So, I saw the doctor A.Y. in Norwalk, CT last week. He was someone lissted on the LLD list I was given from someone on this list, I believe. My current situation is my western blot says 2 abnormal IgMs - 41 and 23 and one abnormal Igg - 41 - I have not had a test through Igenex.
I have really bad pain that started in my foot and has now spread to the sides of both legs, my knees, and my hips - and beginning on my arms now. My back is so bad I can't sit down for more than about 15 minutes or so without lots of pain. I am fatigued and losing words. I have been to tons of doctors who have ruled out the normal back/spine stuff, such as herniated disk and am searching for answers.
I went to see him to discuss treatment - he took a very long history so I was thinking - oh, this is great. But then he started saying well your address in Greenwich doesn't have deer with lyme ticks - we have found them at X place in Greenwich - I told him I actually have hiked at X place many times, but that didn't seem to matter to him. He wanted to know how many times this year I have seen a deer in my yard - which I think I haven't. He seemed very caught up on the idea that the deer would have to be right in my yard for me to have contracted lyme -
This is because I do not remember a recent bite or rash. I said I think 2 years ago I may have been bit by a tick - he then said - well are you sure it was a deer tick, they are very small. When I said the only other incidence I remember was 20 yrs ago a clear bullseye rash he said - well they knew about lyme disease then so you would have been told if you had it. He really seemed to be trying to prove to me I couldn't have been bitten by a lyme tick.
He did an exam and looked at my blood tests - he highlighted the part on the blood test report that said "a postive IGM test alone is not recommended for use in determining active diease in perosns with illness of longer than one month duration." - (I guess my Igg was considered negative, although I did have one band.) He basically said the tests indicated no lyme
when I said my PCP had recommended additional testing in a few weeks he said I wouldn't do that - he said he was sure based on his experience that I didn't have lyme, and he would guess it was fibromyalgia - and get this as the reason - because I was having too much pain for it to be lyme - and the other reason was he tested my short term memory and said I had a loss of that and said that is a big symptom of fibromyalgia
What do you guys think of all this?????
Hi justlearning. I am not familiar with the doctor you saw. He does not sound Lyme knowledgeable to me. I cannot believe he said "your address in Greenwich doesn't have deer with lyme ticks - we have found them at X place in Greenwich." To me, this is so illogical! Also, deer ticks are not the only ticks that carry disease. Most people do not know when they were bitten and only about 50% of people who have Lyme ever get a rash.
I highly recommend getting another opinion by a doctor who comes highly recommended. You can email me for a doctor recommendation. It is also important to be tested for all the co-infections.