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Y.T.
Regular Member


Date Joined Feb 2005
Total Posts : 97
   Posted 12/21/2007 4:53 PM (GMT -7)   
Fired Rhumey today, got two years of medical records at a cost of $48, and I am looking for a new Doc!!
 
 
 
  Did a ton of research on a new study for SLE, would have to travel to K.C. from Omaha twice a month, and I decided that I didn't have Lupus.  Is Fibro.. as close to SLE as I have read??
 
  My blood work has came back normal for 12 months, and yet I still like POO!! 
Y.T.
 
SLE- july 2004
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 12/21/2007 5:39 PM (GMT -7)   
Hi Y.T.,

Try this link: http://www.myalgia.com/lupus.htm to compare the two.

Were you ever prescribed prednisone? moderate to high does of pred will often make fibro worse. So if the pred helped your achieness, it is likely not fibro. Some of the others here have BOTH fibro and Lupus . . .maybe they'll see your post and comment.

Welcome back!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/21/2007 7:28 PM (GMT -7)   
Hi Y.T.,
 
I don't think we've met, but what Rosie said is absolutely true.  I have both lupus and fibro.  It's really hard to tell the two apart.  The only way I know which one is flaring is to increase my prednisone and see how I feel.  If I feel better on more prednisone, then it is my lupus flaring.  If I feel worse on more prednisone then it is my fibro flaring up.  Just like Rosie said.  Prednisone and fibromyalgia don't mix.  They hate each other!
 
What made you decide that you don't have lupus?  Is that a decision you made, or your doctors?  Please don't try to self diagnose.  I hope you have your doctors viewpoints to go by. 
 
It's not uncommon for our blood tests to come back normal from time to time.  Mine did. For 4 years, I had normal blood test results (almost. Some of them were still positive).  But a remission from lupus can trick you into thinking it's gone for good, or you never had it in the first place.
 
Best to get the decision from your doctor.  I hope this helps!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Y.T.
Regular Member


Date Joined Feb 2005
Total Posts : 97
   Posted 12/22/2007 3:16 PM (GMT -7)   

I am getting into a new Lupus drug study,  I will get a second opion from another Rhumey, they are paying me to go to K.C., and it is all FREE!!

 

Will keep you posted..


Y.T.
 
SLE- july 2004
 

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