What do you think of this dose of Doxy?

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tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/1/2008 6:15 AM (GMT -6)   
Hi all,

My mom just had her first visit with an LLMD (Dr. L in MI). He put her on Doxy 100 mg 3 times/day. What do you think of this dose and are there any special things we should know about doxy? I know it causes sunburn and should be taken with food.

My mom tested positive for lyme and showed hemobart/mycoplasma on Fry blood smear. She has stomach issues and insomnia so we suspect bartonella.

Thanks for your input.

tickbattler

ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 10/1/2008 7:18 AM (GMT -6)   

Hi tickbattler.  I am sorry your mom is also dealing with tick-borne illnesses.

From what I understand, the dose of Doxy for Lyme is 300-600 mg daily so her dose is in the range.  I believe Doxy can treat Mycoplasma.

The tips regarding Doxy include avoiding sun exposure.  You can get a severe burn in minutes even when wearing sunscreen.  Do not have any dairy, iron, or magnesium products within two hours of the Doxy or it will not be absorbed properly.  It can cause severe nausea.  Tell your mom to eat something substantial and non-dairy before taking it.  Do not lay down for at least an hour after taking it or you can ulcerate the esophagus.  This is very painful.  Drink a full glass of water when you take it for the same reason.  Make sure your mom knows about taking high-quality acidophilus capsules at least two hours apart from the Doxy.

I hope her treatment goes well.


Minx
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Date Joined Aug 2008
Total Posts : 62
   Posted 10/1/2008 9:36 AM (GMT -6)   
Hi Ticker

I was wondering if you could point me in the direction on where to find maybe a chart or something listing abx and their usual dosages to treat Lyme or Bart or other co-infections. I just started abx for Lyme 3 weeks ago and I just am curious to see where I fit. I do trust my Lyme doc, but I like to be as informed as possible.

Thanks Minx

tickbattler
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Date Joined Jul 2007
Total Posts : 327
   Posted 10/1/2008 9:52 AM (GMT -6)   
THanks ticker - that's very helpful. I have passed the info on to her.

tickbattler

ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 10/1/2008 10:49 AM (GMT -6)   

Hi Minx.  Dr. Burrascano list recommended antibiotics and dosages starting on page 17 of his treatment guidelines at http://www.ilads.org/burrascano_0905.html  These treatment guidelines are packed with information including diet, exercise, and supplement recommendations.  I think it is important to learn as much as possible.  Knowledge is power.

What meds are you taking?  How are you doing on them?


ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 10/1/2008 10:49 AM (GMT -6)   
tickbattler, you are welcome!  I hope your mom's treatment goes well.
 

Minx
Regular Member


Date Joined Aug 2008
Total Posts : 62
   Posted 10/1/2008 9:40 PM (GMT -6)   
Ticker--

Yes knowledge is power! I have read Dr. Burrascano's guidelines and I know my doc follows them. I am on Biaxin 500mg. 2X, Amoxicillin 500 2, 2X and Plaquenil. I am doing pretty well on these. The Biaxin gave me bumps all over most of my face and sides of neck but it is slowly going away. I have a dry throat and loss of taste but nothing too bad. I just didn't know if most LLMD's used these guidelines or not because it seems like others are on such different drugs and such different strengths--it gets confusing. Maybe that is where co-infections come in. My doc goes after Lyme first. The very good news is my worst symptom--interstitial cystitis is showing some slight improvement--which is a huge improvement in my quality of life. I am new to this and learning so much-- thanks to this site and the great people here. Thank you for sharing your knowledge.

Minx

ticker
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Date Joined Feb 2003
Total Posts : 9208
   Posted 10/2/2008 6:12 AM (GMT -6)   

Hi Minx.  I am glad you are improving!

Do you have co-infections? 


Minx
Regular Member


Date Joined Aug 2008
Total Posts : 62
   Posted 10/2/2008 8:35 AM (GMT -6)   
Hi Ticker-

When I had all my testing done at Quest, all co-infections came back negative as well as the Lyme. I only had WB done at IGeneX which was CDC positive. Honestly, how can I trust Quest? I don't. I would have to ask my doc about which co-infection tests are different at IGeneX than Quest. I think for now he is thinking I have 2 co-infections based on my symptoms. I do not really remember which ones that he said. I will have to ask him next week and write them down. It may have been Babesia and Mycoplasma. I also tested negative for Bartonella at Fry. Interesting note though--I took Bactrim for a suspected UTI and seemed to have a herxheimer reaction which went away and seemed to come back two days later as an allergic reaction. I don't think you can know for sure sometimes. All my health providers have a different opinion on what happened with that. Anyway, Bactrim does not seem to be on the list for Lyme treatments that I can see. I believe I did herx and I have to question Bartonella. My nurse practitioner believed there is a link between Bart and Interstitial cystitis. She used to think it was Lyme (and maybe still does), but I think she had a difficult time getting positive results for Lyme. She is getting many positives for Bart at Fry and is going with that for now.

Minx

JAdam85
Regular Member


Date Joined Jul 2015
Total Posts : 56
   Posted 7/22/2015 8:24 AM (GMT -6)   
Does anyone treat with high dose doxy alone? 400-600 mg a day...or do you have to be on an azole abx as well

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1212
   Posted 7/22/2015 8:48 AM (GMT -6)   
doxy alone will only put Lyme into a dormant cyst form. Flagyl or Tindamax
or a cyst busting herb like GSE should be added.

JAdam85
Regular Member


Date Joined Jul 2015
Total Posts : 56
   Posted 7/22/2015 8:52 AM (GMT -6)   
GSE? Also, is it true to stay on daily abx until you are symptom free for 2 months? I read that somewhere

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1212
   Posted 7/22/2015 9:29 AM (GMT -6)   
JA,

GSE is Grapefruit Seed Extract. Check it out.

Yes, 2 month sx free is a good start to wean off abx.

I was at 90% for a good stretch, and stopped my last abx in April. But I stayed on all of my herbals and supplements.

Babs and/or Bart skin issues and other sx returned in 8 weeks so I added cryptolepsis back in with GSE, Cats Claw, and Silver Hydrosol. I just started Cipro last weekend, and may add mino in a few weeks if that doesn't help. If I get back to 90% again I plan to stay on a maintenance abx forever.

JAdam85
Regular Member


Date Joined Jul 2015
Total Posts : 56
   Posted 7/22/2015 10:20 AM (GMT -6)   
Good luck to get to 100%!! Would GSE really work just as well as Tindamax?

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1212
   Posted 7/22/2015 10:36 AM (GMT -6)   
JA,

I don't think GSE is even close to being as effective as Tini. It's more for someone who can't tolerate abx, and GSE has other benefits like also being anti-fungal and anti-viral.

JAdam85
Regular Member


Date Joined Jul 2015
Total Posts : 56
   Posted 7/22/2015 4:58 PM (GMT -6)   
Okay, I thought that was the case. I did see on another thread somewhere here where someone was going to start treatment with Tini alone because it was such an effective drug across the board.

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2564
   Posted 7/23/2015 3:01 PM (GMT -6)   
as far as the doxy dose, i haven't seen it higher than 400mg - you have to be careful not to take too high of a dose, as it can result in side effects (i ended up with peripheral neuropathy at the 400mg dose and also couldn't handle even driving my car because of the sunburn issue. it was AWEFUL

as for GSE - it is not as "strong" as Tindimax, but on the bright side it does not carry the cancer risk like Tindimax and flagyl. I didn't take any cystbusters. I tried GSE but I couldn't handle it - it was too toxic. There were reports that many GSE products are contaminated and have estrogenic properties. Surely wasn't for me. Be very careful before you jump into taking that stuff. If you do a search on this site, there was a HUGE thread on it last year!
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014. Clinically diagnosed with Lyme and Bartonella Feb 2014.....Treated with abx & herbs for over 7 months. Finished treatment in Sept 2014. Healed from Lyme!!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35304
   Posted 7/23/2015 4:44 PM (GMT -6)   
Chapelle!! Hi!!! How have you been?

Not that Buhner has a corner on the market for information, but he doesn't believe that GSE is that effective. Personally, I think it's worth a try, but don't waste a bunch of time with it if it doesn't seem to be working for you.

Buhner isn't a fan of GSE - here's why:
"I did not look at GSE in lyme as it is not very systemic. It should be effective for lyme infection of the GI tract but I doubt it would do well for the central nervous sytem or secluded cysts."
buhnerhealinglyme.com/lyme/gse-for-cysts/

and here:
"I go into this in some depth in the newest edition of Herbal Antibiotics (due out in June). From my research ALL GSE products do indeed seem to contain chemicals that I cannot in good conscience recommend people take. The plant itself IS antibacterial but the commercial products are, in my opinion, adulterated. There is going to be some systemic absorption but I haven’t spent enough time on it to find out just how much. Looking at grapefruit itself, without the additives, it just isn’t potent enough or systemic enough to make it through my filters. And yes, it is helpful for many people."
buhnerhealinglyme.com/herbs/grapefruit-seed-extract-gse-toxic-or-not/
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15
*I can usually post a link to any info that I post. Wish to see a link? Please just ask!

Chapelle
Veteran Member


Date Joined Feb 2014
Total Posts : 2564
   Posted 7/24/2015 6:58 PM (GMT -6)   
Hi Traveler!! I came on here planning to write an update yesterday, but I got wrapped up in responding to threads instead, LOL

I just posted an update now, hope you have the time to read it!!
Registered Pharmacist in NY
Tick Bite in October 2013 (didn't realize it at the time)
Started with Flu Symptoms November 2013 then Muscle/Nerve Symptoms January 2014. Clinically diagnosed with Lyme and Bartonella Feb 2014.....Treated with abx & herbs for over 7 months. Finished treatment in Sept 2014. Healed from Lyme!!
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