Book: "The Lyme-Autism Connection: Unveiling the Shocking Link Between Lyme Disease and Childh

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/2/2008 6:47 AM (GMT -6)   
I am encouraged that there are so many new books available on Lyme disease.  This one was published in June 2008:  "The Lyme-Autism Connection: Unveiling the Shocking Link Between Lyme Disease and Childhood Developmental Disorders" by Tami Duncan and Bryan Rosner, with forward by Robert Bransfield, MD. 

stuey06
New Member


Date Joined Apr 2008
Total Posts : 12
   Posted 10/7/2008 10:46 AM (GMT -6)   
I was diagnosed with Chronic Late Stage Lyme one year ago, have been taking Doxy and Mycobutin since March of this year and finally discovered what caused my now 12 year old daughter to have neurodevelopmental disorder learning challenges diagnosed at age 7.  She got the Lyme and Bart from me (gestational) and it has been an incredible journey as she has suffered from multiple health/emotional issues forever.  I pray everyday that the skyrocketing growth of autism and kids like my daughter considered on the spectrum have a fighting chance with biomedical intervention, treatment for the bacteria deep in their bodies, and ultimately a "normal" life.  The greatest challenge is not necessarily the disease but the lack of empathy nor grasp of how powerful this illness is to the developing brain.  Most give us the deer in the headlights look like just take some antibiotics, and get over it.  I cry just about everyday for my daughter since she is at that tween age where kids can be terribly insensitive.  She just needs to feel understood and have a friend that has some empathy for what she is going through.   Kay of KC sad

Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 10/7/2008 1:17 PM (GMT -6)   
ticker said...
I am encouraged that there are so many new books available on Lyme disease.  This one was published in June 2008:  "The Lyme-Autism Connection: Unveiling the Shocking Link Between Lyme Disease and Childhood Developmental Disorders" by Tami Duncan and Bryan Rosner, with forward by Robert Bransfield, MD. 
and I'm encouraged to see other practitioners and theorists other than Dietrich Klinghardt talking about Autism being caused by Borrelia. Maybe people will really begin thinking about the root cause of Autism, rather than just how to try to treat it retroactively.
 
Just think how hugely Lyme (Borrelia) affects our emotions and thoughts as adults, and it's no stretch at all to believe an infant born with Borrelia would suffer absolutely profound disturbances in thought and emotion.

tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/9/2008 6:26 PM (GMT -6)   
ticker -

Thanks for the info on this book. My kids don't have autism, but do have behavior issues from lyme and I defininitely plan to read it. I loved watching the clip of Dr. J talk about his experience with the connection.

It does seem like the wave of information on Lyme is getting bigger and bigger and cannot be stopped. One of these days the mainstream medical community will not be able to ignore it!

tickbattler

wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 10/10/2008 8:14 PM (GMT -6)   
stuey06,

My son was born with Aspergers (a very high functioning form of autism). I know it was because I had Lymes'. His growing up years were so difficult. Like you I cried a lot for him and for me and for how cruel kids could be. We didn't realize he had Aspergers in the beginning, he was diagnosed with Sensory Depravation (which now they call Aspergers). And my mothers heart grieved for him, and I felt inadequate as a mom, and I was working with my own health (not knowing I had Lymes) and everything was such wear and tear.

My heart aches for what you are going through. I know all too well the pain you are talking about. We were told my son would probably never read, ride a bike, or drive a car. He is 31 now, graduated with a degree in English, lives on his own, has a job, and drives.

So never give up. Keep seeking, there are answers out there. Miracles do happen.

Jeanne

tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/11/2008 7:28 AM (GMT -6)   
Wacko woman,

I'm so sorry you went through that with your son. It is wonderful to hear that your son is doing so well now. Did you treat him for lyme? If so, at what age? Did the aspergers disappear for the most part? How long did treatment take?

Thanks,
tickbattler

wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 10/12/2008 12:44 PM (GMT -6)   
Yes, both my children were treated for Lyme's. they did not go and see Dr. Jernighan, but I put them both on his protocol. My son was on the protocol for about 6 months and he has had no Lyme symptoms since then.

Growing up we did OT with him for 10 years. I was always trying new Dr.s seeking help. We did not put him on any medications. when he was a baby they poked him with an unsterile needle to check for jaundice. From this he got an infection in the bone in his leg. to fight the infection they gave him abx in 10x the correct doseage, the nurse misread the decimal point on the needle. So I know all about trauma and hurt and frustration and anger.

No, the Aspergers did not disappear. But when I research other stories of children with Asperger's he is doing incredible well. But we worked incredibly hard through all his growing up years to make sure he would learn the things the Dr. told us he would never be able to do. So do not believe Dr.'s who say we cannot heal!

He still is socially awkward. he sees the world differently (which is not necessarily a bad thing!) but people around do not always understand. he is now in a church that he really likes, and there are a group of people (from the church) that have disabilities and they meet once a month (the group is called the Lazarus Ministries.) He has found a 'community' in this church.

He flew to England several years ago (all on his own) and stayed with some people that he didn't even know. That was an amazing accomplishment!

He still doesn't drive on freeways, the fast motion is hard on him. With enough practice he might be able to do this, but it is not something he wants to tackle and I totally honor his decision.

He is very happy other than he would like to meet a woman to share his life with.

We are very blessed to have him in our lives.

Be Well
WW

Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 10/12/2008 4:36 PM (GMT -6)   
Stuy06
I too have a 12 year old with lyme. You can e-mail me to chat about it. we just found out this week. I am sort of struck by it. my 5 year old has gotten it twice, lilly, but we never knew that charlotte has been bitten. she never had the usual fever or anything. so duhhh....
but now it all adds up. she must have gotten it in martha;s vineyard when she was 6. now..well....she has all of the symptoms of cronic lyme. and is struggling so hard in school. no one knew what the deal was. she has been doing the wilson method because we thought that her cognitive problems were from her ear problems as a child. gezzzzzzz
you can tap on my mail and write to me, would love to hear your story in detail about your 12 year old and what you suggest. my daughter is worried now, because she has seen me try everything and not get better....
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


Martha's Vineyard
Veteran Member


Date Joined Jul 2008
Total Posts : 1119
   Posted 10/12/2008 4:37 PM (GMT -6)   
wacco tell me about what you put your son on for 6 mos. how old was he? how did you do it? you can e-mail me directly again.
I got Lymes in 2004. So did my 11 mos old daughter and my favorite dog Toto.


wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 10/13/2008 11:41 AM (GMT -6)   
Martha,

my son was 27 when he began treatment. He went on a very simple program, like what Denise did. He used Dr. Jernigan's Microbojen, Borrelogen, Neuro-antitox, infrared sauna, epson salt baths, and the ION Foot bath.

He would use the Borrelogen for one month, then the Microbojen for one month (always using the Neuro-antitox). Then he would start the Borrelogen again for a month, etc. He also used the infrared sauna (which he liked). He would use the ION Foot bath (because we had purchased it for me and was readily available for him) and do Epson Salt Baths. He also choose to go to a Nutritional Store (run by a nurse) that we have known for years and years and he was muscle tested for a few other supplements (I don't know the different ones he took).

He still uses the sauna and an occasional epson salts bath, but that is pretty much it. And once or twice a year he will go to be muscle tested.

He has a problem swallowing pills so almost all of his treatment was done with liquids (like the Microbojen etc.)

He stopped the program when his symptoms went away and that was 3 years ago and is doing fine now. The program strengthened his immune system and he is much healthier than before - doesn't get the awful bronchitis he would get several times a year.

I have been thinking of you and sending healing energy your way.

Be Well,
WW

stuey06
New Member


Date Joined Apr 2008
Total Posts : 12
   Posted 10/30/2008 11:13 AM (GMT -6)   
Dear Wacko Woman,
I am sorry I've been remiss in getting back to you so long.  We have had another stunning piece of news, that is, as I suspected.  My 12 year old daughter as I mentioned is being treated with Diflucan for her chronic Lyme that I passed to her in the gestation period, and breastmilk.  Her older brother, 15, also tested positive for the Lyme and Bart.  Need I say more.   Aside from the neuropsychiotic behavior of my little girl, with anxiety waxing and waning during a very stressful time in her academic life (tons of homework and tests in 7th grade), our son is on Zithro and will soon be having a herx.  His moods have been eratic, very unpredictable, and tough to get him to take probiotics like my daughter and I religiously have done over the last three years.  He is bright, but has sensory integration issues, bright lights bother him, chilled all the time, shows confusion and forgetfulness and overall has lost weight over the last four years and won't go with our healthy meal plans.  I force him to eat caesar salads, and stuggle to get him to eat fruits and vegetables or to take his Juice Plus supplements.  He has classic gut dysbiosis, craves sugar and chips and junk.  I am living proof that having Lyme in my body for 19 years from what we could gather (IgG/IgM) based on my symptoms, diet, exercise and supplements have kept me functional.  I have lost all the inflammation around my gut from my thyroid, adrenal dsyfunction, and I am the same weight as when I married my husband some twenty years ago. 
I worry about my kids and how we are going to beat this for they have seen how disciplined I have been since being diagnosed a year ago.  No alcohol, no sodas, no junk, little treats, but rare, infrared detox, epsom salt baths, and supplements and pills daily.  It's a battle of mind over matter, incredible determination and faith that have gotten me this far and I still battle the fatigue, nausea, and confusion in my brain. 
I too take Jernigan's Neuro-Antitox formula as well and I don't expect my son will consider the full protocol, but I will pray for a miracle!  I appreciated your words of encouragement for your 31 yr old son, and pray for my children.  
 
Martha's Vineyard,
I have read many of your posts off and on as I've herxed in the last six months and I admire your strength.  When I consider how profound this disease has impacted my family's life, it's a wonder I can think clearly at all.  The original LLMD who diagnosed me ran the NeuroImmunology Lab on my little girl (along with the usual Igenex/Fry labs) showed streptococcal M Proteins, both IgG and IgM.  This explains her enlarged adenoid and pus on her tonsils, foul breath as well. She believes she needs 12 shots of LA Bacillin. one per week, over a period of 3 months to clear that infection.  Her plan of treatment was to begin with this, followed by 1 tsp of Zithromax at night for 3 months, then followup with five months of Doxycycline.  (I am on Doxy since March and Mycobutin).  A friend whose high school age son went thru those shots said they are painful, require a Lidocaine patch, but his disposition improved after being treated.  I really pray for wisdom because I want so desparately for my daughter especially to just find contentment in herself, peace and joy of who she is.  She cries everyday, has terrrible anxiety, and as a family we don't invite many people over anymore because of this tension and emotional roller coaster.  Her brother, also just diagnosed, has really harbored much anger and resentment for her temperament and learning issues.  He has withdrawn from the family, runs himself ragged at school, has friends, but clearly lacks confidence and does not project himself well.  We consider ourselves blessed to not have both of them on the Autistic spectrum, but she sees how good he is at everything, or so it seems and she stuggles. 
All of us with families struck by Lyme should network and publish our stories of how pervasive this disease can impact one's behavior and brain.   I will try to watch for your reply and again, sorry, I took so long to respond.
Take care!                                     Kay of KC
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, October 17, 2017 11:09 AM (GMT -6)
There are a total of 2,883,229 posts in 316,366 threads.
View Active Threads


Who's Online
This forum has 157491 registered members. Please welcome our newest member, Gina from EBOOST.
410 Guest(s), 19 Registered Member(s) are currently online.  Details
Michelejc, PeteZa, Pirouette, Turboz, Scaredy Cat, pine88, getting by, outscruff, emotions, TxBart, enginerd, Old Mike, seyshell, superhenderson13, Inky07, jackinthebox, Tall Allen, iPoop, lab626


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer