but my was completely packed with stones.
love ya
lady
carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 12/28/2007 12:59 PM (GMT -6)   

Hi Pat,

  I'm sorry your going through this on top of everything else. I had my gallbladder removed 4 years ago as well. I was put in the hospital the morning before the surgery and given high doses of pred and antibiotics by IV. I was there 2 nights and did well after the surgery. We are all different... :-)  

   Like Lynnwood said, the faster you get up and move around the better. Also, like Redrose said, you really have to watch what you eat for awhile.

  I hope your surgery goes well and you recover quickly. Please take care and keep us updated. You are in my thoughts and prayers.

                                                        ((Hugs)) Babs


 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/30/2007 7:11 AM (GMT -6)   

Patty I'm worried about ya! How are you doing? please check in when you can. Or I will be sending you and email.

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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