Info from Dr. J on babesia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/9/2008 6:33 PM (GMT -6)   
I took my boys to see Dr. J last week in CT for their second visit. One of the things he mentioned that I thought was very useful was that he is seeing A LOT of babesia duncani in PA. I had previously had my family tested only for babesia microti since I thought that duncani was pretty much mostly on the west coast. Not any more apparently.

We are now awaiting duncani test results for my boys.

The other significant thing he mentioned was that duncani is resistant to Mepron and he uses artimisinin to treat it. Perhaps that's why my husband has not been responding to the mepron he has been taking for 6 months! He may have duncani in addition to microti!!!!

tickbattler

Lymebean
Regular Member


Date Joined Nov 2007
Total Posts : 267
   Posted 10/9/2008 6:41 PM (GMT -6)   
I live in Virginia and tested positive for Duncani. I've been on heavy doses of Mepron for almost a year now and still get the sweats. I need to start up on Artemisinen again.

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/9/2008 7:43 PM (GMT -6)   

Hi tickbattler and Lymebean.  I was told by a knowledgeable doctor that there may be a cross between strains of Babesiosis, and it is tough to treat.

Some doctors have patients take Artemisinin with Mepron or Malarone.  Tickbattler, is your husband going to add Artemisinin?


tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/9/2008 7:56 PM (GMT -6)   
Thanks ticker, yes, my husband has been taking artemisinin too, but for not as long. That is interesting information about the cross of strains. Dr. J has done just that...he is continuing the Mepron and is adding artemisinin for my son. I saw in a utube clip related to the autism book you recently posted about that Dr. J did say that duncani is tougher to treat.

We have recently suggested to our LLMD to treat my husband's bart first before we treat his babs, based on Dr Burrescano's recent talk in PA that we attended. Per Dr. B, apparently taking Mepron prior to levaquin can make levaquin less effective against the bart later, so he says to treat the bart before the babs. So now my husband has switched to levaquin from the zith and Mepron. I have inquired with our LLMD about taking artemisinin with the levaquin to make sure that is not a problem. I have also asked that we get the duncani test done.

tickbattler

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/9/2008 8:02 PM (GMT -6)   
tickbattler, it sure is complicated isn't it?  It sounds like you are covering all bases though.
 

tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/10/2008 5:56 AM (GMT -6)   
Hi ticker - Yes, thanks, it is really crazy to be telling our (well-respected) LLMD how we would like to treat, but I feel that Dr. B and Dr. J are the best and I want to follow their protocols. It's disturbing to me that the LLMD's we have seen (about 4 now) don't seem to be up on the latest info from Dr. B, which I am able to find on these message boards and through lectures and books! I guess they like to do their own thing and don't have the time to get the very latest information. But to me, with the lack of major clinical studies, I think it makes sense to follow the docs who have seen thousands of lyme patients. At least they have their own "clinical studies" with all of the cases they have seen!

Dr. Jones is now taking patient conference calls on Sunday afternoons and he sees patients on Saturdays. This tells me that he is spending almost ALL of his time on Lyme. He will most likely know more than the other docs who take their weekends off!

tickbattler

phsinvent
Veteran Member


Date Joined Aug 2006
Total Posts : 1155
   Posted 10/10/2008 10:19 AM (GMT -6)   
Some are finding that clindamycin with artmesia or clindamycin with quinine is working better than the zithromax/mepron route. I'm guessing each form of babesia responds to different combos.

masonsmom
Regular Member


Date Joined May 2008
Total Posts : 84
   Posted 10/10/2008 6:08 PM (GMT -6)   
hi all! does anyone know how to contact dr j for a conference call?

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/10/2008 6:12 PM (GMT -6)   
masonsmom, you can email me for his phone number.

tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/10/2008 6:30 PM (GMT -6)   
Thanks phsinvent - that is good to know. We will keep that in mind for my husband after we treat the bart!

tickbattler

masonsmom
Regular Member


Date Joined May 2008
Total Posts : 84
   Posted 10/10/2008 7:19 PM (GMT -6)   
thanks ticker!
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 23, 2017 8:52 PM (GMT -6)
There are a total of 2,844,571 posts in 312,139 threads.
View Active Threads


Who's Online
This forum has 154026 registered members. Please welcome our newest member, Kellyrose1897.
457 Guest(s), 10 Registered Member(s) are currently online.  Details
WeightLoss, Kellyrose1897, AnxiousTexan, Estella630, ks1905, Giapeeter, FamilyGuy, garyi, testuser1234, Gracie0990


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer