I've been into this odyssy for 8+ years. I'm in the middle of my 3rd round of IV Rocephine. This time I will be receiving tx for 10 weeks straight (2x a day 4x a week).
I have had neck and head pain for 1 year straight now - every day, every minute of every day, for over a year. And the jerking is so severe I fell out of bed last week. I am bruised from my right shoulder down to my right hip and ankle. I also look like a heroin addict with all the pin holes, missed veins etc.
I wish I could be more up beat, but I can't stop crying today. Just know, you're not alone.
We'll get through today - Jennifer
06/00- The beginning, 08/01-LD positive, 10/01- Igenex and CDC LD positive, 10/02-LD positive, 11/03-LD positive, 10/07-Bartonella positive, CD57=3, 08/25/08-WE'LL SEE
Current Rx's 08/25/08: Wellbutrin 300mg, Paxil 60mg, Xanax 5mg, Restoril 30mg, Prevacid, Darvocet, Acidophilus, Flagyl 1500mg, Urso 250mg, IV Rocephin 4 grams, Magnesium Chloride and/or Magnesium Oil - I need to order off the internet