This is what I wrote 2 years ago at this time...hang in there

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violets
Veteran Member


Date Joined May 2006
Total Posts : 878
   Posted 10/7/2008 4:43 AM (GMT -6)   
Hi everyone,
 
I just want to remind people who are just starting out, or even people where it has been over a year in treatment and they feel there is no hope, that it can get better!
 
I just want people to know it takes longer than you think but hang in there!  You need patience with this disease.
 
I want all of you know I feel for you, as I was there once and remember the pain.
 


 
 

Post Edited (violets) : 1/4/2009 5:56:34 PM (GMT-7)


Chris L
Regular Member


Date Joined Aug 2008
Total Posts : 189
   Posted 10/7/2008 4:50 AM (GMT -6)   

Thanks Marie!  This was a definite inspiration!

Did you get well on IV or oral antibiotics and what kind.  Thanks!

 

Chris

 


Gretchen P
Veteran Member


Date Joined Sep 2005
Total Posts : 1784
   Posted 10/7/2008 6:50 AM (GMT -6)   

Hey violets,

 It's so good to see you in inspiring people now. I remeber the days when you asked me how I was ever able to run, I am so excited you are able to experience it again! Good luck on your reaching your marathon goal, I will be there at the finish line in spirit to chher for you and give you a great big hug when you finish! Always a pleasure seeing your uplifting posts...Peace!


I'm gonna get that Lyme!!!!!!!!!!!
~~~~~~~~~~~~~~~~~~~~
 
I have lyme and I've got the papers to prove it!! Take that Wormser!
 
Wormser, who is that????? OHHHHHHH that's right he USED to be on the IDSA panel!!!


sojourner
Veteran Member


Date Joined Apr 2006
Total Posts : 1173
   Posted 10/7/2008 9:00 AM (GMT -6)   
Hi Marie,
 
It's good to see you again.  TY for remembering to come back and encourage those who have joined us since those days when we all came onboard together searching for our answers back 'when'.
 
I am glad you are planning on publishing your story.  Your journal entry is remarkable.  The Lord has answered your prayer.
 
You are stilling 'running the race set before you....'    You go!  I'm right beside Gretch cheering you on w/fond memories of the most bizarre kind. 
 
The Lord made sure we all found each other back then.  I have been blessed and am grateful.  Those who have come along now will appreciate the inspiration from your experience.
 
Blessings, Diana

"God loves with a great love the man whose heart is bursting with a passion for the impossible." ~booth

www.stylebyheatherrose.com -click "Lyme testimony" and "Lyme Disease" for a panoramic view of the truth.  Lyme disease - coming to a tick near you!


jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 10/7/2008 9:14 AM (GMT -6)   
Marie:
Thanks for this. I think we all get caught up in feeling bad and forget that many do get well. You are a constant inspiration and I look forward to the day that I too will post on here how I got well completely.
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.


*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 10/7/2008 7:42 PM (GMT -6)   
Hi Marie,

Thanks so much for posting that! I'll never forget that you were the one who led me to this great board that solved so many unanswered questions for me. I'll be forever grateful for that. If it weren't for you, who knows if I would have ever found out that I have Lyme and not "anxiety" as the doctors were saying.

I'm so glad you continue to be well!

Dowa
Veteran Member


Date Joined Sep 2008
Total Posts : 1120
   Posted 10/8/2008 12:49 PM (GMT -6)   
Would you be willing to share your treatment with us that are discouraged and still looking for the magic?? Thanks D

LF1980
Regular Member


Date Joined Jul 2008
Total Posts : 78
   Posted 10/8/2008 8:42 PM (GMT -6)   
I am so happy for you Marie. I started my treatment in Nov 2006 after 6 months of misdiagnosis. I am feeling much better as well but not quite back to my old self. I am hanging in there for hopefully what will be the last stretch.
Can you share your treatment plan?
I had 2 months of orals - minocycline, 6 months of IV, Rocephin, followed by orals mino and zithro from June 2007 until now. I have also taken adderol for concentration, cymbalta for seratonin, and fludrocortizone for blood pressure stabalization. I did have 2 setbacks though, when I had my gallbladder out and fluid build up in my hear so I needed a diuretic - both of these issues are fine now though.
 
Are you off all medications?
 
Thanks again for sharing.

myeezy24
Regular Member


Date Joined Apr 2015
Total Posts : 470
   Posted 9/22/2015 10:05 PM (GMT -6)   
How long were you treating for before you starting feeling good again
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