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LymeLight
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 10/7/2008 3:05 PM (GMT -6)   
Hi, everyone! I haven't oficially been made a member of the Lyme Club, because I haven't been diagnosed yet, but I have strong "credentials" - I present ALL of the characteristic symptoms of chronic lyme (heart, muscle, joint, neurologic), some of them in severe form. I've received a Lupus diagnostic that never really checked out so, naturally, considering that Westchester, NY has more lyme than a mojito cocktail, I started thinking that I might have lyme disease. After doing a lot of research online, I started saying "Wait a minute. I don't just THINK I have lyme disease, I am actually pretty sure of it!". It seems the internet can teach you everything you need to know about this crazy disease but it won't point you in the direction of a good doctor.  I don't want to visit Westchester Medical Center's Dr. Gary Wormser because I really don't want to hear all that "post-lyme syndrome" BS when I've already found out how hard to to treat this illness can be. Chronic lyme exists, Dr. Wormser! WE know it, MOST doctors know it, and probably YOU know it, too! You just need to start acting like you know it.
Anyway, I am not racing to get diagnosed as quick as possible because there's a very slim chance that I actually don't suffer from this disease. The basic reason I'll have all my blood tests done is to check for co-infections. My aim is to find a good doctor (is it that hard???) that can recommend a long-term protocol. BTW, I suspect I've been infected more than 10 years ago. At first I thought I was a "one in a million" type of case but after doing research I found out that there are a lot of people who have discovered this illness after suffering for many years and probably just as many that have lived all their lives with it and never knew it. This is one crazy disease, that's for sure.
I hope I haven't bothered anyone with my slightly playful way of writing, because, hey, you know they say that you should never lose your sense of humor. I am just trying not to lose mine... I KNOW that this is a serious illness. Trust me. My symptoms made that very clear, guys.
So, if anyone can help me with the name of a lyme doc in my area (Westchester, NY) I'd really appreciate it.
I've sent Ticker an email about a week ago but he hasn't responded yet. Well, I'm still waiting.
 
 
Hang in there, fellow lyme sufferers! I hope all of us find the strength to live a good life, even if we have to deal with this disease.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/7/2008 6:01 PM (GMT -6)   
Hi LymeLight.  I am a bit behind on my email.  I will check.
 

trytocancel
Regular Member


Date Joined Aug 2007
Total Posts : 263
   Posted 10/8/2008 9:03 AM (GMT -6)   
there are several great ones in your area. I prob have been to most of them. Feel free to ask me any questions also... Good luck!

<FONT color=blue>*no dx until 6/2007- clinical dx at llmd with a mildly positive bart test

hypermobility syndrome</i> dx, finally one western blot that no one knew how to read, and a nice round of prednisone to finish me off
June-August...Ceftin
August - October ....Roecefin IV, 9.5 weeks
October - worse than ever, bedridden, new LLMD pulled IV
October - March 21...biaxin & plaquenil, (worked a miracle),climbed step first time in 14mos
Jan - March 21...tetracycline (on and off 4 times bc hard to tolerate)

March 21 - April 19....stopped all prescription drugs, best month yet

July & August: DIFLUCAN...more improvement

September: Zithro + Mepron

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